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Sjögren's Syndrome Message Board
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Old 11-28-2009, 04:05 AM   #1
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Madison104 HB UserMadison104 HB UserMadison104 HB User
Eyes

I swear I feel like pulling my eyeball out! I am very frustrated right now. My right eye seems to be the worser of the two. A few years back I had cornea abrasion due to the dryness. I would get up and my lid was literally stuck to the eyeball due to dryness.

The systene drops used to help. Now, not so good. I am thinking about restasis, but I heard that it can cause lymphomia? Can anyone suggest another drop or tell me more about the restasis? (sp?)

No of course my mouth is dry too with a burning tongue and metallic taste to boot! I am just irriated, but this eye of mine is driving me crazy!!
Funny how pain can make us actually angry! Behind my anger is total frustration!!

Thanks in advance
Madison104

 
Old 11-29-2009, 09:44 PM   #2
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Mel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB User
Re: Eyes

I hadn't heard of restasis causing lymphomas but I will research that again. I use them and also artificial tears. My dr says one is for inflammation and the other is like a lotion. The misery has stopped and I am glad to be using it.

 
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Old 11-30-2009, 01:31 AM   #3
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Re: Eyes

Thank you Mel I am seeing my rheumy today. I am willing to about try anything. I am so sick of my eyes hurting. It is really painful. If you find out anything let me know. I really appreciate it!
Madison

 
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