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Sjögren's Syndrome Message Board
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Old 03-04-2010, 07:26 PM   #1
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Join Date: Mar 2005
Location: pittsburgh, Pa
Posts: 202
gcbpgh HB User
Cellcept and Hearing Loss, who is on it....

Since I started cellcept a few months ago my left ear has just been awful.
Years ago I had a bout of menieres and it went away. Now its back but its getting worse with sense of fullness, tinnitus and now pain in my ear, face and jaw.

My doctor says it has nothing to do with the cellcept. I have sjogrens and autoimmune hepatitis. All other drugs I have rejected due to side effects but now I am losing my hearing in my left ear.

Otherwise the drug is great but I can now feel the pressure starting in my right ear......any help or advice or anyone else have this happen to them please let me know. Doctors seem to have no answers, I just read an article that sjogrens can give you ear problems and I haven't had them for years till this medicine....thanks in advance if you can help, I just want to chop off my ear......

Gcb in pgh

 
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