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Old 12-18-2010, 10:08 AM   #1
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Vaginal Yeast Infections and Sjogren's

Hi everyone. I am a 40year old female recently diagnosed with Sjogren's. I was diagnosed with systemic lupus about 9 years ago. My main symptoms are dry eyes and mouth, but recently I've started having recurrent vaginal yeast infections as well as bladder spasms and urgency.

Has anyone out there experienced yeast infections as a result of your sjogren's and if so, what have you done to help your situation?

I'm starting to get kind of depressed about all of the symptoms and that not much can be done about them. I'm already on a bunch of meds for the lupus and for chronic pain from degenerative discs in my neck.

Any thoughts are greatly appreciated.

Thanks!
Bryansmom

 
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Old 12-29-2010, 04:10 PM   #2
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Re: Vaginal Yeast Infections and Sjogren's

hi
i was given a Dx. of probable Sjogren's by an ENT dr. I have always had problems with yeast and urinary tract issues. My obgyn prescribed Vagifem, which is a low dose vaginal estrogen tablet. I also use a compounded estrogen cream with Vit. A and E. Both of these helped a lot. Sometimes i have to use Diflucan. I generally apply a vaginal balm to moisturize tissues as well.

 
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Old 12-29-2010, 04:20 PM   #3
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Re: Vaginal Yeast Infections and Sjogren's

Thanks for the info, Marf. My rhematologist suggested I go see my OBgyn and that I use some type of vaginal moisturizer. It's really bumming me out; kind of feels like just one more thing in a long line of annoying symptoms! I'm going to check into the things that you mentioned. Thanks!

 
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Old 03-21-2011, 10:49 AM   #4
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Re: Vaginal Yeast Infections and Sjogren's

Dear BryansMom,

You are the first person I've found that has the same problem as me! I am a 31 year old female with Lupus and Sjogrens, and have also always had problems with reoccuring vaginal infections (usually yeast) that have gotten almost constant in the last couple years. I've gone on a special anti inflammatory diet that seems to have rid me of most lupus symptoms, but the yeast crops up about once a month and causes me to have a flare that results in painful welts all over my body including my face hands and torso. BUMMER. Every time, it is caused by the yeast. (I think my body is attacking the yeast and goes bezerk). Now I have some strange yeast infection that keeps reoccuring and is physically asymptomatic except for pain and itching and the many doctors I've gone to have not been able to detect what it is. I am going systematically through several types of preventative yeast treatments to try to find something that works - let me know if you want to discuss further!!

Best, Splash22





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Originally Posted by Bryansmom View Post
Hi everyone. I am a 40year old female recently diagnosed with Sjogren's. I was diagnosed with systemic lupus about 9 years ago. My main symptoms are dry eyes and mouth, but recently I've started having recurrent vaginal yeast infections as well as bladder spasms and urgency.

Has anyone out there experienced yeast infections as a result of your sjogren's and if so, what have you done to help your situation?

I'm starting to get kind of depressed about all of the symptoms and that not much can be done about them. I'm already on a bunch of meds for the lupus and for chronic pain from degenerative discs in my neck.

Any thoughts are greatly appreciated.

Thanks!
Bryansmom

 
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Old 03-21-2011, 09:07 PM   #5
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Re: Vaginal Yeast Infections and Sjogren's

Hi Splash 22
I have developed a chronic pelvic pain condition called Vulvodynia, caused by what is called a pelvic floor dysfunction. the symptoms are those we have been discussing, yeast infections, urinary tract issues, and can have burning and itching sensations that you can't always find the reason for. My ObGyn is very understanding, which is unusual, and 1) prescribed the Vagifem tablets, which i think you are too young to take, 2) liquid Lidocaine applied with a cotton ball. This provides instant relief and sometimes stops the yeast like sensations, which may not be caused by yeast. 3) He prescribed Diflucan, one a day for two weeks(!), which my regular PCP had been reluctant to prescribe. It seems that this is a good thing to do for chronic yeast.
The lidocaine is important, because it stops you from having a cycle of chronic pain, which is obviously not good.
hope this helps!!
marf

 
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Old 03-22-2011, 06:07 PM   #6
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Re: Vaginal Yeast Infections and Sjogren's

Hi Marf,

Wow thanks that is helpful actually. Actually now that you mention it, one specialist thought I had 'pelvic floor hypertonic disorder, which it sounds like causes Vulvodynia. He said I was basically cutting off blood to the area and hurting the skin and reccommended vaginal valium and physical therapy. He also put me on a heavy dose of Diflucan (once a day is a lot!) plus Nystatin to get rid of it in the digestive system but the pain continued and he was a jerk about it so I blew him off as a quack. But it sounds like you have the same situation so maybe he was right. It is so hard to tell what is yeast and what might just be this phantom pain, since the yeast triggers lupus triggers pain. I am seeking a new specialist and will suggest these to her. Its so bizarre that this could be the cause...

One thing I did for a while was yoga exercises and breathing that helped me relax the pelvic floor... and even realize when it was tense... (until I forgot about it and now its back, lol). Have you tried any relaxation methods? Valium? Massage?

Thank you, Jessica

 
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Old 03-22-2011, 09:07 PM   #7
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Re: Vaginal Yeast Infections and Sjogren's

Hi splash 22
There is a book called Headache in the Pelvis, i haven't read it, but it's supposed to be really good for these kind of issues.
What your dr. said actually sounds like he know something, which is kind of unusual. The hypertonicity is basically from unconsciously holding the pelvic floor muscles in a contracted position, and thats where the physical therapy (with a pelvic floor dysfunction specialist) can help you using Biofeedback and breath. Trigger Points form in the muscles inside your body and cause "referred" pain. If I'm having a flare up, I do use valium, only 2.5 mg. at bedtime, it helps a lot. generally i use it for two weeks or so, so its such a tiny dose its safe to use in that way.
what else, oh, this sounds nutty, but I use a small ice pack during a flare, over my clothes. This helps with the burning.
This sounds scary, but many years ago i was seeing a pelvic pain specialist who was a urologist. He actually injected lidocaine into the muscles over my pelvic floor (over the pubic hair line). This provided instant relief, and does not hurt. I wonder if Botox would do the same thing.
you could try acupuncture as well, it might help.
Ok, thats most of what i know, good luck!
marf

 
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Old 09-07-2011, 01:58 PM   #8
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Re: Vaginal Yeast Infections and Sjogren's

I have Vulvodynia also. It isn't very fun. I have few flares now as I alternate between clobetasol and Premarin cream on tissues every other night. I have a helpful book offered by the Sjogren's Foundation. We do seem to get conditions that need attending to faithfully, don't we?? The few episodes that I have seem to be after wearing clothes that fit too tight. There are two different types of Vulvodynia, I read.

 
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