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Sjögren's Syndrome Message Board
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Old 01-07-2011, 03:06 PM   #1
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Join Date: Jan 2011
Location: USA
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Saffron77 HB User
New Flare, New Symptom

Hi, I'm new around here. I was diagnosed about 6 years ago as having undifferentiated connective tissue disease with secondary Sjogren's and Raynauld's. I've been having a Sjogren's flare for about 4-5 weeks, no tears, insanely dry mouth, not a big deal... I use my eye drops and drink a lot of extra water. However, in the past 48 hours, I've developed a new symptom. From what I've been able to determine it is tactile allodynia. The best way I can describe it is to imagine what it would feel like to be touched if your skin was gone and things were touching your raw nerves. Thankfully, the pain is localized to my shoulders and upper/middle back. Leaning back in a chair actually feels better than the slightest touch of fabric... in fact, the slighter the touch, the more it hurts... very odd.

Does anyone else get this? I'm just wondering how long this symptom tends to last. I don't really want to go to the rheumatologist unless I have to. I just recently crossed back over to the "good side" of borderline diabetes and I don't want to take any prednisone unless I have to. If I have an idea of how long I have to put up with the symptom, I can make an informed decision whether to call the doc. It does seem to be less sensitive than it was yesterday but I did have to wear my sweatshirt inside out most of the day because the relatively rough lining was torture.

Last edited by Saffron77; 01-07-2011 at 03:07 PM.

 
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