Tummy problems, anyone?
I've been having problems with tummy pain, nausea, significant weight loss, fullness and chronic diarrhea for about 2 years now. It has got so bad I can't work and I am terrified I'm not going to make it to my own wedding in 6 weeks.
A bit of background -
Was diagnosed with sjogren's by accident about 3 years ago. I am producing 0ml unstimulated saliva, and 0ml tears.
Unusual blood results --> elevated CK, elevated liver enzymes which have since resolved.
Had colonoscopy/endoscopy 3 years ago, since then flexible sigmoidoscopy, small bowel MRI, CT scan + chest xray (for lymphadenopathy), 2x ultrasound.
On prochlorperazine, hydroxychloroquine and loperamide.
Has anyone had any problems in a similar vein? My doctors are stumped and I am searching for an answer. I know that gastroparesis is associated with sjogren's. My doctor hasn't mentioned this but I am not vomiting.
Thanks very much for any help you can offer!
I'm not crazy, I'm just a little unwell.