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Sjögren's Syndrome Message Board
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Old 05-21-2011, 04:06 PM   #1
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freckles1954 HB User
finally positive blood work-medication?

Hello
I was so happy to come across this forum. I have been fighting the medical community for 10 years. I have been diagnosed with everything from depression to mood disorder. My doctor would not listen to me...until the blood work came back with positive SSB and ANA. During those years I have deteriorated both physically and mentally (mentally due to the doctors making me feel I was a hypochondriac with a mood disorder) My heart goes out to anyone that is feeling the over whelming fatigue and pain that comes with this disease and does not have those darn labs that confirm their pain to their doctors.

I need help with medications. I am currently on long term steroids, which have wreaked my adrenals, what medications are working for some of you.? I would appreciate any help with this.

 
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Old 12-21-2011, 10:47 PM   #2
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giamarie12 HB User
Re: finally positive blood work-medication?

Wow! It sounds like what I went through. I just weaned off steroids after 2-1/2 years. I was lucky enough to have had a doc that believed in me and that was not easy. I am now on Plauquenil for two weeks since the diagnosis. I seem to have taken two steps backwards. Feel worse on Plaq so doc said to add 2 mg. of Medrol back into the mix. Somewhat better. I started on 200 mg. of Plaq and then he increased to 200 mg x 2/day. I see improvements in certain areas. My nose runs again after about 10 years of it not. My eyes are nt that dry. I feel your pain. I have been everywhere you have been. Not a nice thing to go through. I hope things are improving. Oh, yes the disease that takes its time showing in bloodwork or the docs are not doing the right blood work. Good Luck and stay healthy.
Regards,
Dolores

 
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