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Sjögren's Syndrome Message Board
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Old 07-18-2011, 04:39 AM   #1
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clc3363 HB User
Sjogren with Neuro problems

Hi Everyone, I was diagnosed with Sjogrens two years ago, but was told I have had it for quite some time. I've been sick since 2003 with Neurological problems and thought to be MS, be finally I was diagnosed with Sjogrens in my brain. (Plus other places.)

Does anyone else have Sjogren that effect their neuro system? I would love to talk with you. I've been through Chemo and there's many other discussions I make and I feel so alone in making them. I don't know anyone else like me.
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Old 07-20-2011, 08:18 AM   #2
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Re: Sjogren with Neuro problems

Hi, sorry you are going through this. I have sicca syndrome but since my ANA was negative dr denies I have sjogran's in spite of all my symptoms. I too have neuroloigcal symptoms, ms spinal tap negative.
How did they diagnose it in your brain? I had a brain ct scan that resulted in multiple unusual calcifications and abnormal brain shrinkage. No diagnosis on what it is. Dr said if it were sjogran's in the brain I wouldn't be able to move. I justs switched insurances so hopefully I will get more informed doctors.
I get shakes, tingles and numbness all over. I also have body cramps. I panic if I don't have water immediately. Is this anything you experience? I do have a back problem but this tingling, stabbing, numbness is all over

 
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