Re: Plaquenil Anyone?
Hi Fusionqueen ,
For many years i was going to a Rheumotologist with joint pain , stiffness , malar rash ,dry eyes and tired for the most part . I had a positive SSA , ANA speckled positive and very sun sensitive . He first diagnosed me with Sjogren's and i was on vioxx. Then 2 years ago I went to a dermatologist and i was diagnosed with cutaneous lupus. I flipped out.My Dr. suggested Plaquenil . I was so scared and afraid of taking this drug . So I do feel your pain . I turned to the lupus boards and thank goodness for Vee and all the others who are very well educated . They suggested for me to go to the library and get the book by Dr. Daniel Wallace ( The lupus Book for patients and their families ) . He talks about Sjogren's also . Besides the boards this book brought forth alot of answers to my questions and brought me peace.
For the past 1 1/2 years i have been on Plaquenil. I take 200 mg in the morning with breakfast and 200mg at night. I go get a visual field done every 6 months. No problems. It did take at least 6 weeks for the plaquenil to start working , but I have to tell you it is worth it. I have more energy , the malar rash has cleared up tremendously and of course I stay out of the sun . The side effects of Plaquenil are very rare .So don't feel that you are alone. We are all here , some of us are more lucky than others but all in all we have alot in common . Check out the lupus board also you will find some answers that will help you . Keep us posted .