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Sjögren's Syndrome Message Board
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Old 01-30-2012, 12:21 PM   #1
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Chellchell HB User
Newbie with Questions

Hi! I am new to these boards and kind of new to Sjogren's. I say "kind of" because my doctors keep flipping back and forth on whether I have Sjogren's or not. I haven't been able to do the lip biopsy because of money issues (just lost my job) and my Rheumy is wavering between Sero Negative Rheumatoid Arthritis and Sjogren's and for right now has stated I have Inflammatory Arthritis along with Fibromyalgia. I have known of the Fibro for 11 years, no dispute on that. I am on this board today trying to find out more info regarding Sjogren's because I truly believe I have it. I have the dry mouth and dry eyes so much so that I can't wear contacts anymore and my eye doctor believes I have Sjogren's.

My question today is can it cause joint pain along with dry patches of skin? I've always had sensitive dry skin but I have these patches now on my left thumb and some of my right fingers that are very dry and itchy and cracking. My one Primary Doc said it was excema (sp?) but I have noticed that it gets worse when my joint pain flares also.

Also, when my mouth gets very dry I noticed that I have a swelling under my chin. Is this the salivary glands swelling? It's not in the same place as my tonsils but before it. I will ask my Rheumy when I see her next in March. She is very hard to get into and I can't get an appointment before then.

It's great to have these boards to go to so I can see if my symptoms are like other people with Sjogren's. So many questions and I seem to forget them sometimes when I go to the doctor so it helps that I have someplace to go to ask between visits. Thanks for reading all of this!
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Old 01-31-2012, 04:32 AM   #2
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sjogrens HB User
Re: Newbie with Questions

Yes, Sjogren's often causes joint pain and fatigue as well as dry skin. CeraVe moisturizing cream is wonderful for dry skin conditions. Plaquenil is usually prescribed for the joint pain. RA often involves swelling of the joints, particularly the small joints first (e.g., in the fingers) while the joint pain associated with Sjogren's usually does not cause swelling or warmth.

The swelling under the chin is hard to say - usually the parotid glands are the ones to swell, and they're located toward the back of the jaw on the side of the face. The sublingual gland is located under the mouth so perhaps that's what is causing the swelling?

 
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Old 02-07-2012, 07:15 PM   #3
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Krecia102 HB User
Re: Newbie with Questions

Hi. I think I have same problem with dry patches on my fingers. I believe I have solution. Try drinking 1 Tbsp of corn oil every morning (on an empty stomach) for six weeks, then two weeks break and so on for the rest of your life. I drank corn oil for two years, then I switched to flax-seed oil (much better but very expensive - Barleans flax oil). You should try with corn oil to see if it helps you. After one or two months your dry patches should disappear.

I recommend you drink real oil, not any pills or supplements. If you try it let me know how it works for you. Good luck.

 
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Old 02-08-2012, 10:47 AM   #4
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Join Date: Jan 2012
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Chellchell HB User
Thumbs up Re: Newbie with Questions

Thank you all for your suggestions. I will have to try the oil and the cream. I had a cream prescribed by my doctor for a while but it never really cleared it up. I am pretty convinced now that I have only Sjogren's along with the osteo-arthritis in my knee. I don't believe it is Sero Negative RA. I

I just want them to settle on one diagnosis so I can start taking care of it. My Rheumy hasn't prescribed anything for me because she can't decided what I have !

I have a pain specialist that is helping me with the Fibromyalgia and my Migraines but he doesn't want to prescribe Plaquenil unless my doctor is sure that I have RA or Sjogren's. I go see my Rheumy in March so hopefully some of this will be settled then. Thanks again for the comments and suggestions! Hope everyone has a pain free day!
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Last edited by Administrator; 02-08-2012 at 11:05 AM.

 
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Old 06-21-2012, 01:56 PM   #5
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Join Date: Jun 2012
Location: New Mexico
Posts: 14
blb2037 HB User
Re: Newbie with Questions

Quote:
Originally Posted by Chellchell View Post
Hi! I am new to these boards and kind of new to Sjogren's. I say "kind of" because my doctors keep flipping back and forth on whether I have Sjogren's or not. I haven't been able to do the lip biopsy because of money issues (just lost my job) and my Rheumy is wavering between Sero Negative Rheumatoid Arthritis and Sjogren's and for right now has stated I have Inflammatory Arthritis along with Fibromyalgia. I have known of the Fibro for 11 years, no dispute on that. I am on this board today trying to find out more info regarding Sjogren's because I truly believe I have it. I have the dry mouth and dry eyes so much so that I can't wear contacts anymore and my eye doctor believes I have Sjogren's.

My question today is can it cause joint pain along with dry patches of skin? I've always had sensitive dry skin but I have these patches now on my left thumb and some of my right fingers that are very dry and itchy and cracking. My one Primary Doc said it was excema (sp?) but I have noticed that it gets worse when my joint pain flares also.

Also, when my mouth gets very dry I noticed that I have a swelling under my chin. Is this the salivary glands swelling? It's not in the same place as my tonsils but before it. I will ask my Rheumy when I see her next in March. She is very hard to get into and I can't get an appointment before then.

It's great to have these boards to go to so I can see if my symptoms are like other people with Sjogren's. So many questions and I seem to forget them sometimes when I go to the doctor so it helps that I have someplace to go to ask between visits. Thanks for reading all of this!
Hi,
Sjogrens is a weird disease, but to answer your question about joint pain and dry patches......you bet, those are just a couple of symptoms that can occur. It seems like every day there is some new thing to worry about. I have gotten so used to it that anything that happens, I just blame it on the Sjogrens and move one.
I have been on Plaquenil for three months and am happy to report that the pain and fatigue are gone. I get the dryness as well as peeling hands and feet, stupid rash on my rear that itches like crazy, you can feel it, but you can't see it.
I also have Primary Biliary Cirhossis and there is a question as to which came first since they are both auto immune conditions. The best thing you can have is a great Rheumatologist to sort of guide you through and talk to you. The dry mouth is the worst right now, but on the up side, it forces you to drink lots of water which is a good thing.
Take care and good luck to you.

 
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