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Sjögren's Syndrome Message Board
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Old 07-17-2012, 09:02 AM   #21
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blb2037 HB User
Re: Sjogrens and hair loss

Knot,
Thanks for the information re the shampoo, I will give it a try although the Plaquenil seems to have slowed down the hair loss.
I thought I was home free, but the past few days the skin problems have surfaced again. My eyelids split in the crease, so do my lips at the corners, rash on my ankles and discoloration. Does anybody have the discoloration around the ankles and on the tops of the feet and toes? I am very afraid the fatigue will come back but I guess I have to have faith in the drug for now.

 
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Old 12-10-2012, 09:40 AM   #22
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bellacec HB User
Re: Sjogrens and hair loss

Hello: I have been experiencing hair loss for about 2 yrs now at least since I noticed . I was diagnosed with Sjogrens just over a year ago. I am on a continuous mission to find a "cure "or anything that will help with the hair loss. I am getting pretty thin on top and I had very thick hair before this all began. It is distressing and embarrassing. I hate washing my hair and seeing it in my hands. I am washing it only once a week now. I have tried or am still on Viviscal, zinc , biotin, other herbal stuff etc. I am now using a laser comb- 15 minutes a day and just started this about a week ago. They cost $450. to purchase, I am fortunate a friend of mine has loaned me hers. If it works I will buy one! I have spent thousands of dollars already trying to fix this and it is most discouraging. Please , anyone do have suggestions. ? thanks for your help
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Old 01-09-2013, 12:00 PM   #23
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gpooch HB User
Smile Re: Sjogrens and hair loss

Quote:
Originally Posted by bellacec View Post
Hello: I have been experiencing hair loss for about 2 yrs now at least since I noticed . I was diagnosed with Sjogrens just over a year ago. I am on a continuous mission to find a "cure "or anything that will help with the hair loss. I am getting pretty thin on top and I had very thick hair before this all began. It is distressing and embarrassing. I hate washing my hair and seeing it in my hands. I am washing it only once a week now. I have tried or am still on Viviscal, zinc , biotin, other herbal stuff etc. I am now using a laser comb- 15 minutes a day and just started this about a week ago. They cost $450. to purchase, I am fortunate a friend of mine has loaned me hers. If it works I will buy one! I have spent thousands of dollars already trying to fix this and it is most discouraging. Please , anyone do have suggestions. ? thanks for your help
I, too, have Sjogren's and hair loss; and have contemplated purchasing the laser comb. Please update us if it is working for you!

 
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Old 01-16-2013, 07:05 PM   #24
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bellacec HB User
Re: Sjogrens and hair loss

Yes, gpooch I will let you know if the laser comb works when I specifically notice a difference. take care and hang in there.
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Old 01-17-2013, 01:24 AM   #25
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gpooch HB User
Re: Sjogrens and hair loss

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Originally Posted by bellacec View Post
Yes, gpooch I will let you know if the laser comb works when I specifically notice a difference. take care and hang in there.
Thank you for responding! I know it takes a few months before results can be seen. Yes, I saw in a previous posting that you are female

Good luck with results; I'm hoping you'll see hair growth!

 
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Old 01-17-2013, 04:30 AM   #26
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waqas83 HB User
Re: Sjogrens and hair loss

Hmmm, I'd also try it

 
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