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Old 06-21-2012, 09:03 PM   #1
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Question Does Sjogren's lead to other autoimmune diseases?

It is looking more and more like I do have Sjogren's, although I am still awaiting a lip biopsy. While in the doctor's office today, I talked with another Sjogren's patient who has also developed lupus and scleroderma. She indicated that Sjogren's often is the beginning to other autoimmune diseases. Just wondering if any of you on this message board have had experience with this. I had been consoling myself with the idea that having Sjogren's is not as bad as other diseases (bad enough however!) and now I wonder if I may have other diseases to look forward to in the future. Also, today my doctor said that she wished I had done something about my problems before they became so severe (dry eyes, mouth, nose, etc.). Why would doing something sooner have helped me, I wonder...

 
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Old 06-22-2012, 10:41 AM   #2
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Re: Does Sjogren's lead to other autoimmune diseases?

If you have one autoimmune disease, it puts you in the percentage of people who may develop another. That being said, at least in relation to systemic scleroderma, especially the limited form, something like 2/3rd's of us or more have sicca symptoms (or sjogren's) and is expected to be seen in the course of the disease. It is rare to have an autoimmune disease and even more rare to have more than one, if that helps put it in perspective. Some of us are just lucky that way and hopefully you won't be. My best advise is to not drive yourself crazy worrying about it. Take care of yourself with what you have now. If in the future you have more symptoms, or different than normal symptoms, talk to your Dr.
As to her comments, she might have meant that she would have been able to alleviate your symptoms sooner. In the world of AI diseases, sooner treatment MAY prevent further damage or progression of your disease, or not, if that's what you are thinking. LOL. Isn't that statement helpful! Each patient is different than the next and your particular course is individual to you. I can say that my sicca developed long after my initial diagnosis of limited SSc. I hope this helps.

 
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Old 06-22-2012, 04:52 PM   #3
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Re: Does Sjogren's lead to other autoimmune diseases?

Your answer was very helpful and encouraging. I can't believe how many people viewed my question... it is nice to know that so many people are interested in this board. I have been doing lots of reading on Sjogrens and I'm sure I will have lots of questions for my docs, but sometimes hearing from other people with the same diagnosis is the most helpful. I am curious to know if any of the folks on this board are dealing with any of the following symptoms and if they believe that they are related to Sjogrens. My docs tell me that it is often hard to tell the difference between normal aging and Sjogrens.
1) loss of hearing and ringing in ears
2) burning tongue syndrome (like hot sauce)
3) puffy eyes
4) deep grooves in fingernails that appeared rather suddenly
5) hives of undetermined origin (come and go)
6) very cold hands, but not bluish
7) frequent hot flashes that have reappeared since menopause several years ago

I know that every Sjogrens patient is different, but I can't but wonder if some of these go along with the diagnosis. Thanks all.

 
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Old 06-23-2012, 05:42 PM   #4
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Re: Does Sjogren's lead to other autoimmune diseases?

I have recently been diagnosed with Sjogren's and Hashimoto's. I am new to all this autoimmune stuff.

 
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