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Sjögren's Syndrome Message Board
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Old 07-18-2012, 08:08 PM   #1
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Join Date: Sep 2004
Location: Northeast Texas
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texasmary HB User
Burning tongue syndrome & Sjogrens?

The "burning tongue" symptom was mentioned on another thread (on this Sjogrens Board) today, and I want to follow up on it with a new thread. I'm wondering if very many others deal with this problem. I woke up one morning about 8 months ago with the tip of my tongue red and stinging. I had drunk some very hot coffee the night before and this followed a couple of very stressful days. I had never experienced something like this before and I thought it would go away... but it didn't for a long time. Went to my primary care doc who gave me a round of Valtrex, just in case it was a herpes virus. Went to my oral surgeon who was the first to mention Sjogrens. It finally settled down somewhat after about 2 months, and it was after my first visit with a rheumatologist who prescribed Tramadol for my other aches and pains. It has flared up two or three times since then, and I think it coincides with stressful events. The Tramadol calms it down after a few minutes. I have read everything I can find on Burning Tongue Syndrome, and I don't think any of them mentioned Sjogrens as a possible reason. I do have the dry mouth thing and also sore places inside my cheek where I evidently bite down while eating and also without knowing it while sleeping. The salivary doc says that I probably suck on my cheeks to produce moisture. Just wondering if any of this rings a bell with any of the rest of you. Thanks.

 
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