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Old 11-05-2012, 01:14 PM   #1
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What kinds of drs do lip biopsy? Also lots of venting, tired of being sick!

Before you ask, yes I want the lip biopsy. I've been diagnosed with CFS & Fibro. Having probs for 11 yrs was bad enough but another 3 yrs that have been miserable sucks! My health is only getting worst. I'm always sick. Never feel well, always have headaches which can be so painful, my body always hurts & unbearable until my meds kick in but all they do is take the edge off. Fatigue is awful & I can't even push through it anymore. I'm pretty much laid up on the couch all the time. Making myself do stuff only makes me grumpy with my family because I'm miserable. Then to top it off, I'm sick allot. I'm usually vomiting for 2 days out of each week, get so dehydrated & nothing stays down.
My mouth is always dry, water doesn't quinch it yet I'm so nauseous all the time water isn't appetizing & just makes me wanna hurl. My eyes are always so dry, sometimes over water especially if I'm outside. They burn & so dry I feel like my eye lids are scratching my eyes. I am using eye drops but they only moisten them for a min or two. I've always had dry eyes & mouth issues. It's just more annoying now. Then having issues for 14 yrs. I'm so sick anymore that I'm afraid one day I'll just die in my sleep. I have 4 kids that need me. My drs don't seem to take me serious enough. Course I explain stuff too them & never been a drama queen. Maybe I need to be? My mom & husband are on my butt making me get into a dr again. I keep telling them that the one I see has done all she can think of. My drs rely on tests & tests only... That's why it took 12 yrs so get any answers at all.
I also have a disorder called derealization which makes me feel drugged all the time! It sux!
So, I'm probly rambling because I'm frustraited. I seen my dr a month ago & supposed to see an oral surgeon for a lip biopsy. My appt was schedualed 3 weeks ago. So my appt was in 2 days. They called alittle bit ago to tell me that they don't do that & I need to see someone else!
I want the biopsy to see if I have Sjogrens & see if that's why I'm so sick. I really need help. So fed up with drs! I'm trying to get into another one to have more theral tests for Lyme...
So do I have to see an oral surgeon or is there another kind of dr that can do it?
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Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

Last edited by thefarm; 11-05-2012 at 01:16 PM.

 
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Old 11-08-2012, 12:30 PM   #2
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Re: What kinds of drs do lip biopsy? Also lots of venting, tired of being sick!

General information

Where It's Done: Doctor's office or hospital
Who Does It: Surgeon.
How Long It Takes: 1 hour.
Discomfort/Pain: Soreness after anesthesia.
Results Ready When: 7 days.
Special Equipment: Surgical instruments and local anesthesia
.
Please find a new doctor. I don't know how far you live from San Francisco (I assume you live in Oregon). Perhaps, you are supposed to see specialist from UCSF School of Medicine. Maybe there are professors or specialists who deal with patients like you on daily bases. You may call them or look on their web site. Ask your doctor to give you referral. I don't think biopsy will solve your problems. There is no cure for sjogrens syndrome or related disease. They may help you with symptoms.
Good luck.

 
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Old 11-10-2012, 10:21 AM   #3
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Re: What kinds of drs do lip biopsy? Also lots of venting, tired of being sick!

I understand how frustrating doctors can be. Especially when it comes to certain illnesses like fibro and cfs etc if your dr isnt helping you maybe try to get a referral to another doctor? for some doctors you need to be on them or else you'll never get anything checked out. Some doctors just label you as something and dont really test you for anything else even if you have those sypmtoms. It seems odd that the specialist you were sent to doesnt do it.. I know what you mean about doctors and tests only.. I have IBS and for.. 4 years they said it was all in my head. I really hope you can get it checked out. I know though for sjogens sometimes the bloodwork isnt always correct thats why a lip biopsy is the sure fire way to check it. But make sure you are getting enough liquids, being dehydrated can make you feel alot crappier and naseauted. Do you have alot of stomach problems? CFS and Fibro can also go with IBS. If graval doesnt help you with your stomach maybe ask your doctor for a stronger prescription for it? Water doesnt go well with my stomach at all so I drink juice.. which doesnt react happily to my GERD lol but its important to have alot liquids especially you are throwing up alot. I really hope you get your answers. But for sure be more strict on your doctor and make your doctor do the tests.

 
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Old 11-10-2012, 11:45 AM   #4
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Re: What kinds of drs do lip biopsy? Also lots of venting, tired of being sick!

Thank You
Yeah I've figured I have ibs. Usually constipation but stress has the opposite effect... I had a GI ultrasound yesterday. Said he didn't see any ulcers. Makes me wonder if thy was all they were looking for. Was hoping for it to be more theral...
I was prescribed a anti nausea med a long time ago but didn't do anything for me. I suck on mints when nauseous but doesn't keep me from vomiting...
I think I'll call around to oral surgeons on Monday to see who will do the biopsy & get a referal too them...
Lately water is so nauseating... So not drinking as much as I normally would. Making sure to drink Powerade zero, love that! Juice has too many calories which I don't need so don't drink it very often...
I have a Rhum I've been seeing for two years but he doesn't listen & blaims fibro for everything. I seen another one which I really like & listens, but she's 1 1/2 hrs away. Then I have a primary dr which used to work in the fibro clinic at OSHU She's a really good listener & I know she's really trying to help. She agrees something else is going on but can't figure out what. She refers me out for the lip biopsy, but the oral surgeon waited 3 weeks before telling me they couldn't do it. Wish I would have chewed them out...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 11-24-2012, 04:08 PM   #5
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Re: What kinds of drs do lip biopsy? Also lots of venting, tired of being sick!

I have Kaiser and it was an ENT surgeon who did my biopsy.

 
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