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Sjögren's Syndrome Message Board
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Old 11-06-2012, 04:26 PM   #1
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Jocy511 HB User
Mild dry mouth, negative blood, help!

So I'm trying to get a diagnosis for whatever is going on with me. I've had tons of bloodwork done for a variety of things, all negative (including all autoimmune). I had an MRI to test for MS that came back normal. I suffer from neuropathy LIKE symptoms, nerve conduction came back normal, but I have burning, tingling, pin picks, deep muscle aches, and joint pains all through my body. I also have GI problems of unknown reasons. I sometimes suffer concentration and memory issues (only on occasion). I have dry eyes, can't wear contacts for the life of me. Am on restatis for that. I have very dry skin, can't shave without completely lathering in baby oil and still end up with cuts and razor burn. I'm constantly putting lotion on my feet and hands and often wake up from them feeling so dry and being really thirsty. My sinuses are very dry and always stuffed. I have difficulty clearing them out because everything up there is dry and crusted. When I do get anything out it's always dark green and red (dried blood). I have what I feel is maybe mild dry mouth. I am constantly applying Chapstick or my lips stick together or to my teeth. I feel like my teeth are very grimy, like I need to brush them often because they feel filmy. I do not have a very dry mouth, dentist says he can see saliva production in my glands, but do have troubles articulating my words when talking for long periods or trying to read a book to my daughter. What happens, without drinking liquid, is that I feel like the saliva I do have I have trouble swallowing, like I really need to form it together to be able to swallow. I often wake up with a dry throat that feels swollen. My question is could this still be sjogren's? The oral surgeon doesn't want to do a biopsy because he says I'm producing saliva, he can see it. Could the lip biopsy still confirm sjogren's if I don't have severe dry mouth? Anyone else experience this and is there anything else this could be?

Last edited by Jocy511; 11-06-2012 at 04:49 PM.

 
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Old 11-06-2012, 09:52 PM   #2
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krivera HB User
Smile Re: Mild dry mouth, negative blood, help!

i know exactly what you are going thru. for the last 1 1/2 yrs been dealing with multiple symptoms many of what u mentioned and many more. i was told by specialist everything was fine and doctor and was fibro or all in my head lol. hated that answer finally found a great family doctor bout 6 months ago and he AGREED with me he said something was not right and he believe i have something else going on a possible autoimmune disease. he sat down explaining to me sometimes symptoms occur before anything is noticeable in blood, urine or x-rays (ect) looking back i had symptoms before 1 1/2 yrs just didnt realize cause i blew it off ( like problems swallowing, speech problems) i just worried when i was in pain all the time then started getting in to see the doctor. so for about the last 3 yrs technically been having these multiple symptoms and not a single test result that was abnormal besides a slightly elevated cpk level. not high enough to worry about. Now last week after switching to my new specialist after other refused to run labs again, i have so many abnormal test results and my doctor was right it may take yrs for it to show in labs. i just have to go for more tests now until he can tell me what it is for sure but i am making progress and he has a list and has to rule it down to one thing. just hang in there it is quite a struggle but remember get a second opinion if you are not happy with your results.

 
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