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Old 12-15-2012, 08:46 AM   #1
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Hello and Lip biopsy Post Treatment

Greetings To All and as always - sorry to meet you here.

I was seen at Tufts Dental/Oral Medicine program back in July. Simply based on the fact that I could not produce one single drop of saliva for the tests even when doc practically strangled me, my history, the obvious extreme flare I was in (the entire gammit plus cold sores hopping in and travelling up into my sinuses!), and my extensive medical file (parts I brought), made the Doc say "Sjogren's, I have no doubt whatsoever".

The first "burning mouth flare I had was 3 + yrs ago. First, episode of other symptoms go back, way back.

Anyway, at that 1st Tufts visit I was treated and have been treated as if possitive since then. First we dealt with the extreme fungal infection that was out and all around my lips, and nose and chin. Then I began Evoxac, 30 mg/4 x day - Rx toothpaste, Vit E, Fish oil, humidifyer and so on. Saw eye doc - use RFX eye drops now.

Bloodwork equivical - ANA very positive and homogoneous typed, but the other slam dunk Sjogrens in range.

Miscommunications - didn't have lip biopsy until 3 weeks ago and done local to me (2 hrs from Tufts and small towns). Oral surgeon was honest that he'd never done one of these biopsies and he called around and NO one in my area had ever, either.

So, after being talked thru by Tufts he forged ahead and I ended up with 5 stitches. I will not mention pain, swelling, infection, and finally healing.

Results are rosy except one agggragate was found with >>50 lymphocytes per 4 mm sq. Scattered plasma cells throught all samples.

Sorry for such long post MY QUESTION - does the fact that I've been on Evoxac for almost 5 months alter my biopsy results?
I would really appreciate any replies. I see local Rheumy on Monday but I've no idea of the level of experience doc will have (I called already to point blank ask that ?) so if my unusual lengthy process affects my biopsy, I don't want rheumy to say - biopsy looks good, see ya!.

Thank you for reading and nice to meet you. Suzy-Q

 
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Old 01-11-2013, 12:37 PM   #2
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Re: Hello and Lip biopsy Post Treatment

I don't know the answer to your question about Evoxac, but, based on what I know about how Evoxac works, I THINK that it only operates to stimulate the salivary glands and would not impact the presence of leukocytes.

I am curious as to why you would have to or want to undergo a lip biopsy, given your symptoms and the lab results. What was the lap biopsy going to show that you didn't already know? My rheumy is opposed to biopsies unless there is a need for distinguish sjogrens from lupus or another disorder.

Also, could you please tell me what RFX eye drops are? Is that another name for Restasis?

 
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Old 01-11-2013, 12:41 PM   #3
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Re: Hello and Lip biopsy Post Treatment

I don't know the answer to your question about Evoxac, but, based on what I know about how Evoxac works, I THINK that it only operates to stimulate the salivary glands and would not impact the presence of leukocytes.

I am curious as to why you would have to or want to undergo a lip biopsy, given your symptoms and the lab results. What was the lap biopsy going to show that you didn't already know? My rheumy is opposed to biopsies unless there is a need for distinguish sjogrens from lupus or another disorder.

Also, could you please tell me what RFX eye drops are? Is that another name for Restasis?

 
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Old 01-14-2013, 12:55 PM   #4
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Re: Hello and Lip biopsy Post Treatment

No it shouldn't. The pathological changes caused by sjogren's would be unaffected by the drugs. I too am curious why they bothered to do a biopsy, unless you don't have inflammation or are missing some important diagnostic criteria.

 
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