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Old 03-03-2013, 11:29 AM   #1
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arythmia's with primary sjogrens syndrome

hi all! does anyone on the board with primary sjogrens syndrome suffer with pac's(premature atrial contractions) frequently, and what medication have they found to have the least side effects. my cardiologist has prescribed atenolol, but says i don't have to take it....it just depends on if i can tolerate the frequency of them. he says that my pac's are not dangerous, but they scare the bjesus out of me. i take low dose diazepam just to keep myself calm while i tolerate the irregularities. i have started to suffer a host of different symptoms including, shaking, having pain and problems with defication, numbness in my right foot, swelling joints, loss of concentration, not being able to retain memory and the list goes on? i don't really want to go on these and he has advised me that if i do take the atenolol, that he can ween me off of them. i've heard that once you start them, going off of them is worse than before you started them. anyone with any advice about this? i see my internist at the end of the week, but i'm curious to know if anyone is having the same symptoms as myself. almost forgot...my blood pressure is normally excellent, but i have many fluctuations including very low blood pressure and i'm concerned that if i take a beta blocker and my bp drops, then i will faint.

 
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Old 03-03-2013, 01:01 PM   #2
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Re: arythmia's with primary sjogrens syndrome

Hi. I have chest pains at times, but since nothing goes numb and nobody else cares, I just let it pass. I've had neropathy for a long time, but my pdoc gave me Celexia for an antidep. it helped. Cymbalta is the one that is supposed to help, but not me. I got high blood pressure now, but I found out it runs in my mom's family.
If I were you, I'd get a second opinion if possible. What is too bad about SS is that hardly nobody knows about it. And if you say you have it and have some other symptom, the doc goes crazy. There are so many things that can go wrong when you have Sjogren's. My heart goes out to you. Love, Owl.

 
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Old 03-04-2013, 02:10 PM   #3
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Re: arythmia's with primary sjogrens syndrome

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Originally Posted by owllover99 View Post
Hi. I have chest pains at times, but since nothing goes numb and nobody else cares, I just let it pass. I've had neropathy for a long time, but my pdoc gave me Celexia for an antidep. it helped. Cymbalta is the one that is supposed to help, but not me. I got high blood pressure now, but I found out it runs in my mom's family.
If I were you, I'd get a second opinion if possible. What is too bad about SS is that hardly nobody knows about it. And if you say you have it and have some other symptom, the doc goes crazy. There are so many things that can go wrong when you have Sjogren's. My heart goes out to you. Love, Owl.
i get the chest pains too....especially when i'm extremely stressed. those don't bother me since i have pain in all different areas of my body. i just figure that it's attacking bone or tissue or whatever, but i don't like the tachacardia and irregularities. autoimmune disorders are becoming better known in canada now, although when i've had to go to the er and tell them, they don't know what i'm talking about. that's why we need the specialists. antidepressants and i don't do well and with the dryness they cause it's even worse. i'm told by my internist that they really don't treat symptoms until they become severe, so they expect us to hold down a full time job when all this crap is happening to us. oh well...such is life. we all have to be our own advocates. when all of this first started they blamed it on my menopause until i convinced my doc...after doing all kinds of my own research to do an ana test and she did. so if it wasn't for my determination, i may not have found out until many years later. thank god for computers...lol. i hope you're doing well, owl.

 
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Old 03-04-2013, 06:55 PM   #4
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Cool Re: arythmia's with primary sjogrens syndrome

Thanks. I just got disability. I had to retire from work 2 years early because I couldn't work. I got 1/2 of my pension. I have a lot more wrong with me than SS. But I don't try to let it get me down. I go to Pain Mgt Wed.I'm looking forward to that.
I hope you are doing as well as you can. I have always (since 4 years old) that love is themost important thing on Earth. Love, Owl.

 
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Old 03-05-2013, 02:23 AM   #5
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Re: arythmia's with primary sjogrens syndrome

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Thanks. I just got disability. I had to retire from work 2 years early because I couldn't work. I got 1/2 of my pension. I have a lot more wrong with me than SS. But I don't try to let it get me down. I go to Pain Mgt Wed.I'm looking forward to that.
I hope you are doing as well as you can. I have always (since 4 years old) that love is themost important thing on Earth. Love, Owl.
i'm sorry to hear that you have additional struggles owl, but thankful that now you can concentrate on you. good that you don't let it get you down. i think we all struggle with our lives anymore, regardless if we're sick or not. something that might also help you is cognitive restructuring. helps you to change your thoughts about how you see and feel things. swimming is also great if you can do it, even if you can just walk in a pool. helps with pain and keeps you mobile. one of the neighbours in my old building has severe ms, but he was in that pool everyday with his water ring. never give up. my favourite saying...what doesn't kill you, just makes you stronger. you'll do it...i have faith in you. keep in touch and thank you. i agree....love is what keeps us strong. don't ever give that up.

 
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Old 03-05-2013, 11:52 PM   #6
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Re: arythmia's with primary sjogrens syndrome

Hi, I was reading your first post, and it made me think we have some of the same symptoms. Some of them (like IBS) you have to live with, and I get better info on the web than I do most doctors. Is there a college in your city with a dental school? I found out a lot of info from a doctor there. And there's The Sjogren's Book on Amazon. It's about $28 with shipping, but it's worth it. It would have your symptoms in there. Take it to your doctor. It might hurt his pride, but help his knowledge and you, too. Love, Owl.

 
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Old 03-17-2013, 10:16 AM   #7
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Re: arythmia's with primary sjogrens syndrome

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Originally Posted by owllover99 View Post
Hi, I was reading your first post, and it made me think we have some of the same symptoms. Some of them (like IBS) you have to live with, and I get better info on the web than I do most doctors. Is there a college in your city with a dental school? I found out a lot of info from a doctor there. And there's The Sjogren's Book on Amazon. It's about $28 with shipping, but it's worth it. It would have your symptoms in there. Take it to your doctor. It might hurt his pride, but help his knowledge and you, too. Love, Owl.
i usually go to the sjogrens website. lots of good information on there and in the u.k. they seem to do more research on sjogrens than anyone. it's funny though...years ago, i had a lower gi done and they told me i didn't have ibs. they really didn't know why i had so much mucous in my stools cause they couldn't find anything wrong. but many years later i started getting a bit of blood streaks and i'm not putting myself through a colonoscopy because it's too hard for me to go without food and water, but i'm sure i have ibs now, due to the advancing sjogrens and the symptoms and my doc seems to agree. with ibs people usually get loose stools and i don't. mostly constipation, but i've upped my intake of bran and it's getting better. s'funny...docs find out about our conditions on the internet too...lol. big hugs owl. hope you're doing good!

 
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