For several years I have suffered from Scleroderma at present confined to my face. This makes my face and mouth stiff, very cold and painful, I am currently taking 1800mg of Gabapentin per day which helps with limited success to control the pain. In addition to Scleroderma I have Raynards syndrome in my tongue for which the medication is an infusion of Ilipost administered over a three day period twice a year. To add to this situation I have Trigeminal neuralgia in the right side of my face, for which I have had a balloon intervention in order to intercept the Trigeminal nerve,this proceedure has done little to relieve the neuralgic pain.
Eating continues to be a serious problem because of the stiffness and the pain and is further exacerbated by the hardness of a full set of artificial dentures. Within the next two months I am having new dentures made with a soft lining in the hope that they will help the situation.
Has anyone out there had the conditions I describe?
Are there any cures?
If so please share them with me.