[QUOTE=NinjaMouse;3833868]I've had this problem for years and no-one seems to know what it is, so was hoping to get some pointers online.
Every so often, I get small nodules around my joints- depending on the severity of the attack, they start on my forefingers and/or thumbs before sometimes spreading to the joints on other fingers. I will sometimes also get them on my toes, starting from my big toe and occasionally spreading to my other toes. I get them on my fingers most often, and toes only about 1 in 5 times.
The nodules are around 0.5mm to 1mm big and will remain for anything from half a day to a week and a half. Sometimes I'll only get one or two nodules per finger, sometims they will cluster into as many as 15 per finger.
There is no fluid in them - the best way to describe them is they are like an insect bite in that they are raised and do not depress when you run a finger over them. The nodules are red, raised and sore to the touch. They are also slightly itchy if they get knocked. They are a pain because they are on the joints so any movement of the fingers aggrevates them. At the moment, I have a couple on the underside joint of the big toe, making walking painful.
I have seen two GPs, neither of whom have a clue. My second GP referred me to a dermotologist at the hospital, who failed to give me an appointment. At the same time as ordering this, I had bloods taken and it shows I have a raised level of anti-nucleods (??) in my blood so I was referred off to a rhemotologist instead.
The rhemotologist has no clue (although it's not entirely his fault - I never have the damn things on my fingers whenever I see him, so he's only seen photos). First, he tried strong antihistamines but these didn't help. I've tested negative for Raynauds (sp?) although I am always freezing cold and am as cold, if not colder, than most Raynauds patients (according to the guy who did the tests). My rhemotologist then put me on high blood pressure pills to see if they would a) warm me up and b) stop the nodules - they didn't work except to make me feel permanently sick and dizzy, so these have now been stopped. My rheumotologist has even asked me if I've been online to see if I can work out what's wrong! (I've searched and can't find anything)
I've kept a diary and there are no patterns - sometimes I'll have an attack every week, or I can go for months without getting any. I can see no foods or external influences that can have caused this.
Has anyone got any ideas or pointers as to what I can look for to help me work out what I've got?? (and apologies for the extraordinarily long first post!!)[/QUOTE]