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Old 12-04-2007, 07:17 AM   #1
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Please help regarding my CPAP Machine.

Hey all, I have sleep apnea diagnosed at a sleep center. I bought a CPAP with a full face mask and a humidifier. I have sort of adjusted to the mask, but gosh I hate it with a passion. I have the ultra mirage II face mask. Ever since I have used my mask I have developed a nagging cough, major mucous in my nose to the point I blow my nose for an hour straight when I first wake up and I am hacking up flemn, my voice has changed where its a bit manly and I don't feel any better like my Dr said I would.. its been over a month of using this thing. Okay, so I have tried all settings on my humidifier thinking it wasn't enough, or was to much, so I made constant adjustments on the thing, only to find out I am MUCH WORSE with the humidifier on. when I put it on, my cough last all day and my nose pours all day long and I feel worse and I get a headache from it, my head will just pound when I use my humidiefier. I am very good at cleaning my equipment and I use distilled water.. so for me the humidifier makes me worse. I am thinking of calling my sleep Dr to see what he thinks but I thought I would post here first, my face is so sore all the time, its red and bruised but if I don't tighten down my mask it leaks like a siv so I have to wear it tight. The mask I have covers my nose and mouth, and it is truly a monster!!! LOL. I TRIED the nasal pillows and can't do those as I am a mouth breather they were much more comfy than this big ol thing. if I so much move my lip, wink my eye, move my cheek or move my face, than air shoots in my mask so I have to lay like I am a manican perefectly still and not move a muscle or my mask leaks and wakes me up all night long. I just hate it so much, but I know I have no choice but to where this hideous contraption... I am not snoring anymore so that is good, but when I am on my back hubby said I do snore so I am not allowed on my back, I wear a tennis ball in my shirt to keep me from sleeping on my back. I am sure a lovely site at night aren't I ? LOL!

thanks for letting me vent. SS

 
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Old 12-04-2007, 07:52 AM   #2
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Re: Please help regarding my CPAP Machine.

Vent away it helps.

Okay from my glorious worship worthy ENT. I have had severe sinus surgery and a tonsilectomy and adenoidectomy since becoming one with my CPAP.

The mucus situation is quite common.. go figure. The nasal membranes dry out and get irritated by the increased are flow resulting in the defensive production of snot.. which drains and is pushed all night long down the back of your throat and into the tummy. Some severe cases wake nauseous after a night of this.. My ENT ask me how I was doing on my CPAP and then laughed and told me his cure all.. since October of last year it has worked wonders for me.

Pretz PH balances nasal Saline. This is OTC, but sometimes you have to order it.. it is not often locally stocked. Ponaris Nasal Emolleant (Oil). This is also OTC, but sometimes you have to order it.. it is not often locally stocked. How do you use these things? Well before bed and after a shower, if you are a night bather, use Pretz two squirts each nostril. Then wait a bit for the dripping to subside. Apply a quarter to 1/2 a dropper of the Ponaris in each nostril.. suck it up. In the morning if needed rinse with Pretz first and then apply Ponaris. Oftimes a Pretz rinse is all I need to calm things down. The mucus effect is worse in cold weather months.

As to masks.. ::sigh:: mouth breather here.. Oh so tried to use the gel nasal mask with every medieval chin restraining device out there.. no luck.

I have three full masks I have tried.. because I punted the nasal pillow right off.. talk about nasal irritation.
Respironics Comfort Full Face II - way to wide.. blubber all night long and racoon mask all day long.. not a good fit for me at all.
SleepNet Mojo Gel Cushion Full Face. - You will either love it or hate it.. you can mold the mask to your face and completely shape it. It works well for petite face structures.. i.e. women. This is one of two I keep in circulation. My one peeve is that there is a ridge that will rub on you on the gel pad if you do not get it right.
ResMed Ultra Mirage Full Face CPAP Mask... - This is my second mask in rotation.. I have to keep it pulled pretty tight or it leaks.. but the shape of the mask is better for me. Peeve.. the shallow cushion is a bugger to dry and stretches out quickly.

For rubbing irritation the sleep specialist recommended using lotion on the face before bed.. vit E or a facial lotion.. the Dove deep moisturizing works well for me. Also to save money... the seals can be replaced before the rest of a mask needs to be replaced in the case of some masks. The Mojo and Comfort fits are molded and you can not replace the seal alone.. the ResMed.. you can order seals replacements cheaply.

Hope this might help you some. Been working on the best fit and comfort for myself, my son and my husband for 2 years - 8 months.

MG
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Old 12-05-2007, 07:42 AM   #3
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Re: Please help regarding my CPAP Machine.

thanks MG. You are the total expert I Am glad your here to help me and others. I AM GOING to find that nasal spray. Do you use a humidiefier? I find I am worse when I use it. do you think I should just not use it or keep trying? last night I DID not where my CPAP and oh it was sooo wonderful..... I slept so much better, and guess what? today I have no cough and no runny nose. so it is my CPAP causing me all these issues. my voice also sounds normal and not like a froggie or a man. it effects my voice, ever heard of that? I don't no what I should I do with this humidiefier. are they really that helpful? If I turn it up to high, I get water in my mask ast night that drips onto my face and wakes me up all night long.. sometimes I want to huck this thing in the garbage but I know I need the thing. Its a nightmare. I do have the resmed ultra mirage, its pretty good but it does take a long time to dry. I clean it weekly, is that about right? maybe tonight I will try the lowest setting of the humidiefier and see how I do again... this is so fun. NOT.

Hugs nad happy holidays to you.

SS

 
Old 12-05-2007, 06:06 PM   #4
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Re: Please help regarding my CPAP Machine.

Everyone is different about their treatment. My son uses a medium humidifier.. I go full blast since my sinus surgery last year... my husband uses low. DO what is comfortable for you.. but you need to give yourself at least a week for your body to accept it before changing and testing something else. Good luck and let me know how it goes.

Sincerely,
MG
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If we learn by our mistakes, I am working on one hell of an education.

 
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