It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sleep Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 03-22-2008, 05:22 PM   #1
Newbie
(female)
 
Join Date: Mar 2008
Location: Canada
Posts: 5
suziecue40 HB User
Rhythmic Movement Disorder

Hello,

Does anyone suffer from RMD and you are one of the rare adults that did not fortunately grow out of it? What treatments have you sought?

 
Sponsors Lightbulb
   
Old 04-10-2008, 12:09 PM   #2
Newbie
(female)
 
Join Date: Apr 2008
Location: Los Gatos, CA USA
Posts: 1
tmk67 HB User
Re: Rhythmic Movement Disorder

My daughter suffers from RMD, she is almost 5 and shows no sign of stopping. It is severe. We have seen Psychiatrists and Neurologists and they had her get a sleep study. They seem to think it is linked to her severe sleep apnea. They say that the apnea wakes her and sends her into her rocking motions. So, we are in the midst of treating her sleep apnea. Maybe this could help you. And, if anyone has any experience with the results of treating apnea and if it helped RMD, I'd love to hear if we are pursuing the right help.

Last edited by hb-mod; 04-09-2010 at 12:40 AM. Reason: Removed Quote of immediately preceding post. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

 
Sponsors Lightbulb
   
Old 04-10-2008, 12:17 PM   #3
Senior Member
(female)
 
Join Date: Jan 2008
Location: OH
Posts: 116
Angiejr2 HB User
Re: Rhythmic Movement Disorder

My teen daughter of 16 has rmd---I never thought it was a problem when she was younger, I thought she would grow out of it. But no--infact it is to the point of ocd rmd. She constantly curls papers, any kind--her school books are a curled mess, we have paid for many damaged books. I did not know you could get treated for this? Any info would be awesome.

~Angie
__________________
~Angie

 
Old 05-15-2008, 10:01 PM   #4
Newbie
(female)
 
Join Date: May 2008
Location: tulsa, ok, usa
Posts: 2
budbud74137 HB User
Re: Rhythmic Movement Disorder

I am about to be 58 years old and only due to research on the internet have self-diagnosed myself with rmd. I have "rocked" myself to sleep since early childhood. I was astounded to read that your daughter also manifests an additional behavior I have had all these years of "rolling" paper - all kinds of bits of paper, preferrably long, narrow strips. Stress is definitely a factor, but not all. In addition, I can hardly bare to sit for long in any chair that does not rock. My sleep is very much effected by my "body rocking". I have described these behaviors and problems with sleep to my DO with no help.
If you find any help, please let me know. Keep searching as I doubt that your daughter will grow out it. I wish the best for you and family.

Last edited by hb-mod; 04-09-2010 at 12:41 AM. Reason: Removed Quote of immediately preceding post. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

 
Old 08-10-2008, 10:27 AM   #5
Newbie
(male)
 
Join Date: Aug 2008
Location: Toronto, Ontario, Canada
Posts: 3
jpanasuik HB User
Re: Rhythmic Movement Disorder

I am 34 years old and I was so shocked to find out that I have RMD and I thought that I was only one person in the world because I haven't never seen body rocking among my friends/family. They all know that I sleep "weird" way. I have been rocking left-right on ongoing basis until I fall asleep or when I am about to wake, I would rock until I am awake.

I have been doing this for all of my life. This did cause some problem with my relationship when I moved to couch from our bed because I just want to rock. As of the result, things didn't work out between us because we both thought that there's something wrong with that between us when I moved to couch. But now to my horrible discovery - it's just a disorder.

I did often wonder if I would ever stop and I DO WANT to stop but I just couldn't. Now I know that this is a disorder - maybe that will help me to work to get it outgrown. I am going to see a sleeping specialist later this month.

Sorry I wasn't much of help but, just that I am letting everybody know that I am one of the rare adults that have RMD - specifically body rocking. Not head rocking or banging at all.

 
Old 10-01-2008, 09:55 AM   #6
Newbie
(male)
 
Join Date: Oct 2008
Location: Dallas, Texas USA
Posts: 1
majestic68 HB User
Re: Rhythmic Movement Disorder

OMG!! I just turned 40 and I STILL rock myself side to side to fall asleep. It usually takes 20-25 minutes before i find myself sound asleep. Funny thing is...when someone is in the bed, I do not rock. I live alone and have rocked my ENTIRE life. It does not bother me as it is only a minor disorder in my opinion. I do believe, however, that it stems from not having enough physical contact in infancy. That was the case for me and it makes sense. I am amazed at how many people this affects. This whole time I thought I was the only one in this "boat". Thanks everyone for sharing your stories.

 
Old 07-03-2009, 02:01 PM   #7
Newbie
(female)
 
Join Date: Jul 2009
Location: canada
Posts: 5
Sadiesmith HB User
Re: Rhythmic Movement Disorder

This is the first time I've used a message board. Today I finally did a search on bed rocking. I'm a 58 year old woman who has had this problem since I was a teen. (maybe before that, but I don't remember). My rocking usually lasts until I go to sleep and it doesn't matter if I am alone or with my husband. Is there any treatment for this? I was surprised that there were others like myself.

Sadie

Last edited by hb-mod; 04-09-2010 at 12:41 AM. Reason: Removed Quote of immediately preceding post. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

 
Old 10-23-2009, 12:36 AM   #8
Newbie
(female)
 
Join Date: Oct 2009
Location: Atlanta, GA
Posts: 4
redstuff HB User
Re: Rhythmic Movement Disorder

I am a 56 year old female who has rocked herself to sleep nearly all my life. I read once that we each have an internal rhythm that brings comfort and it could come from something like the rhythm of a rocking chair when a mother rocked you as a baby, or even just the rhythm of a wall clock. This could explain my rmd as my parents had antique wall clocks running all the time. I had a very loving childhood with loads of attention, so for me it rules out the theory that it can be caused by not enough physical contact as a child. I've been blessed to have always felt loved. As a baby I banged my head on my crib. That led to rocking my head into my pillow and later rolling side to side. My dad built me a rocking chair at age 3 and I rocked in it continuously. Then I got the Wonder Rocking Horse and could rock on it non-stop hour after hour. I had a large swingset as a kid and when I outgrew the horse, I could swing for hours. I rocked myself to sleep every night until I was married at age 21. I forced myself to not rock after I was married, but he was in the Navy and the moment he was out to sea, the rocking began again. I stopped the rocking for many years after he was out of the service until a few years ago. He began a job where he was coming home so dead tired that he fell asleep on our couch. This continued for so long that the rocking came back and I simply cannot fall asleep without rocking. With his new job he sleeps in the bed. I love him with all my heart, but I cannot sleep with him because of the rocking. As hard as I try, I cannot sleep unless I am rocking. I rock as I'm going to sleep and I often wake up while I'm rocking so I know I rock in my sleep. I sneak out of our bed and rock on our couch and then sneak back into our bed before he wakes up in the morning. I thought I was the only one still rocking in her fifties! I read about rolling paper...I do this also. From one extreme to another, I also have had episodes of sleep paralysis (cataplexy).

 
Old 11-16-2009, 05:31 AM   #9
Newbie
(female)
 
Join Date: Nov 2009
Posts: 3
aaustin322 HB User
Re: Rhythmic Movement Disorder

Quote:
Originally Posted by tmk67 View Post
My daughter suffers from RMD, she is almost 5 and shows no sign of stopping. It is severe. We have seen Psychiatrists and Neurologists and they had her get a sleep study. They seem to think it is linked to her severe sleep apnea. They say that the apnea wakes her and sends her into her rocking motions. So, we are in the midst of treating her sleep apnea. Maybe this could help you. And, if anyone has any experience with the results of treating apnea and if it helped RMD, I'd love to hear if we are pursuing the right help.
My son also suffers from RMD. He is 4 1/2 year old and we found out in March this year after begging the neurologist to do a sleep study that he had severe sleep apnea. He had his tonsils & adenoids removed. He recently had a follow up sleep study and he now only has mild sleep apnea. The doctors as well said that the excessive rocking is due to a way to comfort himself from the apnea for so long and now it is just a habit. Does your daughter hum as well? The humming is what keeps the whole family up at night. We have tried several different things. We have such a hard time giving him sleep medicine so that we can sleep, but we are close to that point. We are definitely a sleep deprived family. I hope he outgrows it soon. Has your daughter outgrown this yet?

 
Old 11-16-2009, 10:02 AM   #10
Newbie
(female)
 
Join Date: Nov 2009
Posts: 1
Mrswatty HB User
Re: Rhythmic Movement Disorder

Hi, Ive been with my partner for 4 years and when we first met she explained to me that she has RMD. Like most people I listened but didnt really understand what it involved and because she doesnt do it while she's awake she couldnt really explain it properly as she only knew what other people told her. So at my fright on the first night she started Head Banging!! Since then she has exibited loads of signs such as sleepwalking, talking, crying, uncontrollable shaking (like a fit) and very slow breathing causing sleep apnea. However the Head banging has been the one thing she has consistanly done for all of her life. She is now 31 and is struggling with day to day functions due to her disorder causing Chronic Fatigue. She has quite severe short term memory loss, finds it hard to control her emotions and temper, especially after a long night of movement. She has to take anti depressants to control the symptoms but were still trying to find other non medical solutions. Most doctors want to fill her full of sleeping tablets which dont help at all and just make her want to sleep all day. If anyone else has any suggestions it would be greatly appreciated.

K

 
Old 03-09-2010, 02:22 AM   #11
Newbie
(male)
 
Join Date: Mar 2010
Posts: 1
atherwold HB User
Re: Rhythmic Movement Disorder

Yes, throughout my adult life. And often through out the night.

Last edited by moderator2; 03-09-2010 at 05:54 AM. Reason: posted contact info - please read the posting rules

 
Old 03-20-2010, 08:35 PM   #12
Newbie
(female)
 
Join Date: Mar 2010
Posts: 5
N124 HB User
Re: Rhythmic Movement Disorder

Hey, I was just wondering. I think I am a sufferer of RMD but only diagnosed myself through the internet as (may sound silly) but too embarised to talk to anyone/Doctors about it so I chose a forum like this. Im just worried to whether I should seek medical help for this as I have not done so and I was wondering if constantly twirling your hair is a substitute of the paper rolling as I do not do this yet I am constantly twirling my hair. I do not how to stop the rocking either, I am 16 years old and constantly wounder if I shall ever grow out of it, as I thought I would have done so by now. Every chance I get I sit on the sofa and rock back and forth and before I go to sleep I head bang and Im a bit worried for my future as relationships have fallen due to this. I just need help on this. Can you help? I have also researched and found out that sleep apnea, anxiety, autism, and other disprders come into this, I am really confused as to what is the reason I do this. Hope you can help.

 
Old 04-07-2010, 07:24 PM   #13
Junior Member
(female)
 
Join Date: Mar 2010
Posts: 17
UhohKris HB User
Re: Rhythmic Movement Disorder

Quote:
Originally Posted by suziecue40 View Post
Hello,

Does anyone suffer from RMD and you are one of the rare adults that did not fortunately grow out of it? What treatments have you sought?
I didn't know that was a disorder?? I have rocked back and forth since I can remember, and am still doing it. I looked it up online one day and you'd be surprised how many people have this "disorder" Thats actually the reason I started on these health boards because I thought it was a symptom to me having aspergers.

I rock back and forth to do heavy thinking, or if I want, no thinking at all! I don't feel like I would need treatment...

 
Old 04-08-2010, 03:09 PM   #14
Newbie
(female)
 
Join Date: Mar 2010
Posts: 5
N124 HB User
Re: Rhythmic Movement Disorder

Hey,
Firstly sorry to hear about the break-ups and I, to, have been disaplined about the annoyance of rocking (noise wise) but im just scared bout telling people, like future relationships for example. Do u choose to tell your partner? Im just baffled tbh
I do not know why mah parents av not taken me to the doctors - I should ask - but all these forums say that you should seek medical attention and all this so Im just worried whether I should or not :/
Are you worried about what the Dr might say? I think that's my problem too you know :/

 
Old 04-09-2010, 06:11 AM   #15
Newbie
(female)
 
Join Date: Nov 2009
Posts: 3
aaustin322 HB User
Re: Rhythmic Movement Disorder

IMost doctors will say your child will outgrow the rocking by 3 years old and then if it doesn't happen by 3 they will say by 5 years old for sure. After 5 years old, 5% of children rock the rest of their lives. My son rocked and hummed all night long leaving us with only a few hours of sleep each night. He was grumpy, we were grumpy for months. We take him to his ped. and once again tell them how severe the rocking is and he finally suggests that we see a child psychologist to rule out autism and also see a neurologist. The child psychologist tested him and saw a bright child with no problems. I begged the neurologist to do a sleep study because she like all the other doctors said rocking is "normal." They do a sleep study and come to find out he has severe sleep apnea. They remove his tonsils and adenoids three days later. He still rocks after he heals. He goes back for another sleep study a few months later and his apnea is now mild but he is still rocking. He has had a rough year with colds and picking up the flu, almost sick non-stop. I notice he can't blow his nose so I tell his ped. He recommends us to an allergist. They do a blood test and also a ct scan on his sinus cavities. Turns out he has chronic sinusitis, which means all his sinus cavities are full of fluid. Now it all makes sense. His apnea is mild but still has a hard time breathing because of the fluid so he rocks to comfort himself just like he always did when the apnea was so severe. So he goes on a treatment plan for the blockages. In the meantime his blood work comes back and his bacteria antibodies are extremely low. Once he is off the treatment plan he has to have a vaccine to see if his body has the ability to build up those antibodies. We wait a month and then another blood test to see the results of those antibodies. If his body did not react the way it should then he has a "poor immune system" or a "immune disorder" which is caused from poor sleep. His body will not fight infection like it should so he will be prone to pick anything up. The whole point of this post is to GO TO THE DOCTOR. I have read post after post that people are scared to go. You should not be embarressed. My son rocked to comfort himself from severe sleep apnea and chronic sinusitis that may lead to an immune disorder. A sleep study may be what you need in order to figure out why you are rocking so much. My son has rocked since he has been 14 months old and hums very loudly along with the rocking. Shame on ALL those parents that have disciplined their child for rocking. There maybe something much deeper going on then you think. It has taken us 4 years to figure all this out. Sorry I have written a book here but this subject is very important to me. Good luck to everyone!!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Tachychardia from bowel movement..? help pls Benit General Health 6 05-12-2011 05:07 AM
I think my son has Rhythmic Movement Disorder ads31805 Sleep Disorders 3 05-29-2007 09:18 AM
Likelihood of both a sleep movement disorder and narcolepsy? kyethra Sleep Disorders 1 09-07-2006 12:19 PM
Can gait unsteadiness be due to night-time limb movement disorder Furrypaws Restless Leg Syndrome 3 09-22-2005 07:04 AM
Question - Illusion of Movement or Actual Physical Movement? Ninamarie Inner Ear Disorders 10 06-15-2004 01:32 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 10:49 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!