bethsheba, my diagnosis took a round-a-bout route which I'll
describe briefly. For many years I experienced such intense
afternoon sleepiness that I was unable to stay awake if there
was any way to sleep. It was very painful. I don't know if it
is believable to anyone not experiencing this degree of sleepiness
just how painful it can be. Anyway, I lost two very important
jobs decades past. One I chose to quit because I realized I
could not live up to what was expected of me alertness-wise,
one I lost because of mistakes I made in the afternoon even
after napping a little. Since then I became self employed pretty
much and so was able to collapse as needed.
A year or so ago I mentioned this to my PCP who had me do an
overnight oximeter monitoring. It showed I was below 90 over
65 percent of the time so she got me started on overnight oxygen
supplementation with simple tubing. It was mainly intended at that
time to prevent my hematocrit and hemoglobin from continuing to
rise dangerously. This was my body's way of increasing my level
of sleeptime oxygen. The main point then was to avoid requiring
a phlebotomy to reduce the high Hmt and Hgb getting too high.
The past few months the excessive afternoon sleepiness got me
studying this problem on search engines and I only then realized I
fit all the symptomatic parameters and had been for many years.
When I presented my realizations and research to my PCP she was
not at all surprised but set me up for a sleep study and since I am
endangered driving long distances she prescribed me "Provigil" to
enable me to manage a long drive in a few days. There are many
symptoms unique to 'hypersomnia' and I have all but one of them.
However there is an ideopathic form as well as an apnea associated
form so I am not certain which applies to me. So many complex
ailments these days are described as 'ideopathic' as a semantic
coverup for lack of understanding. There is no hard testing for
diagnosis but my history and my symptoms fit the bill perfectly.
Unfortunately it is said there is no cure only some degree of
symptomatic relief via medication and taking naps. If you'd like
I will let you know how the 'provigil' works out. It is not a
stimulant but it does promote wakefullness or so it says in fine