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Old 12-11-2011, 01:04 AM   #1
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Red face Sleep apnea mystery

I am sitting here typing at 3:00 because I cannot sleep. And i am reading all of these posts about sleep disorders and I am wondering why the medical community is so out of touch with this area of medicin e. Breathing is pretty basic to life. Everyone who posts on this web site has trouble breathing. WHY can they not be more knowledgable to help people? How many people probably die from a side effect of thid conditionevery year?

I have had 2 sleep studies and both say no sleep apnea. Just upper airway resistance syndrome whatever that m,eans. All it has meant to me so far is my insurance wont pay for any of the possible treatments because my o2 level is not low enough when I have episodes. What is low enough. I havent slept well for four years. I now have heart palpatations that are probably form the sleep deprivation I have been experiencing. What is next for me.

I just dont understand why no Dr can help me. 2 sleep specialists and 2 pulmonologists and still nothing.

 
Old 12-11-2011, 07:18 PM   #2
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Re: Sleep apnea mystery

They found it the first test with me but I know that I have good nights and bad nights. When my allergies are causing problems, I can't breath through my nose.
My throat closes up the second I relax. Can you close your airway with your mouth open? I don't think most people can make a load snorting sound without trying hard.
One test is the size of your neck. Even though I am not overweight I have a thick short neck.

Last edited by willy856; 12-11-2011 at 07:22 PM. Reason: Oxygen level has to be below 90% I went down to 75%

 
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Old 12-11-2011, 10:19 PM   #3
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Re: Sleep apnea mystery

I know how frustrated you are. I had a total of 3 sleep studies before I was finally properly diagnosed. The first 2 showed snoring and mild UARS. The 3rd one done at Stanford Sleep Disorders clinic showed OSA of 14 RDI. They have different scoring critieria then the other two clinics. Even if you have UARS that is still a sleep breathing disorder that can significantly affect your sleep. Before I was treated I could not sleep or could only sleep for 4 hours. It almost drove me insane. You need to undergo a cpap titration study. Auto bipap is the better for UARS. Ask the sleep clinic for a loaner cpap. That's what I did after the first test. When I wore it I felt better so I knew I had a sleep breathing disorder.

Last edited by phoebe368; 12-11-2011 at 10:23 PM.

 
Old 12-13-2011, 10:17 AM   #4
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Re: Sleep apnea mystery

You may not qualify for CPAP through insurance because of a non qualifying AHI, but that doesn't mean you would not benifit from CPAP. You may have a high RDI (which insurance does not recognize) that is causing you to have restless sleep. Although your insurance will most likely not cover it, most DME's will sell you a used cpap a a very discounted price. All you would need is a Rx for the machine.

 
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