Hi, I have sleep apnea. I have several related symptoms that I am experiencing. However, whenever I go see my sleep doctor and they perform the tests on me they always come back negative or too mild to diagnose. I have even had a sleep study done on me and it came back with little concern on the doctor's behalf.
- I have had my heart looked at...no immediate or noticeable problems.
- I have been checked for blockage...all blood vessels are clear.
- My lungs have been tested for breathing disorders or other problems...fine
- I have seen several doctors, including my primary and the sleep doctor, who has referred me to other sleep and heart/lung doctors...all confirm no problems
Yet, when I am at home...I experience these symptoms. During the time I am awake I am fine mostly...I do experience a slight, almost numb sensation in my left hand's fingers if my arm is laying in a horizontal postion for more than a few minutes at a time.
When I lay down, the arm experiences these symptoms...but then I feel slight almost non-noticeable numbness in my lips, breathing difficulty (like I have to think about breathing), discomfort in my chest (like it is slightly being squeezed), sharp yet mild stabbing pain around my heart and in my sternum...and all of this when I am tired and try to sleep. Sometimes I jerk and this causes my whole body to tremble like it is shivering, yet I am not cold. I have also woken up with a stuffy nose as if I have a cold but the discharge is clear and thin..not
colored and thick like an infection.
I clearly have something wrong with me but whenever I go in for testing my body "behaves" itself. I'm not imagining any of this but to others my body gives off the impression that this is all in my head. I am literally scared to fall asleep sometimes for fear I won't wake up. I know sleep apnea is one thing I have, but it could be something else as well, like maybe an anxiety disorder.
I don't know who else to turn to because the doctors can't find anything wrong...and I don't know of anyone else who has this problem and when I do find someone with this or similar problems...they are left with as empty as I am trying to make sense of this....closest I have come to a light at the end of the tunnel are forums where I read messages saying "I have that too" or "I have some of those symptoms".
I'm looking for answers so I can finally have a decent sleep at night...or others who have the same problems who know how I can get help. I can't even remember the last time I slept for more than 5 hours at a time and this has been plaguing me for decades
Someone please help me