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Old 08-29-2012, 01:35 PM  
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Lack of sleep WORRY! Please help!

I have posted on here before about my excessive worry about having fatal insomnia. But I want to post again. Two nights ago, I was dead tired, like if couldn't even keep my eyelids open, let alone stand or even sit up. So I tried going to bed around 10:30 but when I tried to, I wasn't able to fall asleep. And when I'm really tired I can fall asleep quickly. I did eventually fall asleep at around 11:15 and got up twice in the middle of the night and got up for the day at around 7:30. But last night I tried going to bed around 11:00, but wasn't able to fall asleep until 12:00-12:10 a.m. And I got up again at 2:30, then went back to sleep and got up again at 4:30, fell back asleep and got up at around 6:00. So that's a total of roughly 6 hours of sleep but it was a broken up sleep. My biggest fear is that I have SPORADIC FATAL INSOMNIA. Now I'm scared that by thinking about this so much, that I now have it. My heart rate isn't super fast, but it is faster than usual. I have noticed that my body temperature is a little higher than normal. Usually it's about 97.5, now it's around 98.4. My anxiety feels like it's a little more extreme than usual. And I feel like I have been having gait problems. Like I feel like I could just fall over when I'm walking, but I never do. I have tried not to think about it but I just can't seem to shake it. I have always been told that it's just my anxiety doing this to me, but I am really scared that one of these days I'm not going sleep at all. Another question I need to ask, is when you have this disease, do you sleep at all when it sets in, or does your sleep just gradually decrease until you don't sleep at all. I'm 19 years old, please help me!

 
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Old 08-29-2012, 08:20 PM  
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Re: Can't Sleep Normally... What's Wrong!!!!!????

There are so many things that can interfere with sleep, that focusing on a rare disorder like that seems to be making the situation worse. Some of your symptoms could be explained by an overactive thyroid gland. I would see your Dr and ask to get that checked, and consider seeing a sleep specialist for a sleep study and diagnosis. You could also try in the meantime taking some benadryl at night, 25-50 mg, which a lot of people find helpful as it causes drowsiness. If you haven't taken it before, I would try it on a weekend, and try the 25mg first to see if that works. I wonder if the obsession with fatal insomnia is actually causing your insomnia, and creating a vicous cycle of anxiety.

 
Old 08-30-2012, 09:46 AM  
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Re: Am I going to DIE!!!???

I think you will be fine! I never get a full nights sleep because I am a light sleeper & usually am always woken up by my cat or something. Most I sleep straight is about 2-3hrs & that's how I've been my whole life. I'm from WI too & yup I drink a beer or two to relax me before bed too

 
Old 08-30-2012, 10:30 AM  
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Re: Am I going to DIE!!!???

I just am really worried, because I can't seem to get out of my head that I have this. Everyone I talk to says I'm fine. I actually went to the doctors about it and all they said was I don't have it. No test or anything. I have anxiety too, but it seems way worse since this all started.

 
Old 08-30-2012, 04:19 PM  
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Re: Am I going to DIE!!!???

This condition is so rare that you have more chance of being struck by lightning. Yet you still go out during stormy weather. You have more chance of dying of cirrhosis of the liver from the beer lol. Everybody goes through stages (some lasting years) of mild to severe insomnia. Yours is mild. You do get to sleep eventually, and stay asleep for the most part. I would KILL for only 45 minutes to get off to sleep. Insomnia can be a bit of a self-fulfilling prophecy - as soon as you think "can't sleep", it becomes fact. Forget about worrying about it, follow some of the proven bedtime routines, the internet is full of them. They all work. Sera

 
Old 08-30-2012, 08:00 PM  
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Re: Am I going to DIE!!!???

You have posted this numerous times. I feel for you because Im a dweller as well. That disease is so rare. If you had it by now you would know it. It doesnt take long for that disease to kill someone. You have posted this almost every topic. Please relax,I know its hard. Your anxiety/panic is causing you not to sleep the way you need too. You do sleep so you do not have that disease. I have panic disorder and when im having chronic panic I can hardly sleep. Im sure you been to Dr`s please be assurred you dont have it ok.

 
Old 08-30-2012, 08:37 PM  
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Re: Am I going to DIE!!!???

Alcohol even in small amounts can be detrimental for sleep. I have no issue with drinking or the people that do, just dont plan on getting your best sleep.

 
Old 08-31-2012, 09:28 AM  
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Re: Lack of sleep WORRY! Please help!

I posted on your other thread. To give you and idea of what regular insomnia is like, I will tell you how mine goes:

I had a change in my sleep schedule - had to start getting up earlier than I had before. So I told myself I *had* to get to sleep so I wouldn't be tired the next day. That set my insomnia all in motion and it happened with just those first few nights of bad sleep. First it began with waking up in the middle of the night, telling myself to get back to sleep only you can't tell yourself or make yourself sleep. The more you do, the less you'll sleep. So I began sleeping less and less.

The stress and worry of my waking in the middle of the night lead to sleep onset insomnia. I would crawl into bed so tied and exhausted. Dopey feeling in my head from lack of sleep, heart palpitations from the lack of sleep and anxiety to only to lie in bed for hours. One night I slept 45 minutes. That's all, no dozing, nothing. 45 minutes. After weeks of this my insomnia took on a life of it's own. I went from 6 1/2hrs of sleep, down to 5 down to 4 and then down to 2-3hrs of sleep per night. I couldn't even sleep on weekends. I would try but then I was placing too much importance on my weekend sleep because that was the only time I could make it up.

This went on for months. I went to doctors, acupuncture, naturopaths, sleep doctors. And no one could fix me because I was doing it to myself. I thought too much about sleep, I was desperate for sleep, and the lack of sleep was making me paranoid that there was some horrible thing happening to me to cause my insomnia - a tumor on my adrenal glad or pituitary gland. I felt so horrible, something had to be wrong.

I was physically sick after months. I was nauseous and light headed. My digestion was so totally messed up I dropped 10lbs because everything I ate (if I managed to gag down any food at all) went right through me. I thought certainly I must have some kind of pancreatic or colon cancer causing the nausea and weight loss. My heart pounded so hard all of the time I could hear it when I sat or laid down. My hands shook and I felt like I couldn't get enough oxygen.

I managed to get past the worst and slowly brought my 2-3hrs of sleep back around 6-7hrs and 8-9 during the summer, but now I'm back on a school schedule and I'm around 6hrs. But I still don't sleep soundly. I fall asleep, sleep for 2-3hrs, wake up, fall asleep for another 1-2hrs, wake up, fall asleep for an hour or so and maybe I'll fall asleep or I'm awake and just lay in bed resting and dozing. But so far that's been enough to keep me feeling ok and I sleep in on the weekends. I don't like it but I don't let it worry me anymore. I survived a year of hell and I got better so if I don't sleep a perfect 8hrs, I know I'll be ok.

What I want you to understand is anxiety and lack of sleep will make you feel physically sick. And it effects your reasoning and rationalizing. I know you are scared and I was terrified there was something horribly wrong with me that was causing my insomnia - because there was no way *I* could be causing this torture myself. But I was.

I asked in my response to your last thread, have you seen a doctor? Would you consider taking something for a short time just to get some sleep and hopefully some perspective on your situation? Pills are not a long term solution to insomnia, but it could be enough to get you some rest and break you out of the cycle of fear and anxiety allowing your sleep to go back to normal.

Honestly, you sound like a classic case of anxiety caused insomnia. Nothing exotic like fatal insomnia. It's still not fun, but I do believe you will sleep fine again if you could get a grip on your fear and anxiety. And that might be where a doctor can help you.

 
Old 09-03-2012, 05:16 AM  
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Re: Am I going to DIE!!!???

Okay but, about a week ago I had this same trouble falling asleep. And wasn't even thinking about it. And day by day, my sleep has gotten worse. Like I'll fall asleep fine but be up 3 hours later and it takes me awhile to fall back asleep - normally I can fall asleep easily. And when I do fall back asleep I have really weird and vivid dreams. So that's why I'm concerned is because I wasn't even concerned about it and all of the sudden I just have this insomina again, only it's not going away. Like do you sleep at all when the disease starts?

 
Old 09-03-2012, 08:26 AM  
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Re: Am I going to DIE!!!???

The previous post has good perspective and advice. The insomnia you describe is actually pretty classic for anxiety/depression. An alternative to sleeping pills is an antidepressant like Trazadone, which helps you sleep and treats the anxiety as well. It is nonaddictive, and can be taken for as long as needed. I would urge you to see your Dr. Get your thyroid levels checked, and ask for a sedating antidepressant like trazadone that will help you sleep peacefully thru the night and get you past the obsession and anxiety over dying from lack of sleep. You are your own worst enemy, I'm afraid, and I don't say this in a mean way, as I fully understand how devastating anxiety and insomnia can be. But you do need to break out of this cycle, and then you'll be fine.

 
Old 09-03-2012, 08:36 AM  
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Re: Am I going to DIE!!!???

Quote:
Originally Posted by marblecomp52 View Post
Okay but, about a week ago I had this same trouble falling asleep. And wasn't even thinking about it. And day by day, my sleep has gotten worse. Like I'll fall asleep fine but be up 3 hours later and it takes me awhile to fall back asleep - normally I can fall asleep easily. And when I do fall back asleep I have really weird and vivid dreams. So that's why I'm concerned is because I wasn't even concerned about it and all of the sudden I just have this insomina again, only it's not going away. Like do you sleep at all when the disease starts?
You don't have to be thinking about not sleeping to not sleep. I don't think about not sleeping hardly at all anymore. When it happens, I'm annoyed but as far as stressing about it or researching causes or wondering what is causing me not to sleep - not. I don't obsess about sleep, yet my body will still do it. And if you find other sleep message boards (I know of a really good one but I don't think I'm allowed to post it here) you will find people with all varying degrees of sleep issues.

During the worst of my insomnia, some nights I would fall asleep fine and wake within 2-3hrs and it would take hours to fall back to sleep. Some nights it would take me hours to fall asleep but then sleep 5-6 hours straight. Sometimes I would fall asleep for an hour or two, wake up, fall back to sleep and sleep 3-4hrs wake up for a bit then fall back to sleep for another couple of hours. And some nights I would sleep fine.

There is no set schedule with insomnia. It does what it does with no rhyme or reason. Some nights before bed I felt absolutely normal, no worries, good mood things during the day were great and I felt happy. Only to crawl into bed and have a bad night of sleep. And the reason you are having vivid dreams is a because your body is trying to protect itself from the lack of sleep. So your body will try to put you into a deeper sleep quicker to get the most from the little sleep you are getting. And that's why the dreams. That was one of the part of insomnia I hated the most was the dreams. I hated them! Weird, bizarre, nonsensical dreams every single time I did sleep. That to me seemed even more exhausting.

I doubt anyone here, myself included, will be able to ever tell you the early signs of fatal insomnia from personal experience. We just don't have it. No one that I'm aware of in this entire country has been diagnosed with it. I remember reading about a case of a man somewhere here in the US but he was a descendent of the one lineage of families that carries the familial insomnia gene. As for the sporadic kind, haven't read or heard about a one.

You would be better off understanding the personal stories of regular insomniacs and what they have done to resolve and manage their insomnia than thinking you have a fatal kind. Because that possibility is quite remote.

 
Old 09-03-2012, 03:02 PM  
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Re: Am I going to DIE!!!???

I just can't take this anymore. Like last night I fell asleep just fine, and I actually had a really vivid dream (although I was actually sleeping for awhile) and then I woke up in the middle of my dream. It felt like I was sleeping forever, but I only slept for like 3 hours. And I've noticed that I am waking up earlier as each day goes on. And it is harder for me to fall back asleep as each day goes by. And when I do fall back asleep, I have very vivid dreams, and I wake up like 2 hours later, and so on. I feel like falling over when I walk too. I mean it just seems to make sense, like I actually have this. I try and tell my parents and my doctor but they just say it's all in my head. Well when the first case of this was diagnosed in a man in California, that's what they said about him too, and look what happened. I have hand tremors constantly, I'm completely at a loss.

 
Old 09-03-2012, 06:27 PM  
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Re: Am I going to DIE!!!???

I would listen to your doctor and your parents. I mentioned before that lack of sleep can have all kinds of physical manifestations. Lack of balance or you feel like you're going to fall over - I've had that. My hearing even went weird and was hyper sensitive and tinny sounding. My hands shook to the point that I was embarrassed that people would think I was an alcoholic. It was hard to read because my vision would get blurry. My heart pounded. I felt dizzy or swirly in my head. I couldn't think of words and I felt like I was stuttering because I knew what word I wanted to say but there was a disconnect between my brain and mouth and a whole host of other things. Not sleeping is very hard on the body, no doubt about it. And your body will begin to not function with lack of sleep.

Everything you are reading about sporadic fatal insomnia (I went out and read a little about it just so I could relate to what you are talking about) are all the same exact symptoms regular insomnia will produce.

You are far too young to even have the disease and it is extremely rare. If anything is causing you sleep problems at this point in time, it's all the cortisol and adrenaline your body is producing in response to the lack of sleep and your anxiety. Those two hormones are the devil when it comes to sleep.

 
Old 09-03-2012, 06:53 PM  
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Re: Am I going to DIE!!!???

I'm just scared because every time this has happened to me, my sleep has always gotten better because I would tell myself that I'm okay and I'm just thinking about it constantly. But, this time I'm not seeing any improvement on my sleep. I have never had these bizarre dreams before. Or this constant feeling of sweating, neck pain, tremors, etc. Is there any possible way that I can just know for sure if I have this or not? That way I can either put my mind at ease or prepare for the worst.

 
Old 09-03-2012, 07:12 PM  
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Re: Am I going to DIE!!!???

You said "every time this has happened to me before, my sleep got better." How many times have you had bouts of insomnia? Because fatal insomnia doesn't lapse and come back. If you have it, you have it and it progresses quickly. So if you've ever had periods of insomnia in the past and then your sleep improved, then it's not fatal insomnia. Have you ever taken anything to help you sleep and you slept? That could be ambien, a beer, a benadryl. Then you don't have fatal insomnia. There is no masking fatal insomnia with medication or other sedatives.

I really don't think you need to prepare for the worst. I think you'll be fine if you get a handle on your fear of this disease.

 
 



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