C4-c5, C5-c6 Post Surgery Permanent Nerve Damage
I just signed up. I had my first fusion in 1992 (C5-C6) with a bone from my hip. I gained back most of my strength, except I encountered some atrophe in my right pectoral muscle and on the right side of my neck. I managed to deal with some on-going pain without medication.
My second surgery was in 2000 on C4-C5 with a cadavar bone and a titanium plate. I have much more atrophe on my right side now. My trapisius muscle, triceps, and about two to three ofther muscles on my right side are noticeably atrophied.
I have constant pain, headaches at the base of my skull, numbing pain down my arm into my hand when I overdo things at work. I cannot sit on hard surfaces. I cannot sit without back support, and I cannot sit very long at all without pain. The weather changes contribute to my pain, as does lack of sleep or a long day.
I have tried Neurontin with no effect; Celebrex with no effect and ulsers. I cannot tolerate the epiderals due to the narrowing of the nerve canal. I have been on oxycontin, oxycodone, and percocet, for pain. I quit taking all the pain meds because I don't want to end up becoming an addict. Main tolerance to the medication kept increasing, putting me right back where I was before. I sometimes take sonata to get to sleep because I know that rest is the key. I currently take Affexor, but that is it.
I have seen all the specialists and doctors. And they have all invoiced me for their input, but they've done nothing for my post-surgery pain problems.
I now want to go outside the box and find something my doctors haven't considered.
Sick and tired of being sick and tired
Help me please. Any ideas?