Spina Bifida - Spinal Cord Disorders Message Board

aimejl · 11-27-2004, 10:25 PM

don't know if this is the right place to post this but does anyone have spina bifida or know someone who does?

klasyjo · 12-06-2004, 06:12 PM

I have recently been diagnosed with Spina Bifida. I received some helpful information from the following Mayo Clinic website:
[url]http://www.mayoclinic.com/invoke.cfm?id=DS00417[/url]

hartcher · 01-20-2005, 10:03 PM

I have spina bifida which was diagnosed at birth. You can ask me any questions you have about it.

twisten · 01-21-2005, 08:24 PM

I found out about 3 years ago that I have spina bifida occulta along with scoliosis and I'm now 40.

Gregzgirl622 · 01-31-2005, 09:24 PM

Yes, I have Spina Bifida, diagnosed at birth. I'm now 43. Mine is called "Myelomeningocele." I just asked the Healthboards team to consider making a special message board for us. I hope they accept! Please also let them know if you'd like a special message board for this (as the saying goes, "The squeaky wheel gets the oil!"

--Gregzgirl622