spinal bifida/adulthood - Spinal Cord Disorders Message Board

dawnbreck · 11-19-2006, 09:22 PM

Hi was born with spinal bifida in 1978. Had no real problems except had to have special shoes and parents had to teach me to walk. I have lived a pretty normal life. In January I was diagnosed with a 6.9 cm lesion in between my medula and skull. Had brain surgery to remove it. Now I just found out I have another lesion in between my medula and skull3.9 cm. Its laying on my sinus vein. I have also developed a seizure disorder this year. I wanted to know if anyone knows if this might have something to do with my spinal bifida. And can this be a secondary condition to spinal bifida. Does anyone have these problems or anyone you know. Any info would be helpful.

PearlDoves · 11-19-2006, 10:38 PM

I don't know much about this, but I would ask your Neuro Doc - he/she might prove to be insightful.

dawnbreck · 11-19-2006, 11:17 PM

Thank you for your reply i will do that

SpineAZ · 11-20-2006, 09:10 PM

I wouldn't be surprised if it were, in some way, related - even if distantly. I had spondolytic spondylolysthesis in my lumbar spine which had prevsiously diagnosed as spina biffida occulta (when just a small area fails to form normally). In addition, I have had a host of orthopedic problems (bilateral bunionectomies in my early 20's, about 14 knee surgeries begining at age 13, cervical fusion this year due to disc problems, etc) and at least a few physicians I have seen said that the 'malformation' in my spine could be one 'symptom' of some kind of syndrome. Not enough to really research, but it makes sense that the fact that my lumbar spine was not formed right could be from some type of genetic disorder that has caused my bones and ligaments to be wacky (not a scientific terms but that's the best way to describe it).

Karin
C5-C7 ACDF 5/2006 @ age 39
L4-S1 fusion 5/1993