Im not sure how many people on this website are familair with tethered spinal cord syndrome, but I'll ask my question-and see if there are many responses. I was diagnosed with a tethered cord in June on 2006. My symptoms before the surgery were bowel incontinence, inability to urinate, and painful ejaculations. I was lucky and didnt have any orthopedic problems, until now I may have some. Over the past couple of days I have had very discomfortabale pain in my calves. Now I know this is not muscular pain; or soreness from muscles, because I have had that and am familiar with what it feels like. I dont know what else to say, a very discomfortable feeling in my calves. Well if anyone is familiar with tethered cord, and may have some knowledge about it, your input is welcomed.
i have heard of this syndrome but do not really know what it actually is or how this becomes this way could you enlighten me?i just cannot tell from what you have stated whether this 'surgery' you had was FOR the tethered cord problem or actually caused it?you know what i mean?if this was caused by a surgery,just what was the surgery for originally?
the one thing i am very very certain of here is that once your actual cord has become damaged or even just affected in some way,anything is possible to actually "feel' after.i have significant damage to my spinal cord and have felt some of the most really freaky,strange and ***zarre sensations and pains that i never would have thought the human body was even capapble of creating.its been quite the ride here.
your calf issues could be stemming from some sort of sensory or even motor affectation of some of the nevre fibers within the cord itself or any number of other possibilities.i would really highly reccomend you seeing a specialist called a physiatrist?this is not a shrink,its a more of a specialized physical medicine type of doc who has tons of experience with treating nerve,cord damage in how it relates to the body as a whole.this was my acute rehab doc when i was sent to a rehab hospital following my spinal cord surgery,he helped me to be able to use me L leg again post op.these types of docs would probably be much more likely to be able to try and explain what is causing your particular issues the best.
inside the cord,you do actually have among other things,motor and sensory fibers,along with the actual nerves themselves that are on the outside and run from the vertebraes.i never realized til after the damage that you even had these same types of nerve fibers actually within your spinal cord.i do now.you could also possibly start feeling other little wierd feelings or sensations or perceptions of sensations as time goes by,thats just the way the cord is.
but seeing this type of doc really would be the best type for your situation,possibly seeing a neurosurgeon as well?the doc will know what your needs are.these physiatrists are just really really great at explaining what felt at the time to me like the unexplainable.i think you understand what i mean by that?please keep me posted in how your doing,K?good luck,Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
feelbad-thanks for your responses and suggestions, I will look into seeing a physiatrist. I was born with this type of problem(tethered cord syndrome). And after 18 years of my life, it finally decided to start affecting me. It was than decided that I have the surgery on it, to prevent anymore damage from occuring. I finally had the surgery when I was 19, but by that time many side effects had already been plaguing me. First it was bowel incontinence, than inability to urinate, and than painful ejaculations. And now maybe leg pain. If you need to know anymore information, I will let you know.