so much pain!!!!!!!!!!! - Spinal Cord Disorders Message Board

willowthewisp · 03-03-2007, 04:01 PM

Almost 6 yrs ago after being in pain for so long i saw a private Dr paid for by my works health insurance who diagnose me with Fibromyalgia. He injected my neck area with steroids which did not help in the slightest. Well here we are 6yrs on and i am still in lots of pain. My neck and top of my back hurt all the time, now i am seeing the works physio who has diagnosed Kyphosis, is the the same a scheuermans and also is kyphosis also called scoliosis, as mum had this and so does my eldest child. I am so annoyed as this previous dr only gave me painkillers for the fibro, now i have a lump sticking out of the top of my spine and my head is sort of pushed forward a bit. Worst of all is the pain, it never goes, at night i rarely sleep as i can never get my neck/spine comfortable, never. I wake up and am sometimes locked with a stiff neck and cant move. I just feel if this dr looked into this more he might have noticed my spine problem and i might not have this hunch now, the physio is going to try to stop me having a hunch back but did say it could be too late. She also said it is not possible to correct the damage already done. This Dr who diagnosed the Fibromyalgia had a terrible attitude, he was off hand and harsh and just got this injection out without even telling me what he was injectiing me with, he just stuck it in my neck and said i did not need to know what it was. I am now on lots of pain killers, always in pain, and now i notice my left hip/pelvis area is also not working properly and giving out and not supporting me properly. What happens with this kyphosis, does it get worse, can i stop the pain or is this what life will be like now. I also notice that when i go out in the car, if i am on a long journey, where i have been looking straight ahead for a long time, my neck is sort of stiff/stuck in the forward looking position and it really hurts, is this what i get through having kyphosis. I am soooo confused.

SKZ · 03-03-2007, 05:05 PM

Have you ever had an MRI? I have/had alot of the same symptoms as you. I ended up having the cervical fusion at C5 thru C7 in Jan. I had arthritis, bone spurs, and degenerated disks. I feel alot better, now that the spurs are gone and things are more stable in there. You really sound like you should get an MRI, considering how long you have been in pain. I dealt with my pain for 5 yrs. and now I am kind of stuck in upper body spasm because I let it go on so long. The same for me, sitting for long periods kills me. So now after the neck surgery, I am able to get P.T. for the spasms. Once the neck part was dealt with, now maybe my muscles will start to cooperate also.

willowthewisp · 03-04-2007, 12:54 PM

hi, thanks for replying.Over here in the uk we dont really get mri scans, only if you pay privately. I went to my Dr only 2 days ago and asked her to send me for an MRI or CT or any kind of scan and she said no, they dont allow it. So i am only hoping that when i go to see the physio's in a few weeks time, they may say i need to see a sugeon, who i can then beg him/her to send me for a scan. I really need to know what is going on in my back!.

julyg · 03-04-2007, 01:53 PM

For all of us who complain about our medical premiums.... what a wake up call! I have had 3 mri's this yr cant imagine how their Drs. could diagnose without them!

julyg · 03-04-2007, 01:57 PM

Perhaps you could alternate ice and heat packs for releif until you get a proper evealuation and treatment plan. I have ussed these methods for pain relief both pre and post surgery.
Good luck to you.