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Old 06-06-2007, 06:25 AM   #1
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captnanny HB User
Unhappy please send advice, starting to whine!!!1

hello, It's me again, I can't wait until I can post an optimistic thread. I feel like i am starting to sound like a four year old whiney kid. I had a 2 level acdf, c456 on april 13. The pain went down for a while and I really felt like the surgery worked. I had post op pain so I was able to do what the said. Now about 2 weeks ago the pain started getting worse. It is now as bad as it was before surgery. I was crying so hard in pain yesterday that it made the pain worse. on May 22 my xray looked good, signs of fusion so they said I was on the mend. Now I think I did something because my whole arm is numb and my neck is completely on fire!!!!! I have called the doc, but not made another appointment, the nurse usually lets me know if i need to see him. I have a question though. my mri showed c2-3 and 6-7 were also bad. They told my mom at the surgery that they looked worse when they were doing the other two but would have to hope that the pt and this surgery worked for the pain.
I feel like the pain is killing me and I can't stop crying cause i feel like a failure.
any suggestions, I don't know where else to vent about this except on this board, my friends are tired of me.

 
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Old 06-06-2007, 09:07 PM   #2
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Re: please send advice, starting to whine!!!1

Hello capt
It's ok to vent here...

I'll share my experience, maybe there is something in that you can relate to. I had a neck injury 15 years ago, that was not diagnosed until 3 years ago. The initial MRI showed DDD at C4/5/6/7/8. I had developed a number of neurological deficits along with the pain, but the symptoms were associated only with C5/6/7. So, even though the other levels looked 'bad' on the MRI, the surgeon would only operate on the levels that were causing problems. A year after the first ACDF I went back for a second one, for C4/5, because it had started to cause problems. I have the prospect of more surgery if I live long enough.

The surgeon explained that a lot of people in my age group (50+) have discs that look bad on an MRI, but for most people the bad discs are not creating a problem, so they typcially won't operate based on appearance alone - there needs to be evidence of problems. Some surgeons appear reluctant to even operate just for pain (from what I read here), but things like weakness or atrophy, numbness, etc., can make the case for recommending surgery.

For people like me, that approach results in repeat surgery, but it seems to be sound medical practice for 'most' people.

A few weeks after my 2nd ACDF I had a return of the pain and numbness - it turned out to be inflammation of the cervical nerves, probably due to being manipulated during the surgery. I reported it to the surgeon, and was treated successfully with a course of steroids to reduce the swelling. So, be sure and report all post op problems promptly - maybe it is something relatively easy to treat, like in my case.

Hang in there - dealing with our problems can really try our souls, but the key is to avoid getting discouraged - and I know it is sometimes way easier to say than to do!

 
Old 06-07-2007, 09:00 AM   #3
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monarog HB User
Re: please send advice, starting to whine!!!1

Hi All,

Bob...I was wondering, how is the swelling of the cervical nerves detected? How do they diagnose that this is for sure what's causing the pain?

I am apprx. 3 months post-op ACDF, C6-7, cord compression. I have seen little to no improvement in neck/arm pain so far. The majority of my terrible neuro symptoms remain as well - which is more bothersome and uncomfortable for me than the pain - though the pain does wear me out. I just saw my NS at 9 wks, x-ray shows I'm 90% fused already - he says everything looks really great. But I don't feel that way at all. I have no other follow-up with him as everything "looks good." I think he doesn't know what else he can do for me so he sent me to PT. I don't mean to be negative, but I struggle being optimistic that this will be helpful - especially with the terrible neuro stuff. Thanks for info. Mona

 
Old 06-07-2007, 09:05 AM   #4
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monarog HB User
Re: please send advice, starting to whine!!!1

Hi Captnanny...

I wish I could give you advice. But I am also struggling post-op like you. Just wanted to say, this board is a great place to vent. I mean, misery loves company, right? Also, hopefully, you'll hear some sound advice from those who have been where you (we) are. Good luck...please keep us posted. I am sorry to hear you're struggling; I hope things get better for you soon.
Mona

 
Old 06-08-2007, 12:22 AM   #5
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Re: please send advice, starting to whine!!!1

Yes our problems can be frustrating. Let me ask a few questions.

1. Are you wearing a collar of any kind?
2. How do you sleep - what position? Any special pillows etc. that you are using?
3. How have you increased your activity during that time?
4. Are you doing any driving or riding in cars frequently?
5. What is the heaviest thing you are lifting?
6. Are you doing PT right now? If so what are they doing with you?
7. Did you have burning pain before is this a new kind of pain?

Some people take longer to heal than others. The nerves also go through many rounds of healing, i.e. they feel better, we do more, we feel worse, repeat. Its like a vicious cycle. When you have had significant trauma of the nerves, it can take a long time for healing. This doesn't not just happen overnight. Improvement can take up to one year or longer, with small baby steps.

You can't judge your case on what happened if someone else was magically cured after surgery, everyone is different and our problems that were fixed are of varying degrees.

Sorry you don't feel better, hope you can answer these questions and I might have some advice for you.

 
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