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Old 02-03-2008, 11:32 AM   #1
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Excruciating Muscle Spasms?

Hi Everyone

I was wondering if any of you have had to deal with muscle spasms so bad you couldnt stand it. I have had two neck surgeries, I have titanium in my neck but I also have ddd and narrowing spinal cord. Lately I have been experiencing spasms so bad I that I cant stand it. My dr has been injecting me right in the knots my muscles make but after about a week it comes right back. I am so tired of injections. I am gaining a horrid amount of weight because of the steroids. I am kinda at the end of my rope. I dont even know what type of dr I would go to for muscle issues. Can any of you help me out with this? I always appreciate the knowledge you guys have so if you can, please help me out here.

mshatch

 
Old 02-03-2008, 03:23 PM   #2
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Re: Excruciating Muscle Spasms?

Hi mshatch, I suffer from what is called cervical dystonia which is severe and uncontrolable muscle spasms in the neck. What causes them in really unknown and there is no know cure for them. Due to this condition and RSD which is nerve damage related, I have now been left permanently disabled by them. Some people are lucky and have had Botox injections which helps some. These injections are expensive and have to be done every 3 months for relief. A neurologists usually is the one who does these injections. For me they are no help so I don't even bother with them. I take Soma 350 mg 4 x a day to help with them but if the weather changes I will get them real bad and can last for 8 hrs. I have had plenty of prednisone shots for them which like you say don't last long. The only time I get them now is if the spasms get so bad that they run down my back and then I got to the ER and get a shot. Some people would probably suggest trigger points injection or maybe trying acupuncture, I never tried neither. For now with the Soma they stay pretty much under control until like I say the weather changes. I hope you can find someone who will help with the spasms because I know how bad they hurt.
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Cervical Dsytonia- severe muscle spasms in the neck
Arthritis

 
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Old 02-03-2008, 10:07 PM   #3
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Re: Excruciating Muscle Spasms?

Yes I too have same and have spasms. My knots can get like rocks. If the root cause of the spasms is organic (like something pressing or irritating or a bad disc can cause this as well) - or like stenosis or ddd they can inject those trigger points all they want, but they will continue to come back. If you are not getting PT along with the injections - they probably will just knot back up.

Not sure if you have tried this path follwoing: If the injections have some success for you although temporary , you could try finding a myofascial trigger point release specialist (PT or massage therapist). Instead of the injections have this massage therapy. If you can tolerate the therapy you might find it very successful. It isn't a one time thing, you need to go consistently for a while until they get the TrPs under control.

You could see a physiatrist - they are focused on physical medicine, they are board certified physicians who treat musculoskeletal injuries, pain syndromes, and sports injuries and many other rehabilitation and occupational medicine issues.

 
Old 02-03-2008, 11:21 PM   #4
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Re: Excruciating Muscle Spasms?

Thanks for the advice. I will look for that type of doctor in my area. I have done massage therapy also but the knots just wont stop. They do go away but not for long. I am just so frustrated right now. I tryed to do the injections because I was sick of all the meds but more than that my family was sick of me being spaced out. I wanted these injections to work so bad and they didnt. So far I think the medical bill is 25k. I have had lots of them. I know my back is a disaster. I guess I am just upset that nothing is helping. I will let you all know if and when I go to the doc and what they say. Thanks for listening and for the advice. I would appreciate anything anyone else has to add to this.

mshatch

 
Old 02-04-2008, 06:17 AM   #5
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Re: Excruciating Muscle Spasms?

Hi mshatch, unfortunately where the root of the spasms are is also a lot of nerve damage. In other words, when it itches, I don't even won't to scratch it because of the pain that comes with it. The area is so sensitive to the touch that I try to touch it more than I have let alone anyone else. So I unfornunately can't receive any kind of massage because when someone touches it or presses down on the area it puts me in a lot of pain. I cannot raise either arm over my head because any activity of this nature will cause the spasms. My left arm in now locked in a permanent postion where my left hand touches my left shoulder and the only time I can stretch it out is to put my clothes on or go to the bathroom. I can type on the computer as long as I get close to it. I wish some of these techniques could work for me but they don't and the damage was already done before any one diagnoised me. So I have learn to live with the disability and try to stay away from any activity that brings them on. So the only other thing that brings them on is the weather and I have no control over that.
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RSD (Reflex Sympathetic Dystropy)
Cervical Dsytonia- severe muscle spasms in the neck
Arthritis

 
Old 02-05-2008, 06:56 AM   #6
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Re: Excruciating Muscle Spasms?

mshatch, I have had the spasms in the neck something fierce, at times ended up with whopper headaches. My neck would get as hard as a rock on one side. Now I am getting them in the shoulder & chest area which I just had surgery so hopefully they go away. I went to a Physiatrist (rehabilatation doc) as mention here. He did manage did get rid of the headaches for me when they got out of control. I ended up with surgery, but up till the surgery the rehab. doc treated me. Perhaps it would be worth you while to look into one. Good luck, Sammy

 
Old 03-19-2008, 06:54 PM   #7
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Re: Excruciating Muscle Spasms?

This won't work for everyone but it might be worth a try. Calcium makes the muscles contract, magnesium helps the muscles relax and smooth out, when I get muscle spasms I immediately take 1000 milligrams of calcium and 1000 milligrams of magnesium with 800 units of vitamin D. D helps your body utilize the calcium. If your older it is even more important that you get enough of these minerals as our bodies do not get or use as much of these minerals as a younger person might. Even if you eat a lot of dairy products if vitamin D isn't ample in your diet then the calcium goes right through you without breaking down to a usable form.

Many people have been led to believe that they got enough vitamin D from their food, the sun etc. now science has discovered most Americans are very low in vitamin D. B1 or thiamine helps with deep muscle pain but because it is water soluble much of what we get leaves our bodies within a span of three hours, there are some synthetic B1 products that help retain the B1 so that it is more efficient and lasts longer helping the muscles to repair themselves. B12 also has amazing benefits for our nerves and muscles.

Any or all of these may help give you some relief, there are many good sites that explain in more detail some of the results of these vitamins and minerals, hope this helps someone, it sure makes my life more tolerable. Bell

P.S. Just for the record I have severe spinal stenosis , and 2 bulging disc's, osteoarthritis and mild scoliosis, and need 2 knee transplants so I am no newbe to muscle spasms, or pain, but stand by the above which has been a life saver for me.

Last edited by bellsudev; 03-19-2008 at 10:29 PM.

 
Old 03-19-2008, 09:43 PM   #8
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Hello, I have been dealing with this problem for the past year. After any procedure or injection, my muscles down my spine, begin to spasm so bad, that the Drs. can not seem to get them under control. They really don't understand why this is happening. They have finally chalked it up to myofacial pain and that since I have fibro., that perhaps I am just more sensitive to pain and perhaps get the spasms easier because to the fibro. But they are just guessing this, because they have no other explanation. (This is my PM Dr.) Last month was the last time that this happened, after having a trial stimulator inplanted. The Dr. said to expect the spasms for a couple of days or so. I ended up back in his office a week later and then again 5 days later because I just could not take the pain. They tried several muscle relaxers but they were knocking me out, and they wanted me to take 4 a day. There was no way I could do that. Finally they gave me a very light M. relaxer, (unfortunately I can not remember the name), and was told to try taking 3-4 a day, take aleeve every 6 hrs. around the clock (even when I felt better) and to do it on a weekend when I could rest the whole time. It actually worked, but as soon as I over did it the next few days, it all came back. So, they are going to try the same injections that you mentioned having. By the way, were the injections very painful? The PA said that she will do them and that they are quick. She said that if I handled all the other blocks and injections that this will be easy. Is that true? I wish I had an answer for you, other than to watch what brings on the spasms and try not to do that as much as possible. Have you tried the muscle relaxers?



Lorie
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Last edited by lfoster21; 03-19-2008 at 09:56 PM.

 
Old 03-20-2008, 05:47 AM   #9
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Re: Excruciating Muscle Spasms?

Hi Lorie, are you talking about the Botox injections? As for me, they did hurt and didn't help at all. I also have to mention that the area that the put the Botox also suffers from alot of nerve damage and the area is very sensitive to the touch. That could explain why they caused me pain. I feel for you because I suffer from Cervical Dystonia which is uncontrollable and severe muscles spasms in my neck. At times they can travel to both sides of my neck, shoulder and at times go down my back. It's possible the you could be suffering from the condition called Dystonia there are different kinds of Dystonia. Try looking up the word and see if your symptoms are comparible to one of the types of Dystonia. There really is no known reason for why it occurs or no sure treatment for them. As for me I take Soma 350 mg 4 x a day plus I take advil along with the Soma. The weather is my worst enemy because that's what brings on the really severe ones. Also I can not raise my arms over my head to do anything nor use my right arm to much like for instance lifting something heavy because this will bring them on as well. This could be the reasons you are having problems with them due to the weather and some type of activity that you're doing can bring on these severe spasms. Dystonia can also leave you disabled as it has left me permanently disabled with my left arm locked in a position where my left hand touches my left shoulder. So I wish you luck on whatever injections you're having in the future and hope they help. Also Botox is given every 3 months and they are expensives as well. Good luck.
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RSD (Reflex Sympathetic Dystropy)
Cervical Dsytonia- severe muscle spasms in the neck
Arthritis

 
Old 03-20-2008, 03:24 PM   #10
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Wink Re: Excruciating Muscle Spasms?

Thank you so very much for your insight. My PA said that she will do these "trigger point" injections and kept asking me how well I tolerated the steroid injections in my back. She said if I made it through that, I should be ok with these injections. If these do not work, then she will do the Botox shots. I told her that I made it through the other injections, but the hurt like anything. They also left me with weeks of inflammation and spasms in the same area. I really do not think I am going to have these injections, right now. They seem like I am going to trade one pain for another pain...why? Thank you very much for ltting me know about Dystonia. I will deffinately look it up. I think when the Drs. can not figure things out, they fall back to blaming it on the Fibromyalgia. I mean, if that is what it is, then fine. But if they are just saying that because they don't know what else to say, then that is a real downer, so to speak.

Thanks again, I really appreciate your input.

Lorie
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Last edited by lfoster21; 03-20-2008 at 03:25 PM.

 
Old 03-20-2008, 05:39 PM   #11
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Re: Excruciating Muscle Spasms?

I've never had the trigger point injections before so I don't know if they hurt or not. I do believe there are some people on the pain management board who have. Maybe you can post over there about trigger point injections and maybe someone over there can help you.
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RSD (Reflex Sympathetic Dystropy)
Cervical Dsytonia- severe muscle spasms in the neck
Arthritis

 
Old 03-20-2008, 09:29 PM   #12
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Wink Re: Excruciating Muscle Spasms?

Thanks for the suggestion, I will do that.

Lorie
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