right back at cha hon.i guess i am doing okay with the surgical aspect of my issues but the dang sling is just exascerbating the living heck out of my already messed up c spine and i now have brand new TPs where i never had them before.i want to go back to the craniosacral and myo release again sooo bad but can't in this current post op condition,just to get the TPs gone again(thank god for the lido patches and biofreeze).god it was so great to have them finally gone.this therepist actually was able to rid of two particular TPs that i had been suffering with for like almost ten years,wayyy underneath my right shoulder blade.probably from the rotator crap.now things are just really tense and tight up there in a spot that i was already referring to pre op as my triangle of hell.this area from the base of my skull,right c spine and on down thru that shoulder blade,over to the upper arm and back up again has been by far my worst area since my first surgery/fusion back in like 01? then the spinal cord surgery just made everything go wayyy down hill with the sp cord damage and my falling apart c spine mess.nothing has been the same since the sp cord did sooo much crappy damage to so many seperate areas.i am dealing with it but it just sucks to be here.i am sure you know what i mean.i just wish you and sammy were doing better.i did answer your other post inthe PM boards.i hope things go well at that appt for you hon.this crap just gets soo old so fast.i actually hit 100 on my CPM yesterday!slowly but surely,we are getting there.where are you at with yours sammy?
thanks for the kind thoughts chrissy.they DO mean alot hon.hang in there,hopefully this new doc will be the best move you ever made.big huggies to you chrissy.marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
I posted an update from the docs appointments in the PM forum. More waiting and back to my old PM.
Sammy I can't get you off my mind and I really am thinking of you lots lately. I know that your in Gods hands and he is taking good care of you. Sending a big huge hug...but a soft and gentile on...lol
All my best to you both...
PS...Brianpain really needs some support so check the pain board
Chrissy, Thinking about you to, Really glad your going for better pain managment & to see another surgeon. Does not hurt to get another opinion.
I am slowly trying to do somethings I have been putting off. Sore. Everday is different. My daughter bumped the old shoulder the other day been bothering me alittle more since then. Heck I don't get it, the doctor said to expect this to be painful & that the pain may still climb, there are days I could scream just from being tired of dealing with it all. Sleeping abit better, thank god, scapula area real sore in the morning. Alot of chest pain lately, that area will throbb like crazy. Wearing the thermacare patches on the ribs, boy do those things get hot, went to an event for my daughter yesturday & it had me sweating, can't wear a bra so could not take my sweater off, they really throw off the heat.
I swear my bowels are bothering me as much as the pain at times.
Been really cranky, my patience is just not there, made a couple people mad last week. I am not sure if its the pain, the meds or just tired of worrying about the recovery. Probably everything combined. You get like that?
Oh well my friend we will get through it, we have to remind our selves that we still have hope & that is better then some people have, through this we have learned things others will never learn, I see it. I have a friend who's father went through his 4rth back surgery in the fall, he is close to 80, he is still in pain & his family just don't get it, they just roll their eyes. People think because you have surgery all the pain just disappears, well it don't, especially at his age. I could have really let them have it. Dealing with pain everyday is hard & people just don't get it. That is why you will make a excellant nurse, you have walked in others shoes. Words & understanding can soothe the soul. You will be able to offer support that others will need so very badly, so hang in there, you'll get there yet. I am worried about memere to.
Marcia, you go girl, boy you have passed me up. I am at 90 on one 85 on the other. It really pulls in my chest & rib area & can be painful, all that throbbing. I am going to work hard at it this week. I am so sick of the sling, it is beginning to bother my neck, but took it off yesturday evening, out most of day, & boy did my chest hurt after taking it off, I get those stabbing pains in the center of the chest & it hurts, really hurts. you have any chest pain?
How often are you going without the sling? mornings I have to have it on, I try to leave it off for awhile after showering & in the evenings. The nurse told me to be careful with leaving it off for to long when the arm is bothering me. The shoulder is still tender & pain in the scapula & down the back, pretty bad in the morning. I found my arm above my head in the middle of the night, first time, boy was I sore. My husband offered to tie me up so I'll stop moving all over the place. The sling gets aggravating doesn't it? Mine is huge & really gets on my nerves. I am getting better at night, not waking up as much, so at least thats something. Keep up the good work I'll get there sooner or later. Sammy
You know girl....I do get that way. It just gets to be a whole lot to deal with and work through and then to add bowel issues on the list. That one always scares me because of the problems I have had in the past with my colon. I just start worrying about that. That would be all I need is to have to stay in the hospital from a colon problem. Cheeze! LOL
Oh the never ending cycle!
I will be seeing my old PM next week and I think the neuro has suggested some facet blocks....more procedures. At this point I just dont even care I just want to feel better.
Memere...I know that God is taking good care of you and I am sending many good thoughts and prayers your way.
Chrissy, what do you take for your problem (poo problem), I swear even when I manage to go I still have the feeling of not going, you know. I am really tired of it. I am with you what ever would help get out of all this pain, I would try it. Can't make plans cause you just don't know how your going to feel. Every day is different, went to get in the shower & a portion of my ribs were like bulging, I had to take a triple look, Gosh if I could just get rid of one of the problems, then the neck is bothering me, I am trying to find away to prevent all this, go with out the sling the shoulder hurts, put it on the neck hurts, ribs hurt no matter what. I don't know but next appointment I want something intiated for the ribs, the surgeons card says shoulder surgeon & general orthopediac so I don't understand why he can't look into the rib problem just to kind of verify that is the problem. I don't get some how some of these doctors work. I am tired of going from doc. to doc. & hate to start new. Oh well, I will address that issue in march. If there is a wait to get into the other doc. I will have to seek another just to treat the pain, to darn much to worry about.
I am anxious to see how your PM visit goes. That would be great if this next block works, I would love to see a post by you saying "Lets celebrate, finally relief". You have a few doctors now, one of them will come up with something. I will think positive! Sammy
This is what I do and it may seem a bit over board and may be a bit much for a some one else but give it a try.
About 3 times a week or more if needed I take miralax and you can get that over the counter. Every day I eat a huge bowl of fruit and a big serving of vegi's because those are a good natural source of fiber. I also take a daily Fiber supplement called Fiber wise. It is very similar to Metamucil. You could use Metamucil because the fiber wise stuff I get from a friend and she gets it from a thing off the internet and I cant send you that info without getting in trouble, but the metamucil should be just fine.
So between the natural stuff and then the added fiber and the miralax I can get it to be fairly regular.
Sammy I know this may sound grafic but if you feel it is right there you may have to use an ennama...I know no one wants to do those but sometimes they are a necessity when taking pain meds. They also have suppositories that sometimes can get it going.
This is a touchy and embarrassing subject for all. For me it is a fact of life and the consequences of not getting it moving can be huge if I dont. So I do what I gotta do. I have been to the ER because of it and was told once that if I had waited any longer I may have had to have surgery to unblock my bowel or it could have ruptured so please dont let it get to that point if you can.
As for the rest of the things going on, I hope that your healing well and I know the pain is bad and the process is slow but remember God is here with both of us. I had a huge flare last night and it was not time for meds and all I could do was just lay down with my heating pad and think about the fact that God is with me and it will pass. I managed to get it down enough to watch TV for a while and then go to bed.
Has anyone heard from Memere????
I hope she is Ok.
Sammy let me know what happens and how your feeling.
Chrissy, I think Memere responded to one of the post on the PM board, so at least she is being heard from. I have to wait till may to get into the specialist for my ribs. I am so swollen & have a god awful headache. I am going to attempt to get my hair done friday, perhaps I will feel alittle better doing something for myself. Still depending on everyone else, I am not use to that so struggling. I will start taking something to help the old plumbing. I am behind on everything & did alittle work today, I think alittle to much. This is much more then I anticipated. It can really be hard at times to not get down. I appreciate your advice. Sammy
Sweetie I am glad that you will be going out to get your hair done. While your at it get a pedicure or something!!
I know that getting out and doing those things did help me some. It was hard to have my hair done because of my neck but I was happy to have it done. You know ... the whole pampered for a while kind a thing...lol
Hon I know how much pain your in and I know all to well how hard it is to need to depend on others to help you do simple things. The pain cycle is just an awful thing.
I posted to your new thread in the other forum, but I will say it again here...
God is with you girl!!! I know it is tough now and i totally undertand how you feel about your situation. You have already some so far and I know that there will be greener pastures for all of us sometime in the future.
Today is my long day at school and I have an exam and a test today. Last week my teacher told me that the lab today was going to be tough for me. I made arrangements with her to take the exam earlier than the normal calss time so that I could go and lay down inbetween the test and the lab. I am so not looking forward to the pain that the exam will bring to my neck, but I just have to do my best and try not to let the pain of looking down at my test distract me from thinking properly.. I know easier said than done.