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Old 05-23-2008, 10:21 PM   #1
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Idiopathic spinal cord injury

Hello. For the past 10 years, and especially the past 2-3 years, I have been experiencing increasing neurological symptoms. I have been diagnosed as having spasticity in my legs, hyperreflexia, and a clonus, and very recently have been experiencing tingling and burning around my body. As far as the neuros can tell, I don't have MS, although we haven't run a spinal tap. All of my MRIs of my brain and spine are normal, and we are just waiting on evoked potential tests. The neuro is suspecting that I have suffered a spinal cord injury somewhere over the past 10 years, either from a spinal tap gone horribly wrong when I was 11, or from some kind of infection. They have discussed the possibility of an undiagnosable neurological disease as well, something unknown to science as per the current technological limits. I admit that it was possible that the LP injured my cord, however, I don't know if a spinal injury can progress after 7-10 years. I have really become much more disabled over the past few years, from being ambulatory, to crutches, to wheelchair, with increasing spasticity and neurological symptoms. Additionally, the last neurological exam showed decreased sensation on the bottom of one foot. Does anyone have any insight as to if this sounds like a spinal injury, or something more systemic? Thanks!

 
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Old 05-25-2008, 05:25 PM   #2
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Re: Idiopathic spinal cord injury

Hello - When you say your spine MRI was "normal" what exactly did it say? Did it have any mild findings? There are plenty of people that have significant problems with what the doctors think are mild MRI issues that should not cause any symptoms. Can you post it here?

Have you been tested for Lyme? There are two board members that were here and have moved over to the Lyme board - read their stories and ask them a few questions. They are braveheart07 and monrog.

Last edited by PNo; 05-25-2008 at 05:26 PM.

 
Old 05-27-2008, 12:01 AM   #3
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Re: Idiopathic spinal cord injury

I have been tested for lyme several times, both titers and Western Blot. I was even treated with IV antibiotics for lyme, just in case I was getting false negatives. The MRI results are normal except from an extremely mild slipped disc in my neck, but the doctors tell me it is not even close to involving my spinal cord, and not causing my neurological problems. I had an MRI of the thoracic spine, but I didn't receive the results of it for some reason. I'm waiting on evoked potential test results.

 
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