hate to bother anybody but iam really confused about what i have.heres some of the things they say are wrong. Severe stenosis of both sides of body worse in left,spondylosis,nerve damage,nerve root damage,disc pressing on spinal cord,osteoporsis,and possible stroke and blood clot.Iam really confused about all this stuff,one dr said back disease,is there such a thing,i dont know which of these things to address first,or what to tell my neighbors who know i havent been out of the house in a month and that was of course to go to pm dr.iam scheduled for facet shots tomorrow and although iam not scared of the shots themselves i am scared of getting any worse then i already am. The dr seemed so smug about it like it was funny,when i couldnt remember what he said,he looked at my sister-in law and said they never remember so he wasnt going to explain it.i think this pain is starting to make me crazy,iam usually very nice and i must say i dont care for the person i am becoming,the dr also said iam young for this,for what?i have know choice but to get better there is no one else to do my work,i have to tell you all that i think you are all very brave with great atitudes,and iam hoping it will rub off on me.please help if possible. thanx. mary
Do you have your results with you, Marywoo, or can you ask the Dr's office for a copy of the report. This is your body and your pain, and one thing a lot of us forget, I think, is that WE are employing the Doctor to do his job, not the other way round. No different to paying the accountant or the plumber for their expertise, and yet we wouldn't let them treat us with the condescension we allow from some of the medical profession. I stress the "some", because most of them aren't like that.
If you had a copy of the reports, there are people on here who could explain it to you. What does your SIL say, if she was with you when the Dr. told you these things? What is her impression of what he was saying?
I meant to add, Mary, why are you worrying about what to tell the neighbours? You only have to tell them that you are under medical care for spinal problems. I find that most people who haven't had back/neck problems themselves, don't really understand the structures or complications of the spine anyway, and it's easier just to say that you have problems rather than try to explain the details.
Sorry, I mightn't fully understand the situation with your neighbours, but don't add more stress to what you are already dealing with by worrying about what other people are thinking. I used to be terribly self-conscious before my back surgery, that people would think I was a malingerer or something, because there is nothing to actually "show" how much pain you are in, when you look well otherwise. And I had some family who actually said, "Oh, look, we've all had backache at some time or other, and if you just get your mind off yourself, it goes away". I don't honestly know what they thought when I ended up having surgery.. that the Dr. did it to make me happy? It's simply not worth worrying about what other people think. On here, someone wrote about 2 doctors who admitted not understanding their patients' pain until they developed similar problems themselves, and then they knew. Perhaps all spine doctors should be ex-patients? But then how could they bend over the operating table for hours at a time?
I'm rambling, sorry, but just want to send you hugs and best wishes.
Lillydilly, you are so right about everything you said,I am on my way to get the facet shots appt at hosp is 7;15 and i am scared to death,i already had the esi and i know they dont hurt but theres something about being in that atmosphere with that scrub hat socks and gown that just freaks me out.i do have copy of reports i will put them on here later because i dont have time now,i cant tell you how much i appreciate your reply especially this morning its keeping my mind off the hospital,my real fear is this will not work and then back to ground zero.the reason i worry about the neighbors is i use to be the one who baby sat for free and enjoyed it,and i was supposed to go to a communion party and fully attended to go when i got on my daughters eptiliptical machine,just for a minute really 1234 thats it and man have i sufferd for that so i did not make the communion and i never called because like you said if people cant see it they really dont get it,i also had to stop working which is very depressing,i thought i was better yesterday (of course right before shots) then did one load of laundry just one and had to go back to bed.it kinda makes you feel worthless,so iam praying these facet shots will work and i can start walking again,because personally i am done with the other exercises,they just make me worse,sorry to rant on iam a little nervous,and my family doesnt understand,they think the old me is coming back and i now know she is gone and i must start to like the person iam now.you are a lifesaver lilly i dont know why it helps so much to talk to some one with similar problems but it really does,probably because we dont judge each other,i cant imagine what would make someone think any one would fake such pain,but i always hear people doing that,and wonder what they would think if they were in our shoes. lilly i hope you have a blessed day you are a very caring person and i hope you have a pain free day.God bless you for listeningmary
How did you get on, Mary, at the hospital? I don't mind how much you "pour it out", because I'm in limbo waiting to see the surgeon in 5 weeks, and just from waiting about, I've managed to convince myself I have every disease from brain tumour to MS, and all the others I haven't even heard of. Then I feel guilty for having a pity party for myself because I hear of people and little kids who are really suffering terrible things, and in comparison, my neck pain is nothing to that. When my hubby had back surgery, the doctor told us that anything which affects your physical nerves, also plays havoc with your emotional "nerves" too, because they are all connected, besides the pain and handicap taking it's toll as well. The other day my hubby asked if I'd like a cup of tea, and I just snapped, "No". When he raised his eyebrows at me, I explained, "I know, but I simply can't be bothered to say, No Thankyou...just saying No was enough effort for today". Ok, we laughed about it then, and he knows I'm just feeling miserable.
It might sound like a cliche, but in all honesty, I've found that a sense of humour keeps your head above water, at least, while you find solutions and healing. Have to dig deep to find it sometimes, but don't let go of humour and hope.
Cheers from lily
mary
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