I'm not all that good with "intros" but I'll do my best to explain what is going on with me.
I have Tourette's Syndrome with head/neck jerking, noises, cursing, etc. I've had this condition since I was a small child and it has only gotten worse as I have gotten older (I'm 45 now - and male).
I was also in an automobile accident 3 years ago in which my head slammed very hard into the windshield. This, in addition to my head/neck jerks lead me to have an MRI (in fact I've had several). The findings were that I had compressed, "leaking" and herniated vertebrae.
My symptoms throughout all of the head/neck jerking have only gotten worse as well. From time to time I will jerk my head with such force that I can feel an electric "jolt" go down my spine and my head will feel really foggy/dazed for days afterwards along with tons of anxiety (I suffer from anxiety/panic attacks too).
About a week ago, I had several such head/neck jerks throughout the day as well as this tic I have where I "scissor" my lower jaw back and forth with quite a bit of force while making noises and cursing. As a result of all this, I'm guessing a nerve (or nerves) got pinched somewhere and for several days I experienced tremors and muscle twitches in my lower jaw and lip. (very scary!). Also, ever since that day, my brain/mind feels spacey, dazed, soupy, foggy, syrupy, zombie-ish, lots of anxiety, nervousness, fatigue, some light-headedness, insomnia/early wakening, etc. Finally, it felt for at least 3-4 days like I was breathing underwater and at one point I had a hot, shooting sensation travel down the back of my left leg.
I'm just wondering if anyone here can relate to any of this or if anyone here has every experienced any of these same (or similar) symptom as a result of cervical nerve impingement, etc. I really could use a friend right now because this is scaring me and I need some reassurance.
A few details about me...
I have a history of anxiety, panic attacks, OCD, depression (but I don't currently feel depressed), Tourettes (with head/neck jerking) and lots of allergies. I'm also a reformed alcoholic. I am 45/male non-drinker/non-smoker but did used to drink/smoke.
I have been taking Ativan for many years for the anxiety/panic attacks.
I guess that's about it for now.
Thanks so much, Steve
Every new day is the very first day of the rest of your life. Take nothing for granted.
congrats on the sobriety there steve, that IS an acheivement believe me. i am thinking that you do not actually have a leaking vertebrae but a leaking disc. the vertebrae are solid bone,thats why. but the discs in between the vertebrae do have a jelly like substance in the middle that can leak when the disc is ruptured or the annulus tears. you really DO need to have this all evaluated by a good neurosurgeon. i am wondering tho,considering the violent jerking that your condition creates in your neck,just how any real stabilization could even be done post op if you had any type of real surgery,you know what i mean? the c spine has to maintain a good solid alignment in order to just heal properly. that could be a big issue with you.
but something has to be done only becasue it sounds like your problem is progressing at this point and could become much much worse if something is not done to try and fix it. with the constant jerking of an area that has real damage to it,i am sure that is also partially responsible for the progression every time your neck jerks. you just would have to be able to keep from jerking,which as far as i am aware,with your condition is not actually even possible? or have their been meds created that help much more with that these days? you really do need to find a good neurosurgeon who is knowledgable about treating patients with c spine issues/surgery and has a good understanding of your condition too. perhaps whoever is treating your condition at the moment can also possibly find that perfect surgeon for you too? you just have a very unique and special circumstance becasue of the condition you have that will take someone with a really good understanding of what he is dealing with in order to give YOU the best possible treatment.
do you happen to live close to any good teaching type of university hospital,even if it is a few hours away? this is where i would go if i were in your situation,really. they are just much more on the cutting edge of things becasue they are a teaching hospital. they also see alot of the more rare or dire types of patients who other surgeons have told them they just cannot treat them becasue of certain factors, like kind of your situation? my son and i becasue of medical issues had to go this route too. we both got great care from alot of really great knowledgable and experienced specialists. this really should be considered in your situation too. i just really think,considering everything,that you really DO NEED someone who speacializes in your condition and doing surgery on that c spine.
i really do hope you can find that good fit with the right surgeon for your situation. i am sure he or she is out there,it will just take some phone and leg work to try and find them. but this situation i really think is going to become much worse if things are left to continue the way they are. your c spine is not really fully stable and you have to keep jerking. its not a good thing ya know? i wish you a ton of luck in finding the right NS for your job there steve, please keep me posted hon, Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.