Hi, I was wondering if anyone else has a thoracic spine hemangioma and gets stabbing pains that last about 10 min to 1/2 hr and takes my breath away. I have the regular pain 24/7 but sometimes get that other awful pain. Thanks for any help
Last edited by soapies777; 10-20-2009 at 05:32 PM.
Reason: i cant type right got infraction typed u instead of you so don;t respond that's what u get 4 trying 2 help thanks anyway
Most of who have a hemangioma have so many other things going on along with it, it would be difficult to say it was from the hemangioma. Is that the only finding on your MRI? If you type the text from your MRI I bet feelbad will look it over for you - she is the best expert on hemangiomas.
thanks for the vote of confidence there NP. just EXACTLY where is the angioma located, inside your cord or some other place at the T spine? what level of the T are we talking here? knowing the exacting location really really is important. like NP asked above, if you could type out the actual summary at the very end of the MRI report word for word in how the interpretting rad saw it, that would really help us to help you in the very best ways(the way any given rad sees things then words them really does matter alot in some cases).
if for some reason you do not have your own copy of that MRI and any other testing results too, i cannot stress highly enough just how truely important it is that you just obtain your very own copies of all and any testing results that are done on you, espescially having an angioma that can bleed and change in size as well. there are actually many many really good solid reasons that people should always obtain copies of all their own medical records with very real importance upon ANY test results. i keep all of my stuff in an expanding type of folder that i can bring to any doc appt or even the ER if needed. you just have everything right there in one little folder. but you DO need that report if you do not yet have it.
you can very easily obtain any report from the actual facility where you had it done or thru your referring doc too. but just seeing that full summary would help tons right now. this would also include any other hard findings the rad saw as well which could also bring on their own individual types of symptoms, so they are important too. its just every single hard finding the rad saw would be IN that summary. marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
ok here goes 2/2005 Abnormal signal in the T2 vertebra predominantly on the left side and extending into the pedicle uncertain of etiology but is suspicious for neoplasm, posssibly metastatic. Bone scan is suggested. ct scan 3/05 there is a 1.6 cm lesion in the t2 vertebrae on the left side extending into the pedicle which correlates with the mri abnormality most likely this represents a hemangioma but this area was poorly visualized due to the patients body habitus. i would suggest a follow up mri in three to four months to confirm the stability of this area and exclude and early neoplasm. there is an area of coarsening of the trabecula measuring 1.6 x 1.1 cm. the appear is suggestive of a hemangioma although these typically do no extend into the pedicles but is possible. 7/05 1st neurosurgeon appt. on her mri she has what is almost certainly a hemangioma of the left side, encroaching a bit on the right of the body of t2 and extending into the pedicle on the left. they often do not get into the pedicle but in her case no doubt it is. This lesion has been present for a long time, of course, and is now involving the periosteum and i am sure that is where her pain is coming from. it is possible to deal with these lesions, but not here at my little service. she needs to go to the spine service because if they agree this lesion needs to come out, it has to be done with a transthoracic approach, total removal of the angioma, perhaps with a prior embolization and strut grafting with a threaded cage and couple of rods and screws. i have explained all this to her and her compainion. was sent to spine service and they laughed at me. 8/08 mri mild disc bulges are present at t5-6 and t6-7 which slightly indent the thecal sac. t2 vertebral body hemangioma is again seen. multiple degenerative endplate most nodes are seen in lower thoracic spine. the conus medullaris is low lying, terminating at l2-3 junction mild disc bulges at l4-5 and l5-s1. i can't find one of the mri's but it did say biopsy which noone would do too risky. 8/09 xray the vertebral body height is only minimally narrowed anteriorly at t5 through t10. there is disc space narrowing and there is minor spurring at the endplates. small schmorl's nodes are noted. i do not see signs of a lytic destructive process or significant compression deformity. the vertebrae appear to correspond to finding on mri from 9/07 accounting for obvious technical difficulties. incidental note of calcifed gallstones relatively large 3 cm and 2.4 cm. the mri from of 07 the one i cant find says the t2 is enlarged due to hemangioma. Thanks feelbad
I feel uncomfortable commenting because I have had no personal experience with this type of hemangioma. I do have one that crosses two at T10-T12 but it has not invaded anything and is clearly of the vertebral type.
If it were me and I had these reports, I think I woul be uncomfortable with the diagnosis. Particularly because it clearly states on the MRI report it cannot clearly be identified even though later the neuro says well it must be but I don't get a real comfy feeling from that either. Most of the other stuff doesn't look too threatening, but I think I would be finding a highly trained surgeon in thoracic spine and get evaluated by that person.
On a side note have you had any previous cancers? If the answer is yes, then for certain I would be seeing some additional opinions to clear the questions up.
Thanks neckpatient for responding. I have been uncomfortable with the diagnosis but was seen by neurosurgeon and 2 different hospitals and they won't do nothing. I don't know where to find a thoracic surgeon. I don't have any previous cancers and am 35 years old. The mri i couldn't find suggested biopsy but neither hospital would do it too risky. I just been living in awful pain. If you have any suggestions on a thoracic specialist let me know. It's just depressing living like this. Thanks again