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Old 11-26-2009, 06:32 PM   #1
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Can a syrinx cause so many problems??

I have had back problems for several years and recently had an MRI done to discover a syrinx in my spinal cord from the T5-T11. I have no chiari but an incidental discovery was a paralingial (sic) cyst in my throat. The ENT wanted to do a biopsy but after he called the surgeon, he said it was too deep for a biopsy. ENT said just come back in 3 months for follow up.
After saying that, I used to have bad neck sweats for several years until the past few months they just stopped. several years ago I used to get thrush once a year and now have progressed to about 6 times this year. I have a nerve in the back right of my head that is irritating me that usually causes daily headaches whereas no asparin of any kind will get rid of it. I have swollen throat glands nearly everyday. My throat feels like it's on fire I was recently prescribed Nexium to stop it. My back feels like i'm going through a severe case of the flu. Extreme soreness and tenderness. My lower back aches all the time and can't do anything to help out around the house. I usually have energy in the morning that tapers off to fatigue around noon and feel so tired I need to take a nap just to make it through the day. I recently started having an ear ache in the right side for about 3 weeks.
The neurosurgeon won't operate on the syrinx stating "he's seen worse." The ENT won't biopsy stating "it's too deep in the neck." Does anybody know what tests I should be asking for? Am I dealing with a bunch of crappy doctors? I'd really appreciate some advice at this point. Thanks.

 
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Old 11-30-2009, 10:40 AM   #2
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Re: Can a syrinx cause so many problems??

hi there,im sorry i cant answer your questions but im curious to what sort of back pains you get with the syrinx. just achey?do you get any throbbing or sharp pains??? but from what i ve heard about syrinx in the spinal canal,its a very serious condition and i would definatly get a second opinion on that . good luck x

 
Old 12-01-2009, 01:19 AM   #3
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Re: Can a syrinx cause so many problems??

The Dr's think I was born with it. I used to get dull ache in the lower lumbar and a between the shoulder blades that would be contant all day. I say used to because it's been happening since I was about 18 years old. I always thought it was improperly lifting or something along those lines. Sleep wouldn't make it feel better and as a matter of fact I would sometimes wake up from it. On occassion, I would have temporary paralysis on the lower extremeties. I also would feel drained or tired to do any lifting each day. I always thought it was odd how I would work out so hard but feel so "weak" most of the time. Since I've been on lortabs, it felt like the weakness and pain threshold has been broken as well as getting more sleep. The past few weeks has taken another turn and the symptoms are back but now the whole lower back feels weak similar to flu-like symptoms. I've also gotten sore and stiff neck with daily migraines. I tried the Medrol steroid pack and it alleviated most of the pain except for the migraines. Everything came back the day after theclast dosage of the medrol pack.
I'm thinking of having a second opinion with a specialist in the Dallas area since the Dr's in West Texas are known to be not very effective in diagnosing/treating any out of the ordinary condition.

 
Old 12-05-2009, 09:12 PM   #4
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Re: Can a syrinx cause so many problems??

Hi I have been DX with a Syrinx C5 to T8. I was told by my Neurosurgeon it is there since birth and it developed along with a Bone spur that was pressing against my cord.
The symptoms I have are loss of feeling on the palms of my hands, pain and twitching in both feet and in the legs below the knees, neck and shoulder pain and complete loss of reflexes in both legs....
The issue with a syrinx is to find the cause. I know you say it is Congenital but often it develops due to other congenital conditions such as Chiari Malformation, Tethered cord syndrome, and other such conditions that can lead to a syrinx forming in the spinal cord.
Hope this helps...

Last edited by syrinx09; 12-05-2009 at 09:19 PM.

 
Old 02-11-2010, 12:40 AM   #5
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Re: Can a syrinx cause so many problems??

My Syrinx developed from a car accident. My physician told me I probably had it since birth. However the pain management DR was intelligent enough to look at an MRI I had in 2008 and compare it with the MRI I had at the end of 2009. The 2008 MRI did not show the Syrinx. The 2009 MRI did show the Syrinx which was taken 8 months after my car accident. I have read that Syrinx can take months or even years to appear after trauma or accident related Syrinx.

Last edited by Syrinxdiagnosed; 02-11-2010 at 12:40 AM.

 
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