Re: Spinal cord injury MRI results
just how really severe was your actual spinal cord injury pre op? what was being impacted at that cord level and by what and how much? if you either have or could get your hands on THAT particular MRI report that actually states pre op MRI findings it would seriously help right now to better define what is possibly actually connected to the leg issues by virtue of that cord impact that would not actually still be showing itself beyond like even six months in some cases in the actual spinal cord itself upon an MRI? has your NS ever mentioned something called myeolpathy or clonus going on in either leg? any spasticity going on or what they call "hyper reflexia"(very brisk reflexes) knowing what was actually there pre op just really really would help now to best help you.
i found out when my spinal cord actually was cut into one third of the way in order to remove what was a 2x4x6 mm glob of blood vessls that DID really casue me some very profound spinal cord injuries that the cord area does not actually always show real defintiely "there' cord damage after certain activated chemical processes just kick in from the cord trauma even being there, after even less than six months to a year.
what i saw upon my two month post op MRI just was alot of areas where i could still actually see right where they had cut into my cord area, a still there but smaller space that the removal of my cavernoma left behind, BUT a 'process" called myelomalacia was ALSO going on. what i found out about the myelomalacia was that this just IS a very normal process that occurs to kind of rid the cord of actual scar tissue that is dead? it granualizes that tissue then the macophages(our bodies little clean up crew?) just move in and kind of 'eat it up" and take it completely away so you cannot even SEE where actual damage is at anymore but its still there kind of thing? at my one year MRI, i kid you not, on that one very long side view pic they do that just shows that whole lower brain and the spinal cord area, it looked absolutley pristine. totally without ANY true indication of what my very real spinal cord damage was affecting in me by then. very insane just seeing how all that very real damage just got removed out. but other chemical processes also kick in too so alot of what did show pre op and immediately post op as actual damage(going by syptoms you are showing is actually the best way to truely determine actual cord damage areas after the fact)just kind of dissappears over pretty much that first year following cord injury. but this too of course depends upon the true level of your spinal impact and how it was impacted too? but i just wanted you to know about what just can dramatically in some cases, actually not really show IN the actual cord at times. freaked me out let me tell ya.
just what have your specialists actually told you is the damage within your cord. what was all affected or impacted? are you feeling anything really insane like 'perceptions' of things actually happening to your body at all? cord damage just can create some really insane and off the wall very real feeling perceptions like there just IS someone "doing' something to a particular body area at times? it feels sooo freaking real at times.
but like i said, just knowing from that first MRI report and anything you were actually told was indeed damaged or even impacted would most defintiely be playing a part in what anyone could have happen now. it all depends upon extent of impact, where it was and how much actual damage was left behind, even FROM the surgery to fix the impacted cord areas too. any info you can provide for me would just help you in the very best ways. so sorry you are having to deal with SCI too.marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.