It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Spinal Cord Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-05-2010, 08:00 PM   #1
Newbie
(female)
 
Join Date: Apr 2010
Posts: 3
oshie11 HB User
Question Living with Congenital Scolosis and Spina bifida occulta

Hi, I am a 23 year old female attending nursing school. I was diagnosed with a tethered spinal cord(spina bifida occulta) at 18months of age. Subsequently i was also diagnosed with congenital scoliosis. I am missing a bone in my lumbar spine (L5 i think). I had surgery to unteather my spine at 8 years old in Bostons Childrens Hospital. I also had a spinal fusion at 12 years old (at Albany medical center in NY) where they also untethered the spine again.
I feel like I have a lot of random health issues and I'm wondering if anyone else in my similar situation have as well. I am constantly tired and exhausted after any activity. I have IBS, headaches/migraines, all over aches at times and other things. If anyone else has a similar situation I would love to hear from you!!

 
Old 05-24-2010, 12:40 AM   #2
Newbie
(female)
 
Join Date: May 2010
Posts: 2
MandiH1980 HB User
Re: Living with Congenital Scolosis and Spina bifida occulta

Hi I am 30 and after a life long battle with back pain and unsteady gate they just diagnosed me with SBO and tethered cord. I too have IBS and severe migraines. I too have issues with my L5 half grew fused to my tailbone and half grew as a nomal vertebrae. I was told that the IBS was actually nerve damage from the tetherd cord and there was nothing they could do for that. As for migraines, mine usually caused a stiff neck and numbness in my arms and hands. If this is happening to you I suggest a neurologist. The reason I say this is with tethered cord there can be a brain abnormality called chiari malformation. This can cause headaches and arm numbness. The headaches usually get worse when you sneeze, cough, yawn or any of those autonomic responses. Hope that info helps you.

 
Sponsors Lightbulb
   
Old 05-25-2010, 01:54 PM   #3
Newbie
(female)
 
Join Date: Apr 2010
Posts: 3
oshie11 HB User
Re: Living with Congenital Scolosis and Spina bifida occulta

MandiH1980,

Thank you so much for responding! I have heard of a chari malformation but I never thought about it affecting me with the SBO. I am going to bring up going to see a neurologist with my primary doctor. I'm also fascinated about the IBS that you have as well! Very interesting. Do you have any urinary problems? I have had a lot of UTI's and kidney issues and I am curious if it has to do with the SBO. Thanks again for writing back

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Spina Bifida neener5151 Back Problems 4 05-24-2010 01:00 AM
hip pain and spina bifida occulta cg1982 Back Problems 1 09-25-2008 09:24 PM
Anyone have Congenital Scoliosis? Bonnie Jo Bone Disorders 4 06-21-2006 08:59 PM
Spina bifida question - need answer!!! JEDDD5 Spinal Cord Disorders 4 03-21-2006 05:34 AM
Spina Bifida from unrelated GI X-ray ssdesigns Spinal Cord Disorders 0 05-27-2005 01:43 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



WebDozer (269), jennybyc (197), Realhousewife (42), kenzibenzi (33), NJ Ldy (32), SpineAZ (31), frenchfri1003 (21), teteri66 (19), ladybud (19), feelbad (18)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (771), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 11:26 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!