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Old 06-09-2012, 07:21 AM   #1
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update, since neurosurgeon



hi jenny... hi web.... hi everyone


jenny....good the cymbalta is working for you, i think good idea to stay on it, and you have got over the nasty side effects.....i cant take snri"s as they make me so ill....i also have many probs with side effects taking meds and allergies too......also im allergic to metals

so jewellery has to be solid gold .........he he ...but im not kidding

actually that was a concern about the hardware for me ......something that needs to be brought up

anyway i cant take snri"s but i do take sri"s and they also can help with the spine, but not in any dramatic way that i can see

cant take lyrica......made me too ill, so not trying anymore of the "nerve meds"

must feel so good now that you can feel your skin pruning up after so long, thats great

glad youve sorted cat and now hes a little baby

going to new post

 
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Old 06-09-2012, 07:48 AM   #2
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Re: update, since neurosurgeon

right back.....

jenny are your hands feeling any better now after the steroid shots?

i got my results of lung function test and dr has put me on another inhaler,,,,,this one is a steroid .........great.....not

allready on one inhaler ...now 2 every day , all getting too much, but not being able to get your breath is far..... far worse.......so jenny i have bin reading vin"s posts....... hi vin if your reading .......as he has other health issues too.......i see they kept him un der for 2 days intubated.....i think it was


so ya no all that worries me too.....

web.....neurosurgeon does not do laminoplasties and i think very few if any do here

still sayin over just C4-C5...... i dont get it either.....as scans say they nearly the same and also c3-c4 and as you say c6-c7 aint great

when i asked him why on a prior visit he said its will leave you with less movement........last visit i said to him ... what % difference is there in the 2 levels .......he said 50%

so that is very different from reading the report.......so i guess he seees it different to the professor who wrote the report


my canal is ......well was normal......not congenitally narrowed......i asked if he cud measure the osteophyte disc complex at c4 - c5 .......its 6mm

pretty cool he cud measure i thought ... i didnt no if he could......

but then i forgot to ask about c5-c6 and also what about adressing all the osteophytes in all those foramina levels to c7.......so

he wouldnt be doing that , as he wouldnt have access......not mention anything about doing foraminotomies

so web , jenny , what do you think?

he sending me off for a radioactive spectrum bone scan , because i brought up the no walking , squatting issue again.....

hes not sure what will be helped by the cervical surgery , and i understand that.......bit im trying to get to the root cause of the no walking

so i found some info thats backs up my theory....... and looking into that.......

ohh just remembered , he said can do other levels later....thoughts please on all this ......or questions

hope this post finds you as well as you can be

hugs to my friends jenny and web

xxx

 
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Old 06-10-2012, 03:57 PM   #3
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Re: update, since neurosurgeon

Hey Kiddo...how are you????

Yes, my hands are a lot less painful after getting my palms injected but the trigger fingers are still "triggering". And I'm going off Cymbalta...messing too badly with my blood sugars and I don't want to add extra diabetes meds....I just got it doing really, really well and now I'm sky high. Oh well....

I guess the surgeon is afraid to do more than 1 bad level right now...like let's do 1 level and see how much relief you get and if we need to do another, we can go back in later. The front entry ACDF is pretty easy compared to posterior so it makes me think he wants to do the minimum for now. I guess it can't hurt and of you do okay and get some relief, then he'll move forward with more. This is exactly the same approach my doc is taking with my lumbar spine as I have lax tendons with the back muscles due to Ra and tore the huge anterior ligament that holds the spine together from the front...so I'm a bad surgical risk but what he did....the absolute bare minimum, worked! So now he'll be less worried about doing more if needed.

So this may be a very safe approach and may not get you the immediate relief you want but it's a start. I guess that's my take on it.

I used to do the steroid inhaler and the rescue inhaler....now I'm allergic to all the steroid inhalers. A pain in the neck but I just remember my best friend's 9 year old granddaughter just finished 6 weeks of proton beam radiation on Wednesday for an aggressive cancer of the tear glands in her eyes....now she'll be putting eye drops in her eyes ever couple of hours for the rest of her life and will never have eyebrows again. And she'll have to undergo check-ups for a recurrence every 6 months for life....it's considered a chronic cancer that is never curable. And she's an identical twin so she sees her former self every minute of the day. An extra surgery or an extra inhaler makes me feel so whiny now! I'll never complain again!

I went to my granddaughter's dance recital yesterday(she's 4) and I heard so much whining and so many tears over a tear in a outfit or a misstep or something so insignificant, I just had to vent somewhere! We need to be reminded every now and then that some people have more problems than we do....real life threatening problems. Wish I could have gotten on that stage and reminded all those stage moms and whiny kids!

We have some very real problems too...but 9 with life long cancer...that will in all likelihood come back in her brain........now that is tough.

Hang in there.

Jen(thanks for letting me vent)

 
Old 06-14-2012, 09:07 AM   #4
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Re: update, since neurosurgeon

hey jen ,
no probs re the venting.......its very hard when its a child.........

along with my spinal all areas and cord compression and the inability to walk very far or squat down and get up and my recent diagnosis of PMR and the many side efffects of the high doses of steroids that has now seen my weight double.........
and then to slip on my kitchen floor , land heavily a
on one knee and break my patella and then all the drs telling mme that my bloods n urine are showing all the signs of MM multiple myeloma cancer and sent off to oncologist

all in the space of a couple months......and the fear and going to dark place about the thought of paralysis.......

well its bin really hectic .....so many specialists appts and tests more meds.....

whole lot of other health probs too and on my own.......

had the nuclear medicine injection scan today .......see what that says

hugs verity

 
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Old 06-14-2012, 01:55 PM   #5
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Re: update, since neurosurgeon

I'm so sorry Verity.....that is way too much for anyone to try to handle. I've had those times when goes from raining to the worst downpour you've ever seen. You just have to try to hold your head above water.

Now comes the need to prioritize...mutiple myeloma comes first.....how are the tests for that coming? Prayers here have already begun.

Kneecap will heal and your back can hold on....first things first.

Hopefully they found whatever it is early. That is what is so sad about the 9 year old...her main symptom was intense pain in her eyes when she cried and so all the docs thought it was psychological and not physical. 9 year olds cry a lot and being a twin, they thought she was trying to get more attention than her sister and so she complained of pain along with the tears. Delayed her diagnosis by months...very crucial months. Let's hope your back may have helped to find your bigger problem earlier than they would have.

Let me know what they find and as I said, prayers are winging their way to you.

many, many gentle hugs................Jenny

 
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