Hello Pebblebeach3 -
So very sorry for all the surgery and other serious health conditions you have endured
Although my neck problems are nothing in comparison, I do understand how you are feeling. It can all be so overwhelming. Know that you are not alone - this board is a great place for support from others who can relate to what you are dealing with.
I also started seeing a therapist because I didn't know how to be "sick"
. Being an over-achiever my whole life and suddenly having to learn to accept my new physical situation ( limitations, fears, lack of adequate pain management etc. ) hasn't been easy.
Have you found therapy helpful in dealing with your health issues? (I have not) You said you are limited with activity, not able to get out much and you live alone. I'm sorry, that must leave you feeling isolated and lonely at times. Do you have family or friends for a support system? Someone who checks in with you regularly? I am considering looking for a support group for CP sufferers. Would that be something you might consider? It surely would be less expensive than therapy and connecting with others in similar situations could lead to new ideas for treatments, doctors, ways to deal with our challenges ...
I'm sick of doctors appointments and inadequate pain management too. Today's PM is expensive (injections, RF ablations) - it's just an added stress for me as I have no health insurance.
While I'm certainly no expert, have your doctors tried other adjunct meds that might help with the neuropathy? What about something for the anxiety that goes with this lot in life? I take Klonopin in very small dose, but it has helped with my pain, anxiety and helps me sleep a little better. Are you able to sleep good with all this going on? A good nights sleep can make such a difference in pain as well as overall ability to deal.
With just all the spine issues you have , it sounds like your pain isn't being controlled enough to allow you to "live" more. Have you discussed this with your PM doctor? Isn't is called Pain Management
not Suffering Management
!?! (sorry for the rant...).
Even though you are feeling frustrated and down right now, give yourself some credit for being such a strong person to have come through all that you have.
. Sorry, I don't think I have been much help, but wanted you to know you're not alone! Post here any time you feel the need to vent or need support ... or someone to just listen that "gets it".
((Hugs)) & Prayers