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Spinal Cord Disorders Message Board
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Old 12-11-2012, 08:11 PM   #1
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Join Date: Dec 2012
Location: Las Vegas
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softee33 HB User
spina bifida occulta: Can I help U?

At first it began with pins/needles in my L leg. Then the leg began collapsing under me. As time went on I began having pain across my hips (L side worse) that I needed a wheelchair, I couldn't walk it hurt so bad. I found a neurosurgeon in the phone book. I didn't have time by then to ask around.
I had an MRI and he said the MRI report it was inconclusive but due to my hip dysplasia I already had, he agreed to the surgery.

I read the post op notes my surgeon wrote up. During surgery he found the SBO. Also some abnormal pedicles (vertebral notches) he corrected. He never told me he found these! I read my medical records.
It took a year of determination to get a doctor to listen. It was only when I couldn't walk that I was taken seriously. They don't like it when you're smart, either. At any rate, PLEASE, if you suspect something serious is wrong with your back (or someone you know) get to a neurosurgeon because they are the appropriate doc for spine abnormalities. Two years ago I had up/down fevers & fatigue but doc wouldn't respond to me. Then I learned I had breast cancer. The body will tell us its sick if we listen to it.

 
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