Too much pain - Spinal Cord Disorders Message Board

PsychLea · 03-27-2003, 11:39 PM

Hi guys,

I am having such a hard day. The pain is the worst I have ever had and I haven't slept in two days, which makes it worse. I had 40 mins of heat and stim at PT today, but it only helped for about an hour, before the spasms and nerve pain started again. I am so discouraged.

Finally took some hydrocodone tonite and going to try a Sonata again, although it didn't help me sleep last nite. Maybe the combination will do it.

I really, really, really.... did I mention really don't want to have surgery. Have one more epi next Friday and going to definitely talk to my PM. Throwing antidepressants and Vistaril at me, is not the answer. I have never been one to take pain medication, but the Ultram is NOT strong enough.

Thanks for letting me vent. It is so frustrating.

------------------
God bless,

Lea

Debbie2 · 03-28-2003, 05:08 AM

Sorry to hear how you are doing here Lea, I don't think any of us ever wanted surgery. Just wanted to be out of pain... and like you pills and therapy were not an option for me.
Hope your day improves and you get some sleep. Off to Cleveland, I'll have alot of catching up to do on Sunday. Working one half day first.
God Bless you Lea,
Debbie

------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.

mel333 · 03-28-2003, 05:40 AM

Hi Lea,

I'm so sorry your in so much pain. I hope the next epi helps. Have you had a nerve block? I remember reading one of your old posts re double crush syndrome. I guess your dr's recommend surgery. I am contemplating it also and I am also trying to do every injection first. The nerve pain sounds like a worry and sometimes it's best(as far as I hear) to do surgery before it progresses. The epi does neutralise it and may buy your more time. Take care,
Mel

winged phantom · 03-28-2003, 06:31 AM

Lea, I'm awfully sorry to hear you are in so much pain that is not being helped by anything. I know how miserable and discouraged you must feel. Try to reach out to this board and feel all the good vibrations comin' at ya, though; we're all here to try to encourage and cajole you.

Ok, first stare at this

for a while. Repeat after me,"My eyes are getting heavvvvvyyyy."

"I am getting sleeeppy." Wait for the fourth

, then drag yourself to bed and try to sleep.
wr

melanie dawn · 03-28-2003, 07:14 AM

Lea,
I hate to hear of your increased pain and spasm. And as you know when you start losing sleep , everything starts to snowball.
You know I understand about the meds. I was on nothing except vitamins before this.I battled my Chrones disease without ever taking meds for it, I am always so sure that I can overcome everything naturally . I held out so long against taking anything. But there comes a time when you need to take the meds. It's the quality of your life that you are dealing with. When you can't sleep, relax, laugh, or function because of the pain, you know it is time to take care of it, anyway you can. For now it means changing your meds, what about oxycontin or MS contin? I know, i didn't want to take these either, but eventually I had to give in. When I got the mscontin script , it took me a week to take one. But Lea , what a difference it makes to get a handle on the pain. Nothing makes it go away completely, but it can be made more manageable. You are so strong , but please take it easy on yourself.
I dread surgery, and after having a huge bowel resection 5 years ago for Chrones , I swore I would never have surgery again. But you know what, here I am eagerly awaiting surgery, I dont want a life of continuing pain and loss of function. I'm rambling again, but please, do what you need to do, get your meds addressed so you can control your pain, and if you need surgery, maybe its time to think about it. For you the surgery is not just about pain, you have cord issues, that probably will need to be surgically taken care of at some point. You dont want to change from pain to loss of use issues. My heart goes out to you Lea, and i see a change in you. You were the joker and good humour for so long here. Now I see you being dragged down. Pain is a monster that eats at your whole being.
Please take care of yourself. YOu are in my thoughts and prayers, I hope you can feel the hug I am sending you. Love Mel