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Old 02-02-2003, 08:22 AM   #1
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dennfore HB User
Question Adult onset Teathered Cord Symdrom

Does anyone have any info regarding this? I have recently been diagnosed with this "condition", coincedently (or not?) immediately after a low back injury/trauma. ANY information or links will be greatly appreciated.....Thanks.

 
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Old 02-02-2003, 02:34 PM   #2
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plymouth HB User
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Look into st. john method neuromuscular therapy. They have some success with this when postural distortions are involved, which can result from trauma.

 
Old 02-02-2003, 08:31 PM   #3
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Hi Dennfore and welcome!

I have a tethered cord due to spina-bifida and the resulting scarring caused by the many spinal surgeries I've had. A tethered cord is usually caused by scar tissue that restricts the normal movement of the cord in the spinal column. It does not always require surgery, unless you start to experience loss of motor function or changes in bowel and bladder function. Mine will require surgery, this will be my second un-tethering. The surgery itself will often cause additional scarring and tethered cords do re-tether.
I'm guessing that the trauma to your back may have generated some scarring around the cord.

I would be happy to answer any questions you may have about TCS and my experiences with this condition. I have also learned quite alot by simply doing a search for "tethered cord syndrome". Any way I can help, please let me know.....franjo
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Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.

Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Tethered cord release-2003
Fusion with instrumentation with lots and lots of screws-2003

 
Old 05-10-2003, 04:58 PM   #4
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vaangel HB User
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Dear Franjo,

My 29 year old daughter has just been told that she has tethered spinal cord. I would like to learn more about this. This is going to a surgeon in June. Any information would be greatly appreciated.



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Old 05-10-2003, 05:29 PM   #5
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winged phantom HB User
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Dear vaangel,
The boards seem pretty quiet today, so I just wanted to welcome you to the board. Teri (franjo) will also be having surgery again in early June! If you want to know more about her story, you can search for her posts here using the search link. Teri is a terrific source of strength and inspiration for this board, and I know when she sees this note, she will be glad to help you with your questions. Good luck to you and your daughter.

------------------
  • 12/29/89 C5-6 Microdiskectomy (no fusion)
  • 4/9/03 ACDF C4-7 with plating and donor bone
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  • 12/29/89 C5-6 Microdiskectomy (no fusion)
  • 4/9/03 ACDF C4-7 with plating and donor bone

 
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