Hi , I thought i should start a new thread as the other one is getting quite full.
I see you are both off for the weekend, i hope you have a wonderful time, and that your weekend is as pain free as possible. It would be so nice if you could meet up, I know how nice it was for Joanne and I , wouldn't it be great if we could all get together in a big spiney reunion!
Have a great weekend and enjoy yourselves!
Love Mel
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Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
loss of lordotic curve
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
Thanks, Mel, for your good thoughts. And right back atcha!! Take care.
Love,
~Teri
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Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Tethered cord release-2003
Fusion with instrumentation with lots and lots of screws-2003
Hello Mel,
So good to hear from you. I hope that Teri and I will have a chance to get together before her surgery. I really wish you lived close. That would solve alot of problems woudn't it.
I hope you have a decent week while I'm gone. We're leaving Sun morning. I'll check in with you when I get back. I thought I would get to ride some on our vacation but the flare up i'm having won't give me a break. My chiropractor was wondering if I might have fibromyalgia. He told me to check out the trigger points on the internet. Guess what, I think they give you a diagnosis of fibromyalgia if you have 11 of 18 positive trigger points while most people have less than that. I have 18 positive trigger points. Isn't that just wonderful. There is no cure. Mainly managing symptoms which is what I'm doing anyway. It states that an accident could trigger a major flare up. It also says that most people are able to work at least part time. I can work some jobs on my good days but I never know when those days are going to arrive or how long they will stay. Maybe that explains why I have all this pain with my right neck/shoulder/arm. Since this started in Sept. I've only had a few days that I had a few hours of pain relief. I have never had a pain free day. So is it my spine or is it the fibromyalgia, or is it both? Should I tell my doc or just play stupid? Isn't that what they want anyway? Why does my body have to be so complicated? I need your expertise please. Once again I've taken a pain meds so this might not make any sense.
love charlotte
How are you doing? Any new news concerning your case? How about your new lawyer? Have they ever called you back?
We returned Sunday from camping, and I must've done something to **** my cord off again, although, for the life of me, I can't imagine what I did. But it caused me to miss my uncle's funeral today. I started getting ready, but the pain and fatigue were terrible, I took my pain meds, and then wasn't in any shape to drive. I slept today from 1 to 8pm, which is very unusual for me. I must've needed it, and I do feel somewhat better.
I hope you had a wonderful Mother's Day. In spite of my pain, I had a great one. Take Care and I hope to hear from you soon.
Love, Teri
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Spina-bifida occulta; Congenital Scoliosis (dextrorotatory and 'S' curve, 42 thorasic and 57 degrees lumbar); Meningomyelocele (split cord @ L1); Diastematomyelia (re-sectioned at L2-3); tethered cord @ S-3; cysts on cord; various developmental abnormalities of the spine: narrowing of all disk spaces, defects in posterior arches, ectasia of the spinal canal and dura, segmental disease, sclerosis in L. iliac bone and adjacent sacroiliac joint, unilateral osteitis condensans ilium, hypertrophic facet disease L4-5 and L5-S1.
Surgeries include, but not limited to:
Lumbar fusion-1968
Fusion with Herrington Rod instrumentation-1970
Femoral osteotomy-1971
Tethered cord release-1987
Rod removal-1987
Chiari-type pelvic osteotomy-1988
Trochanteric osteotomy-1989
Tethered cord release-2003
Fusion with instrumentation with lots and lots of screws-2003
Charlotte, many cases of fibro have post accident onset. There is some really interesting work being done in the states on the relationship of fibro and check it out! cervical spine narrowing and damage. Do the online fibro search, it is a very amazing link between the two. Sort of which came first, but many of the severe fibro cases when researched show , spinal canal narrowing and neuro deficits.Interesting stuff. I hope you have a wonderful vacation, and that your symptoms behave themselves. Love Mel
Teri,
I am glad you enjoyed Mothers Day. I also had a good one, out of flare-up for the weekend. First time in 8-9 days. I like you , flare-up and have no idea why. Every once in a while, I think I've figured out all of my triggers. ANd them BAAAM, i flare again. I think it is the nature of the disease. I know i could prevent almost all flareups, as long as i do absolutely nothing but lay around. But that is not an option.
Your date grows nearer, are you getting prepared, without overdoing it. And have you taught your DH to post for you? Because i will go nuts, if i dont hear anything. ANd you know how hard it is for me to travel, so dont make me come to the hospital.Although I would so love to see you. Be your private nurse. I hear I am a pretty good one.
As for me no news. Lawyer has asked the doc to edit chart notes, and says when they get here they are going after the other guys ins. for payment. We'll see. I do not have any faith left in my lawyer at present, or much in our no fault auto ins.
Take care, look forward to hearing from you as always. Give Noah a big hug for me.
Love and greetings , Mel
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Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
loss of lordotic curve
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
Charlotte, Teri 
Take care.
Linear Mode
