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Old 06-28-2003, 02:10 PM   #1
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Kortney HB User
Unhappy Well, found out the cause of my neck pain& need massive good thoughts. Not good news.

I scraped up half the office visit, my mom paid the other half to see my internist. He's a nice guy, good doc.

Long story short is the pain in front of my throat on the right, facial pain on the right, muscle spasm, etc doesn't have one thing to do with my neck directly really.

One look in my mouth was all it took. Large mass in the back of my throat, right tonsil area. When I stuck my tongue out ( something I love to do to doctors anyways! ) my left side is *normal* in that you can't see the tonsil. It isn't inflammed, nothing abnormal.

Right side, different story. All you see is in the area in the back of my tongue, where the tonsil area is, just one mass pushing out from the side.

Down into my throat is a little sore on that side, swollen lymph nodes under my chin on that side, 1 in my neck on the side, one behind the ear.

He did plain view films of my neck they looked pretty good. Xrayed my sinuses 3 views including a waters view, they're clear. Looked in my ears, little clear fluid, no infected fluid.

He said whatever is going on in that mass area is causing pain like referred pain.

I didn't know it was there. I mean, it's not like I check out my throat and stick my tongue out at myself every day and things like that.

I've been a little hoarse lately, slight cough but I figured it was from allergies. I've always had trouble with allergies, all my life ya know? Especially where I live it's hot and humid every single summer we hit 100+ degrees with heat indexes.

He wanted to know how much I smoke and I was honest with him. 2 packs a day. I've smoked since I was 15 years old.

He says that whole area needs to be removed and biopsied asap because it just looks ugly. The lymph nodes have to come out too and I need a CT or MRI of my head/neck area. He said the whole thing just doesn't look good. I asked him to please, just be honest, tell me what it looks like. He said cancer.

I'm only 32 years old. I have a little girl. It's just the 2 of us except my mom and family.

My aunt is an oncology nurse here. We talked to her, she looked at it for me. She started to cry. We're real close. I remember being 7 years old and at the graduation when she graduated nursing school. Now she's a nurse practicioner for Baptist Cancer clinic here. Has been for 10+ years.

I have applied for state assistance but the process is slow for medicaid, etc. We can't pay out of pocket for all the tests, etc. Biopsies. That costs tons of money.

My aunt did tell me if push comes to shove in the next week, we can probably get either an ENT or, one of oncologists at her office to do a direct admit and get me a social worker upon arrival and they can get the ball moving real, real fast and run it thru like an emergency or something. She said social workers know the ropes and know how to do that.

I am not allowed to have any aspirin, no NSAIDS. Nothing that will thin the blood because when I go in and they start cutting the stuff out, they don't want me on those meds.

I am still on Neurontin because it does help a little with the nerve type pain in my face, prevents migraines, etc. It does help me with that. He gave me some lidocaine viscous I can swish and spit out for the throat pain when it gets bad.

I asked about another MRI of my neck and he told me he does not doubt at all my neck hurts. Disc bulges can cause pain in alot of people and then there are some with it and it does not cause pain.

My doc said I need to put all my focus and energy into dealing what what's been tossed at me now because that disc bulge may be the least of my worries.

I just don't what to think at this point. It's alot to take in at one time.

 
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Old 06-28-2003, 02:28 PM   #2
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Man--Kortney--that is a real blow all right. As for dealing with it--I don't know what to say. I know how I felt getting a biopsy the same day my son was being born. It was a big neck swelling also. The good news it wasn't cancer. I got that one out and the next MRI showed two brain tumors--went in to get the big one taken out and a pre surgery MRI showed a huge spinal cord tumor. They cancelled my head and sent me to Toronto to remove the spinal cord tumor.
I guess what I am trying to say is expect the worst--but it may not be what you think. Even if it is--sounds like they caught it early. I had my first surgery at 23---I am still here 13 years later.
The best thing to do is get your affairs in order. I was dumb--we'd just bought a house and thought I would NEVER need disability insurance on the mortgage.
Check out all your policies and get them ready.
Make a list of all the questions you have for your doctor--as you will come out forgetting everything you wanted to ask. I can't believe he never gave you something for the pain.
Keep a good attitude about the whole thing and hopefully things turn out to be something else. I am pullin for you here and keep us posted.

 
Old 06-28-2003, 02:30 PM   #3
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Cool

oops

[This message has been edited by BamaPeach (edited 06-28-2003).]

 
Old 06-28-2003, 02:31 PM   #4
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Hi dear,
I am so sorry for all that you are having to deal with. Remember, even though it does not seem like it, that the Lord will not put us through more than we can bear. I had an old aunt that , when I was feeling overwhelmed with four children would remind me that he would not trust me with them if he did not think me capable of it. Having recently had a cancer scare myself I truly understand. Thanks to the Lord for on my part everything came out ok at the moment but we continue to watch. My Lymph count is elevated and my father had Lymphoma, but we all just take it as it comes. My favorite passage is Isaih 40 28-31 Hast thou not known? Hast thou not heard, that the everlasting God the Lord, the creator of the earth, fainteth not, neither is weary. There is no searching of his understanding. He giveth power to the faint, and to those who have no might he increases strength. Even the youths shall faint and be weary, and the young men shall utterly fall. But they that wait upon the Lord shall renew theri strength; they shall mount up with the wings like eagles; they shall run, and not be weary; and they shall walk, and not faint. I apologize to those who do not believe and for some reason I felt the urge to share this with you (Those God nudges, you know). I am praying that you and your family stay strong through this and (here is the hard part) his will be done.
Hugs and special prayers to you
Ginny

------------------
"The only thing neccessary for evil to succeed is for good people to do nothing"

ACF June 18, 2003 C4-5, C5-6, and C6-7 with bone donor and hardware

 
Old 06-28-2003, 05:45 PM   #5
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Kortney, my prayers are with you. God works in mysterious ways, having the back problems got you to get this new diagnosis. You may have overlooked it too long if not for the other trouble. Your posting is helping others, we who smoke need to stop! We are here for you and will be supporting you all the way for a positive outcome!!!! Put your health first and demand whatever treatment you deserve!!! cj
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