trina139

My mother has sneddons syndrom, she was diagnosed more then 7 years ago. She is reaching horrible stages of this disease. We know what it is (the disease) but we are looking for any known treatments, or suggestions. She is currnetly on blood thinners, regular PT's and a treatment called IVIG, an auto ammune treatment. If anyone knows anything about this that can help please contact me. We are nearly hopeless. She has had multiple strokes from this disease, so I though maybe posting it in the stroke section may be a good idea
-Katrina