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Old 03-29-2010, 01:37 PM   #1
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Just had a stroke 4 days ago....

And I am seriously scared. I am a 46 male, reg. blood pressure,slightly elevated cholesterol.I am not sure what to expect in the very near future. I need someone who has gone through this to help me out. Every little tingling sensation I have kinda freaks me out. Then the anxiety kicks in. I really would like to hear someone elses experience and someone to tell me Im not crazy,just scared.

 
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Old 03-31-2010, 06:33 AM   #2
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Re: Just had a stroke 4 days ago....

You are NOT crazy. I had a mild stroke Mar.15, after a lifetime of never being sick.
Anxiety, fear, depression..all are normal reactions. I too think, every time I feel a bit "funny" or feel a little headache coming on, "Am I having another one?" Bedtime is the worst since I had my stroke overnight.

Keep your cellphone with you at all times, or if you don't have one, have cordless phones and keep one in whichever room you are.
Make sure you take whatever meds the dr. gave you (Lipitor?) and if you feel the need of something to ease the anxiety and fear, don't be afraid to ask for it. I had to do that, but not everyone does.

If you need counselling, get it. Will you be doing rehab or physiotherapy?
I'm starting to learn to take one day at a time and work towards complete recovery. We don't know what will happen tomorrow, but if we spend today just worrying ourselves sick, what do we have left?
You are NOT alone in anything you're feeling, believe me!

 
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Old 04-01-2010, 12:10 PM   #3
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Re: Just had a stroke 4 days ago....

You are not crazy, I had a stroke May last year and I too have the fears and every little tingle or wooziness really freaked me out. I am now on medication for anxiety which has really helped I am now much more positive and relaxed. My stroke was caused through High BP which is now under control and it was a bleed not a clot. I agree with the last reply try not to spend all the time worrying about what the future may hold. I know how hard that is believe me but as time goes by you learn to accept all the odd sensations that you get and they don't worry you so much. I know how much we all try too avoid meds for anxiety but if it helps you to live a normal/better life then they do help. Good luck.

 
Old 04-03-2010, 05:25 AM   #4
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Re: Just had a stroke 4 days ago....

Hi,
I'm glad a place to talk with others with strokes. thanks for my wonder wife that found a safe place - i was trying to look my self and when i put "stroke" in google it was just porn stuff and was very hurtful. i'm just looking for friends you jerks.
Dear Kayon: thanks for saying you are not crazy. i cry more because i feel i am jailed in my brain and cannot say what i want to say. it's all there dam it but says out wrong. i am a producer, editor and videographer. i also just wrote my first book and it wasn't quite done... now a can't read what i just wrote my book. i also play guitar since i was a kid. at least i thank god that i has all of my phyisicals but i can play guitar still, but i can't remember songs i used to play. everyting was gone in one dam day. i was strong at first but has been 2 months now and i getting mad.
my wife has been so good and understanding, but i can see she gets frustrated at times and i understand her. i must say i'm sorry to her a million times a day and she says stop saying your sorry.... but i can't work now and we try gov't help and it takes forever.
i try to get for it myself that things are different now.
thank you for bless you.
i could probable write for hours but my head hurts after typing to long.
but i will be back and pester everybody.
thank you,
positive cynic

 
Old 04-03-2010, 06:02 AM   #5
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Re: Just had a stroke 4 days ago....

Quote:
Originally Posted by dphil5 View Post
And I am seriously scared. I am a 46 male, reg. blood pressure,slightly elevated cholesterol.I am not sure what to expect in the very near future. I need someone who has gone through this to help me out. Every little tingling sensation I have kinda freaks me out. Then the anxiety kicks in. I really would like to hear someone elses experience and someone to tell me Im not crazy,just scared.
You are ok bro.... all we need to do is talk to each other. know one knows what you are doing, but i do... it's ok you are not crazy. i feel like i am trapped in my own brain now.. i guess that is part of what happens... let's just all be partners, i just found this forum (or my wife did) today and i feelt like i was going nuts trying to say what i'm tolking about.

ok, i am not a doctor but i don't think you will have another stroke. that is what i say to myself... it's bad enough so how can it be worst???

we just put own cat down yesterday and i cried for an hour... and i didn't like the dam thing.. i am positive .. don't worry.. it is day by day now for us.

please stay in touch... i want to meet as so many stroke people as possible. we can do it all together.... stay touch always... i am trying to make a network with all good good ppeople, that i could have done in second ussually. but it takes longer now... so anyway i was seeing that some posts were years ago... so we need to do something we can talk all day.
god bless,
positive cynic

 
Old 04-03-2010, 08:05 AM   #6
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Re: Just had a stroke 4 days ago....

PositiveCynic....not sure if the OP will be back, but just want to say I understand your frustration and anger. It's a terrible shock when our bodies betray us and won't do what we want. How much we took for granted!

I find myself crying out of the blue, and feeling such anger I ahve to stop and breathe because that feeling is not a healthy one for us. I'm a widow whose independance is most important to me so I need to change all that negative energy for positive and work to get back where I was before this thing happened.

The brain has an amazing capacity to heal itself, so please don't despair or give up.

Are you in rehab or physiotherapy and how is it going? Just typing posts here is good therapy and my typing has improved quite a bit in the last few weeks.

 
Old 04-03-2010, 08:45 AM   #7
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Re: Just had a stroke 4 days ago....

Quote:
Originally Posted by Chloe1252 View Post
PositiveCynic....not sure if the OP will be back, but just want to say I understand your frustration and anger. It's a terrible shock when our bodies betray us and won't do what we want. How much we took for granted!

I find myself crying out of the blue, and feeling such anger I ahve to stop and breathe because that feeling is not a healthy one for us. I'm a widow whose independance is most important to me so I need to change all that negative energy for positive and work to get back where I was before this thing happened.

The brain has an amazing capacity to heal itself, so please don't despair or give up.

Are you in rehab or physiotherapy and how is it going? Just typing posts here is good therapy and my typing has improved quite a bit in the last few weeks.
Chloe,
thank you for quick response... i is just knowing that some one is out there. it's like i just siet and wait if someone knows... i have a beautiful loving wife and many friends, but when it happens there is no where to go. yoiu cannot try like it was and everyone tries to understand. i don't like going anywhere anymore and i used to be the clown of the party. thank you for saying hi. i am doing ok and like you said owe brain does making things. i could have not even do this 1 month ago. so it's good. i can still play my guitar wich is a blessing but i can't remember songs i used to play. i agree that the things we stay for granted.. i hate what i type anymore because i used to be such stickfeler for every word and i just said fu... it.... if i have to edit my words it would take me 2 weeks to write something... so i sorry for bad writing... but i try do as best as i can... one good thing the happened is - i don't get mad anymore - it takes too much energy that i have to just do regular stuff... i also have alot more loving to people that i don't want to lose.

life is precious so don't waste it away.
i god bless you 100 times for saying hi.

 
Old 04-04-2010, 06:28 AM   #8
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Re: Just had a stroke 4 days ago....

Thanks to all that answered my original post. I find myself keeping more busy than any other time in my life. The more things that I try to do,the less i think about everything. And I even went golfing Fri. I just rode along on most of the holes but it felt great to be outside. 80 and sunny,my friends and cousins helped to make me forget for 5 hrs,which was way cool. The paranoid feelings are still there but I will not live my life in fear!

 
Old 04-05-2010, 06:36 AM   #9
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Re: Just had a stroke 4 days ago....

So glad you came back dphil5! It's nice to chat with people who truly understand how you feel.

It's great that you got out and enjoyed the day and don't forget - it WILL get better and better. I"m not usually the greatest optimist or Miss Sunshine, but when I get angry or tearful because I've tripped over something or have a hard time writing my own name, I really try to stop and think how very much worse it could be.

You're young and hopefully will recover completely. Get all the help you need and do prescribed exercises faithfully. Find a goal (playing a game of golf e.g) and work towards that.

And of course, the help and support of friends and family is beyond priceless.

I'd like to see this forum more active, since the exchange of ideas and moral support to be found is very valuable!

Please keep us up on how you're doing!

 
Old 04-05-2010, 02:32 PM   #10
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Re: Just had a stroke 4 days ago....

dphil5,
good for you. it is wonderful to see that you went out the other day. that must have been a big step for you. 5 hrs. is a long time to be doing something like golfing!!!! awesome. chloe is is good to see you too!!! and i like your encouragment i hope everyone keeps in touch.
i had a big for me step that started today. one thing that i have done for years is listenign to sports talk radio and i would even call in occasion. after the stroke i couldn't listen to it because i could not follow what we going on. for example as a football team would be said and i would have to figure out who was that, in what city where they, etc. by the time i got the city they were talking about they were 10 things ahead. i stopped listening to it because it frustrated me so bad. well today i listened to the whole program i like and felt like i got i most and i've laughed aloud a feel times that i have not happened to my stroke. that felt pretty darn good.

thanks for being there to all of you. :-)

 
Old 04-05-2010, 03:51 PM   #11
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Re: Just had a stroke 4 days ago....

Wow, Positive Cynic...your typing and syntax has improved just since your last post! Anyone else notice this?

I was a 78-word-per-minute typist, and after my stroke I couldn't even type one entire word without a mistake. I kept at it, frustrating as it was, and within a few weeks I could type complete phrases without a mistake and now, just 7 weeks after the stroke, my typing is almost...not quite but ALMOST...back to normal. I think the trick is to keep doing it...even when you make mistakes. And when you make mistakes, if you see them...go back and correct them. All of that activity helps your brain to make new pathways, and it helps us get back to normal. Of course, I realize I'm saying this from the perspective of one who had a very mild stroke, but still...I did and still do have some deficits, but working on them is helping. Math is one area I really have to work at, but it's getting a bit better whenever I do math problems. They still give me a headache, though, lol...so I don't do too much at a time.

Ruth

 
Old 04-05-2010, 06:19 PM   #12
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Re: Just had a stroke 4 days ago....

G'Day dphil5
Just hang in there, It all takes time, the recovery time is different for everyone I am still in recovery after 15 months and was told in hospital it could take years. I found out early that listening to good music is beneficial and there is current research into how music (not headbanging music obviously) helps the brain recover from an injury.
Wayne

 
Old 04-06-2010, 08:21 AM   #13
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Re: Just had a stroke 4 days ago....

Quote:
Originally Posted by SamQKitty View Post
Wow, Positive Cynic...your typing and syntax has improved just since your last post! Anyone else notice this?

I was a 78-word-per-minute typist, and after my stroke I couldn't even type one entire word without a mistake. I kept at it, frustrating as it was, and within a few weeks I could type complete phrases without a mistake and now, just 7 weeks after the stroke, my typing is almost...not quite but ALMOST...back to normal. I think the trick is to keep doing it...even when you make mistakes. And when you make mistakes, if you see them...go back and correct them. All of that activity helps your brain to make new pathways, and it helps us get back to normal. Of course, I realize I'm saying this from the perspective of one who had a very mild stroke, but still...I did and still do have some deficits, but working on them is helping. Math is one area I really have to work at, but it's getting a bit better whenever I do math problems. They still give me a headache, though, lol...so I don't do too much at a time.

Ruth
SamQKitty,
Hi! thanks for the nice thoughts. I can't tell when I am doing better, because my typing is all bad to me. I used to be proud of my typing and word spells and to see what I look what I do now is just but thank you for noticing. When my stroke happened I told myself that this thing is not going to beat me... I will win. I have always been the cynic (questioning everything - doing my research - and coming to my own conclusion after care thought and reason) that is why I came up with Positive Cynic - The cynic in yourself has to give way at some point and try to make a new way of thinking and that is just what I am doing now and we all are. Hey, it (stroke) is not all bad - I diffinetly have a new way of thinks about the world around me - and that is not a bad thing. Ruth - why does typing hurting thing your brain so much????? Weird huh?
bye everbody and God Bless
by the way, I am Tim

 
Old 04-07-2010, 02:10 PM   #14
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Re: Just had a stroke 4 days ago....

Hi Tim,

Typing doesn't hurt my brain too much, but doing math definitely gives me a headache! And if I get overtired and try to take in too much new information, I get a headache. They're not really bad headaches, but it's as if there's a band around my temples and forehead and it's getting tighter. That apparently is my sign to stop and rest! My speech therapist says that's very common...the brain has to work really hard when relearning everything one lost, and I guess that's especially true when dealing with aphasia.

It seems to me that typing may be helping you...you're making fewer typing mistakes and even fewer "wrong words" or "wrong syntax" mistakes...you should look at your most recent posts and go back and look at some of your first posts and I think you'll be able to see the difference yourself. That's one good thing with typing...you can actually SEE the progress.


Ruth

 
Old 04-08-2010, 11:20 AM   #15
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Re: Just had a stroke 4 days ago....

Quote:
Originally Posted by SamQKitty View Post
Hi Tim,

Typing doesn't hurt my brain too much, but doing math definitely gives me a headache! And if I get overtired and try to take in too much new information, I get a headache. They're not really bad headaches, but it's as if there's a band around my temples and forehead and it's getting tighter. That apparently is my sign to stop and rest! My speech therapist says that's very common...the brain has to work really hard when relearning everything one lost, and I guess that's especially true when dealing with aphasia.

It seems to me that typing may be helping you...you're making fewer typing mistakes and even fewer "wrong words" or "wrong syntax" mistakes...you should look at your most recent posts and go back and look at some of your first posts and I think you'll be able to see the difference yourself. That's one good thing with typing...you can actually SEE the progress.


Ruth
Hi Ruth,
Thank you for the info. Your posts are always good stuff. It sounds like you have been doing this (stroke) longer than me, so I can get good knowledge from you. Thank you for being so candid with your personal story. I just wish there were more writing here. I understand that it is hard to do, but I do think that these simple typing things are a where to help yourself getting back to normal. You know it took my 2 weeks after from the hospital to even turn on the computer. I was afraid that I couldn't do it and didn't want to know that if I could or not. Well the first time I turned it on, I was happy to see that I remembered some basic things, at least enough to look at my e-mail and read it, though it took awhile. Then a few days later I sent my first e-mail to a friend that knew that I had a stroke. Then the fear started to lessen. Now I am on the computer alot and probably am a pester to people. I'm not afraid of telling people anymore - hey - I had a stroke so just bear with me. Everybody is always very nice. So I guess I am trying others to do it, that is write here. I thank you Ruth for your posts, but I hope I can help others to say hello. This is a place friends to talk. We are all in the same boat. Just come on and say HI!! - Thanks Ruth for your help
God Bless you and your recovery.

Love you all!!
Tim

 
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