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Old 06-28-2011, 04:48 AM   #1
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Constant pains in my head 9 months after stroke

It's been very frustrating trying to get answers from the medical professionals. I had a hemorrhagic stroke due to high blood pressure in September 2010 and although I have progressed greatly, I still suffer daily from “burning”, “bruising” pains in my head. My whole head used to pain but now it mostly pains on the side I had the bleed. I say “bruising” pains because it’s the same pain as when you bump your head. If I rub that area it seems to relieve it for a short while. The “burning” pains just come and go all day. The pain actually exhausts me. My Specialist prescribed Tramacet tabs for me. Unfortunately they don’t help at all. I went back to see him last month to complain about the persisting pain but he sent me for a neck x ray which showed that all was well with my neck (which I could have told him) It obviously is due to the stroke that I have this pain, but I don’t know what to do to get answers and relief. My blood pressure is under control so I don’t get headaches from high blood pressure. Anyone out there who can help? Please I’m desperate.

 
Old 06-28-2011, 02:25 PM   #2
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Re: Constant pains in my head 9 months after stroke

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Originally Posted by Tamalam View Post
It's been very frustrating trying to get answers from the medical professionals. I had a hemorrhagic stroke due to high blood pressure in September 2010 and although I have progressed greatly, I still suffer daily from “burning”, “bruising” pains in my head. My whole head used to pain but now it mostly pains on the side I had the bleed. I say “bruising” pains because it’s the same pain as when you bump your head. If I rub that area it seems to relieve it for a short while. The “burning” pains just come and go all day. The pain actually exhausts me. My Specialist prescribed Tramacet tabs for me. Unfortunately they don’t help at all. I went back to see him last month to complain about the persisting pain but he sent me for a neck x ray which showed that all was well with my neck (which I could have told him) It obviously is due to the stroke that I have this pain, but I don’t know what to do to get answers and relief. My blood pressure is under control so I don’t get headaches from high blood pressure. Anyone out there who can help? Please I’m desperate.
Hello Tamalam,
Welcome to the forum. I am sorry you are having such a time with your headaches. I have found that headaches are very common for stroke survivors like us. I too had an excruciating headache on the left side of my head and like you nothing worked, it just went away after awhile. I have heard from many that the headaches eventually stop. Like mine did. I know that that may not give you much comfort, but this seems to be common to many stroke survivors. It just goes away after time. What I will say is that to my it seems like you have had the headaches for an awfully long time. Are you able to get another MRI and make sure there is not a clot or something like that or something that is not healing properly since your stroke? Obviously I am not a doctor, just some thoughts. I hope that you can get some relief soon though. Like I said a lot of times your body heals itself when these odd symptoms come up after a stroke and it happens to all of us too.

God Bless,
Tim

 
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Old 06-29-2011, 12:52 AM   #3
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Smile Re: Constant pains in my head 9 months after stroke

Hi Tim,

Thank you so much for your reply. It somehow puts my mind at rest to know that it is common to suffer from headaches after a stroke.My Specialist can't tell me why I have the pain as I have been for 2 MRI's since I had the stroke and both MRI's showed that there was no further damage since the stroke.The problem is that 6 months after the MRI's the pain has worsened and that is what has got me worried, mainly because it has become severe on the side of my bleed. My medical aid won't pay for another MRI just yet so I'll hang in there until they authorise it. Hopefully, as you say, my body may start healing itself. I have started on tissue salts in the hope that my body may reach some form of normality. Unfortunately I have to remain on the (chemical) medication for my high blood pressure as I cannot risk my blood pressure getting out of control again. I hope all is well with you. Thanks again.
God Bless
Cheryl

 
Old 06-29-2011, 02:25 PM   #4
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Re: Constant pains in my head 9 months after stroke

Hi Cheryl,
I am happy you feel a little better about your headaches. I forgot to mention a few things. My Dr. told me to take aspirin (325 mg), fish oil, and folic acid everyday since my stroke. If you don't take those things already I would not tell you to take them unless you ask your Dr. first, but it seems like aspirin is pretty common for stroke survivors to take. Another think is I drink a lot more water since my stroke. I did this on my own research, but our brains are 90% water. I was told in the hospital that I was de-hydrated so it makes sense that water is good for our brain. Make sure it is good clean water, not tap water. Also if you can find alkaline water where you live, that is very beneficial.

Another weird think that happened to me about my headaches. It was about 2 or 3 months after I was home and I started getting a nose bleed (and I never get nose bleeds). But it was only on my left nostril and my stroke was on my left side. Anyway it bled for a long, long time and would not stop. My wife was starting to worry, but I said, let's just wait. Since I never get nose bleeds I just felt like this had something to do with the stroke. Anyway, after hours of bleeding if finally stopped. And I didn't realize it until a few days later, but my headaches stopped. I am not telling you to try and get a nose bleed for sure. But it was really just some weird coincidence or something. Or maybe it did stop my headaches. I don't know. I did stop asking my Dr. about all the weird things that were happening to my body after my stroke. Because he never had an answer. And I have found from this forum that many stroke survivors here have all of these odd symptoms that Dr.'s can't explain. They are all different, but we all seem to have them and we are all in agreement about it. So you are in go company here

God Bless,
Tim

 
Old 06-29-2011, 07:02 PM   #5
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Re: Constant pains in my head 9 months after stroke

Hi Cheryl
Sorry to hear about your stroke. You are definetly at the right place for getting answers. There are some really carrying and informative people here.
My stroke was one year ago. I have had a low grade headache every day since the stroke and my specialist says its a migrane, I am sensative to light and sound and if I push myself my headache, neausea, and all other symptoms just intensify until I shut down. He plans on putting me on a drug to correct the migrane and it also should help with my hand tremor.( go firgure) We shall see. I will let you know how I make out on it and what the name of the drug is. Right now I am on nothing for the headache because like you, nothing works. My pain does not sound like yours, mine is more a constant pressure on both sides of my head and across my forehead. It thumps and thumps. I am not crazy about going on a durg but if it helps me get a little bit better well I guess its worth it. My doctor has been of no use to me. Like Tim I stopped telling her stuff. I trust my neurologist so I see him frequently. He is monitoring my progress and care. I agree another MRI as soon as you can arrange it might shed some light. Best of luck to you and I will let you kown what this drug is like. Also if it works.
God Bless
Mulchie

 
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Old 06-30-2011, 03:32 AM   #6
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Re: Constant pains in my head 9 months after stroke

Hi Tim,
Thanks for the advice - I need all the pointers that I can get because not knowing what's coming my way next is like walking around in the dark. Reading about other peoples experiences helps one to understand that everyones experiences are different in some ways, yet similar in others.The moment I read your reply I went to get a glass of water - thanks for that tip.I don't know if I can take asprin because it thins your blood and I had a "bleed" on the brain - but then again in the same breath - if I don't take asprin will my blood clot ? I don't know. My Specialist doesn't tell me anything. I think that I tend to panic when I feel a new sensation or pain because my Dad died from a hemorragic stroke in 2009.I then had a hemorragic stroke in 2010 and then a friend of mine had a stroke (blood clot) a few months ago and had a 2nd one a week ago and is not doing too well.I need to just calmly deal with whatever comes up next just like you did with the nose bleed and hopefully one day I will wake up and the head pains are history.I will definately let you know how I progress Thanks again for your help.
Take care
God Bless
Cheryl

 
Old 06-30-2011, 04:16 AM   #7
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Re: Constant pains in my head 9 months after stroke

Hi Mulchie,
Thank you so much for your reply. It sounds as though you are also going through a very difficult time. I also suffer from nausea when the pain reaches it's peak and at times I get dizzy as well. I hope that the new drug will help you. I don't like drugs either but unfortunately in our situation it seems to be the only thing that brings slight relief. I wish you well. Take care
God Bless
Cheryl

 
Old 06-30-2011, 05:12 AM   #8
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Re: Constant pains in my head 9 months after stroke

Hi Cheryl,
Definitely don't take aspirin in your case with your stroke. But I am sure fish oil would be fine - it is good for your circularsystem (sp) and also bananas are really good for your heart and blood system too. You sound like me - you don't like medications, and try to avoid them when possible. But there are times when we must have them, but a banana, a fish oil and drinking a lot of water, sure can't hurt, huh? I am very sorry to hear about your father. My father also had a stroke. He lived 5 or 6 years after that, but then dementia set in. He passed in 1993. Your father just passed recently, so I know the hurt is still fresh in your heart, I am so sorry

I read some things about your stroke. I will tell you some things. You may already know all of this. But I also know that a lot of Dr.'s just send your way home without giving you a lot of information:

Hemorrhagic stroke occurs when a blood vessel bursts inside the brain. The brain is very sensitive to bleeding and damage can occur very rapidly. Bleeding irritates the brain tissue, causing swelling. Bleeding collects into a mass called a hematoma. Bleeding also increases pressure on the brain and presses it against the skull.

So it is no wonder why you have such awful headaches. i wish you well Cheryl. I always try to tell newbies to try and not to worry, though it is very hard not to. But I know that everybody's biggest fear is another stroke. This is what I say to this and how I have dealt with it in my own life. A stroke happens so quickly, with little or no warning, that there really is nothing you can do about it anyway. So worry is a waste of your time and your emotions and a waste of the day that the good Lord has given us. Every minute you worry, is a minute you lose in recovery. And we need lots of time in our recoveries. I hope your day is a good one today.

God Bless,
Tim

 
Old 06-30-2011, 11:23 PM   #9
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Re: Constant pains in my head 9 months after stroke

Hi Tim,
Thanks for the info - it's more than what my Specialist told me.
Thanks for the advice - I'm definately going to include the fish oil and bananas in my diet and I'm going to take each day as it comes and try and not worry all the time.
Take care
God bless
Cheryl

 
Old 11-08-2011, 06:43 AM   #10
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Smile "Amitripylin" I take 0ne 75 mil pill each nite. Head Pain gone

Quote:
Originally Posted by Tamalam View Post
It's been very frustrating trying to get answers from the medical professionals. I had a hemorrhagic stroke due to high blood pressure in September 2010 and although I have progressed greatly, I still suffer daily from “burning”, “bruising” pains in my head. My whole head used to pain but now it mostly pains on the side I had the bleed. I say “bruising” pains because it’s the same pain as when you bump your head. If I rub that area it seems to relieve it for a short while. The “burning” pains just come and go all day. The pain actually exhausts me. My Specialist prescribed Tramacet tabs for me. Unfortunately they don’t help at all. I went back to see him last month to complain about the persisting pain but he sent me for a neck x ray which showed that all was well with my neck (which I could have told him) It obviously is due to the stroke that I have this pain, but I don’t know what to do to get answers and relief. My blood pressure is under control so I don’t get headaches from high blood pressure. Anyone out there who can help? Please I’m desperate.
My neurologist gave me a pill to take once each day. It used to be an anti-depressant but is now often used now for head pain. It is called "Amitripylin" I take 0ne 75 mil pill each nite. Pain gone. Hope this helps

 
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Old 11-09-2011, 12:27 AM   #11
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Re: "Amitripylin" I take 0ne 75 mil pill each nite. Head Pain gone

Many thanks Jim, I most certainly will chat to my neurologist about the "Amitripylin". The pains now seem to be mainly on the side of my head that the stroke occurred, but it is still constant and sometimes exhausts me. I started taking mineral salts a few months ago and that certainly helps me with the fatigue. I hope that you are doing well.
Take care
Cheryl

 
Old 11-09-2011, 07:02 AM   #12
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Re: "Amitripylin" I take 0ne 75 mil pill each nite. Head Pain gone

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Originally Posted by Tamalam View Post
Many thanks Jim, I most certainly will chat to my neurologist about the "Amitripylin". The pains now seem to be mainly on the side of my head that the stroke occurred, but it is still constant and sometimes exhausts me. I started taking mineral salts a few months ago and that certainly helps me with the fatigue. I hope that you are doing well.
Take care
Cheryl
Best wishes. The headpain is very disabilitating. I hope you find relief. Jim

 
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