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Old 11-03-2011, 06:21 PM   #1
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New guy hoping for answers

Hey everyone. Hopefully I can get some assurances of what to expect. I'm 27 years old. On July 16 of this year I suffered a stroke. I had two blockages in the left side of my brain. I have, for the most part recovered well. But, I still have some tightness in my right side. My shoulder is sore, almost like I've been throwing baseball all day. My hip has the same tightness, and my ribs feel like I've been hit with a baseball bat. I've talked to numerous people who have had a stroke, but none with these symptoms so I have no idea what to expect. So I ask the board, is this normal? Will it ever go away? All of my doctors say it is and it will, but I have to be patient. 3 and a half months seems like an eternity to me, so I guess I just wonder if I will be ok, and am just be impatient, or if this is something I should learn to live with. And from time to time I get a weird almost light headed feeling, is that normal? And from time to time my shoulder and hip feel even tighter than usual. I don't meant to ramble, I just hope to find answers from others. Also, last thing I promise, my diaphragm starts to hurt and give me just a little bit of trouble breathing. I do what my therapist did, and it seems to help short term. And my neck gets a little sore. I just wish I knew what to expect going forward. Thanks for your time

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Old 11-04-2011, 08:34 AM   #2
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Re: New guy hoping for answers

Hi Welcome to the forum of stroke survivors. I am sorry to hear about your stroke. It seems like you are doing well since it just happened in July. Every stroke is different to each person as it depends on the area of the brain that has been affected. My stroke also was on my left side. I could not read or write at first and lost a lot of memory. I will say however that it seems like everyone that had a stroke seems to have these "phantom" pains the seem to crop up after a stroke. It seems like as your brain is healing itself and re-wiring around the dead part it can send signals to different places that are not to be sent. At least this is how one of my doctors explained to me. I can tell you that most of the things you are feeling now will subside eventually. You are only a few months since your stroke so everything is new, I know. But unfortunately I have found that time is the best healer from a stroke. And it is a long, long process. But hang in there my friend. This board was a comfort for me (and still is) after my stroke. It is nice to know you have friends that know exactly what you are talking about and what you are going through. Doctors are good for pills and tests, but not very good at helping our emotions that happen after a stroke.

I would ask you one other thing about your pain. Did you pass out when your stroke occurred? The only reason I ask is because I get seizures now since my stroke and a black out happens with a seizure. The pain you describe sounds a lot like how I feel after a seizure. Especially the ribs being hit like a baseball bat is exact. And that you said you have tightness. These are not pains that I experienced after my stroke, but did experience after my seizures. Of course I don't know, but it may be something to ask a doctor about. Once you have a seizure, it is more likely to have more, but there are medications that help with that. I don't want to alarm you - please - that is not the point at all. Just the way you have your whole body aches sounds like how I feel after a seizure and it is possible that you had a seizure and a stroke at the same time. The stroke is fairly easy to detect. A seizure is not. So it may be something that was just missed because they were focused on the stroke. I hope I am wrong on this Josh. And like I said, don't worry. I never like to write here something that is not somewhat uplifting, but with what you wrote, I had to say that. Let me know what you think.
God Bless,
Tim

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Old 11-07-2011, 07:43 PM   #3
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Re: New guy hoping for answers

Hey Tim. Thanks for the feedback. I don't think I ever actually passed out. I did black out though. There were big parts of that night that I obviously don't remember. But Im pretty sure I never had a seizure......I was afraid you would say time is what I need lol. I just hope it actually does get back to normal. This tightness and soreness really are uncomfortable.

 
Old 11-10-2011, 09:11 PM   #4
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Re: New guy hoping for answers

Hi Joshua
My name is Mulchie and I am 16 months in stroke recovery. I did have hip pain after my stroke, I also had one musle at the top of my leg that would give me terrible grief and pain in the calf of my leg. I also had drop foot . My pain in my leg would keep me up at night and the more I tried to get active the worse the night pain got. It was just a matter of time and it seemed to get better. I walk 1 mile a day now and I am not up anymore with this hip and leg pain. The physio therapist told me that certain muscles were effected and how they were mis firing and atrophying. This causes the pain. For the first few weeks of my stroke I had a constant charlie horse in the calf of my leg. A chiroproctor relieved it on the first visit.
I know you probably dont want to hear this but it sounds like it will jsut take time. In the beginning I found it hard to think of the problem being the brain not the limb. After awhile I started to notice the pain was improving. After 16 months I dont wake up during the night with pain anymore. Have you thought about a chiropractor. If you know of a good one I think they really help. Thats just my opinion from my experience with my stroke.
You are so young to have had as stroke. I cant help but think your age will benefit you in recovery. I was 54 when I had mine and already suffered from arthritis.
Remember your recovery is never over till its over. Stay positive. Doctors tend to say your recovery should happen in the first 3 months but that is not true. I am still recovering and its been 16 months. So dont give up and stay positive. Let us know how your doing and keep asking questions. Welcome to the board.
God Bless Mulchie

 
Old 11-11-2011, 05:35 PM   #5
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Re: New guy hoping for answers

hi Josh, I see my good friends Tim and Mulchie have already replied to your post. let me also welcome you to this forum, I'm Larry, the most senior stroke survivor who frequents this board I think? my stroke happened at the tender age of 42. I just celebrated my 19 year anniversary of my stroke on the second of this month, I'm now 61 years old. my stroke affected my entire left side, blood stopped to the right side of my brain. Tim and Mulchie have improved greatly since their strokes. I remember when Mulchie first came, we talked about her drop foot often. it sounds to me like your shoulder may have a slight subluxation? if you run your finger down from your shoulder to your bicep, you'll likely feel a slight separation where the bones meet. mine was subluxed 3 fingers wide just after my stroke, the pain you describe, "like throwing a baseball all day" is exactly how it feels! the tight feeling hip is the same also as well as ribs feeling like they've been hit with a baseball bat.

I hate to be the bearer of bad news! but, some of these pains may never go away? I still have the pain in my shoulder though has eased a lot, that tight feeling I still have running from just above my left ear all way down to my left foot, the ribs still hurt, but more like a wiffle ball bat I'm never completely pain free at any point of the day. it may always be this way? that's okay, I can deal with the few pains I have, the emotional pains and scars are much worse to deal with. it's like a revolving door the emotions we go through. being anxious, depressed,angry, and withdrawn. you may want to practice my motto of the 3 A's? Accept, Analise and Adapt. for example, your shoulder hurts, never let your arm hang straight down. wear a sling if you must? under your elbow holding your shoulder up in more normal position. when setting, put a pillow under your elbow holding your shoulder up. at night, sleeping is when I get the baseball bat to the ribs feeling, if I roll onto my left/bad side/arm for a few minutes that pain goes away and stays away for most of the night. you'll have to find what works best for you? but there are ways that help the pains.

please keep writing and asking questions. if I can help with anything at all I'll do my best to try. two heads are better than one, in our case two halves make a whole! ha ha.

hood luck and god bless. you're doing great for just a couple months into this long long journey

Larry/coupe
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Old 11-11-2011, 08:24 PM   #6
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Re: New guy hoping for answers

Hi Josh, my name is Alberta. I had my strokes(4) when I was 37 with 4 kids at home. The youngest was just 5 1/2 months old. I had the worst pain in my shoulder ever.And I mean that. Nothing I did help at all. After I told my OT about, she said she could tape it. I thought she was nuts. Tape??? But I said ok. And that worked. It helps so much. See if your OT can do it for you. Alberta

 
Old 11-12-2011, 05:46 PM   #7
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Re: New guy hoping for answers

Dear Josh: A heartfelt welcome as well. I am 11 months post stroke and my shoulder subluxation is much better. I had no problems with my ribs, but my left thigh and hip are a real b((***!!r. My PT feels it is due to my awkward gait and the way I weight shift while walking. I know that my gait is not as smooth and natural as it was 4-6 months ago. However, I DO expect it to get better (build it and they will come). Recovery is tough and even tougher when parts hurt. As Tim and Mulchie said, time helps, and as Larry suggested if a sling helps your shoulder, use it. Some physios or OTs will tape your shoulder for you.

In the meantime, we are glad you are here with us, and that your recovery is progresssing in the right direction. Feel free to ask anything or just vent any time!

Blessings,
Nancy

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Old 11-17-2011, 08:09 AM   #8
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Re: New guy hoping for answers

Just a quick follow up. I had a follow up with my neurologist last Friday. She said I am recovering quite well, especially just being 4 months after the stroke. I had my wisdom teeth cut out last week, and every since I've noticed my right side being a bit weaker then it was already. She said that has to do with my brain redirecting resources to heal that up. Sounds odd to me, but in a way it makes sense. She still expects a full recovery, I just have gotten to the point that I'll believe it when I see it lol. Since I got my teeth cut out I haven't been really able to exercise, so my right side tightens back up. I tried light exercise Monday, and it popped two sutures so they had to cut them back open and clean them and sew them back up. So I basically hit the reset button on it. I wish 4 months ago I had known that it wasn't a cramp in my calf I felt, but more than likely a clot that ended up causing all this trouble. But I know I am fortunate to be here, and that's what matters. The immature part of me has a hard time seeing that though lol. But luckily, I have found this place with others like myself who know what it's like.

 
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Old 11-17-2011, 11:39 AM   #9
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Re: New guy hoping for answers

Dear Josh
Sounds like you are doing great. I agree with the idea that your brain is having to heal from the surgery and that is why you feel the weakness back. That happens to me all the time especially if I push it. My right side becomes weak and some of the stroke symptoms I thought were gone come back. Not as strong but a reminder that I am doing too much. Getting wisdom teeth out is no easy task on your body. It is surgery and your body needs to heal. Give it the time it needs to heal and then you can carry on with your work out.
Your doing great, congratulations on that.
As for the cramp in your calf being a clot did the doc tell you that. My heart specialist told me if the clot came from my legs I would have had a heart attach. It came after the heart (arteries ) and thats why I had a stroke. Maybe you could ask and get clarification on that for your own peace of mind. They also told me that if it was a clot in my leg the area around it would be red and so tender you couldnt touch it. That they are very painful. But saying that I know charlie horse can be Horribly painful. I have experience those. Anyway its just info I thought I would pass along. I have very little faith in doctors and specialist after going through this experince. So if you do ask your doctor I would love to know his answer.
Good luck Josh your doing great.
God Bless Mulchie

 
Old 11-18-2011, 06:48 AM   #10
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Re: New guy hoping for answers

They told me the same thing about a clot being painful and warm to the touch and I remember 2 nights before the stroke, I was asleep and woke up in more pain then I ever had been in before. I tried to stretch it and rub it out, but it didn't really help. It hurt for two days and was warm. I shrugged it off as a cramp, but after they told me to be aware of clots because they discovered my stroke was caused by Factor V Leiden Deficiency, it brought back the thoughts of that "cramp" that night made me think that was the clot that caused it all. Of course I'm no doctor so I can't say for sure, it just sounded like what they were describing

 
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Old 11-29-2011, 11:03 AM   #11
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Re: New guy hoping for answers

Ok I have noticed this a few times, and maybe it's normal but I'll as to be sure. It used to be everyday but now it's just a random thing. Might be once a week, could be every two weeks. But, at times my affected side gets to feeling extremely weighted down. I freak every time and do the whole FAST, and hold my arms out and make sure it's not drooping. It usually lasts anywhere from 5 to 30 minutes. Is that normal? I asked my neurologist about it, and she pointed out that it's went from happening every day for hours at a time, to randomly, and that it's my brains way of telling me I need to rest and not overdo it. It doesn't feel anything like what happened that day, I just want to do everything I possibly can to prevent it from happening again if possible

 
Old 11-29-2011, 02:24 PM   #12
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Re: New guy hoping for answers

Hi Joshua
I tend to agree with your doctor. When I over do it my right side gets weak and my drop foot starts giving me grief. When I rest it goes away. I have learned how much I can push it and it not come back. I am the same it use to be every day all day now its just when I over due it. God Bless Mulchie

 
Old 12-05-2011, 11:24 AM   #13
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Re: New guy hoping for answers

So my next question, for those that have made a good recovery, how long did it take before the tightness, heavyness, or pain, finally went away? It's been almost 5 months since my stroke, and while it does feel like its improving, it sucks not being able to find any real information about others who had the same symptoms. I realize I may never get back to "normal" but should I accept it. Ow after 5 months that this is how I will be, or can I still expect to be back to 100%, just in time though? The worst part is the doctors say "I expect a full recovery" but they have no idea when that will happen. That's why I'm to the point I don't know if I really believe that or not

 
Old 12-05-2011, 04:58 PM   #14
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Re: New guy hoping for answers

any one have experience with acupucture?

 
Old 12-06-2011, 07:32 PM   #15
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Re: New guy hoping for answers

Hi Josh
I can tell your getting frustrated and I dont blame you. 5 months seems like a long time and in your mind plenty of time for all these symptoms to be gone. It is so difficult to predict how much recovery and how long for it to happen. It sounds like your doing so well but I can imagine that feeling your experiencing would get on your nerves. You mentioned it is improving and that is a great sign. If the doctors are expecting a full recovery stay hopeful. Keep working towards recovery and do not give up. You asked if you should just accept it, thats a hard question to answer. If its still improving there is no reason to believe it wont continue.
I have had no experience with acupunture sorry. Hopefully someone on the board will have some info for you. Hang in there Josh your doing great.
God Bless Mulchie

 
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